ADHD

Legally Disabled, At Home, Unable to Work. And I FEEL GUILTY

/ Robin / 2 Comments

It’s too late for me to tell you a story about how this came about. I do want you to know about it though because it has completely changed the way I look at my life.

I’m legally disabled because of a very difficult mental health diagnosis that I deal with all the time. More than one, actually.

I feel pressured to do all sorts of things during my days, but I never do them. Not much anyway. My mental health sticks me like a very long needle, making doing anything so very difficult.

Clean, read an instructive book, blah, blah.

I don’t have to. This is what I realized today. I’m not getting the things done anyway so why don’t I just do what I, want to do? It’s my life. I’m LEGALLY disabled. This proves to ME that it’s ok to have such a hard time. Weird, okay. That’s me.

I can do whatever I want to.

Generally, people who assume that they do not struggle with mental illness view me, as a self-appointed representative of all people who should improve their mental health; both those who have been diagnosed with a mental illness and those who are not diagnosed, and those who want to improve it.

So yeah. Try it. You choose what you want to do.

Want to turn out better work at your job than you have been doing? Then do it. You don’t need anyone’s permission.

Want to blow up a balloon and pop it behind your annoying son? Do it.

Do not use this as an excuse to quit your job or leave your partner. Don’t be daft.

I going to have to go now. I want to read a bit more about George Orwell’s “1984” and a really fantastically written book by Kate Quinn called “The Rose Code.” It’s about three women meeting and doing life together at the code braking center at Bletchley Park in the UK during WW2. Remember the Enigma code and Alan Turing?

If you’re curious about Bletchley Park and code breaking you might check out these sites begin with: (Why am I telling you this? Isn’t this site about mental health and mental illness? *See the end of the post.)

Hut 8
Code Breakers
I’ll stop now. Do you know how excited I get?!

Tonight and from now on, I pledge to try to do what I want and claim that bit of peace that comes with being in control for a moment.

But don’t come for me if I’m only human… and I fail at sometimes, but sometimes I fly.

Bipolar Disorder |  When Stress Becomes Danger | 4 Hours Left

/ Robin / Leave a comment

I’ve been meaning to sit down and talk to you about this but, you know how it is. Stress sidelines the DOING bit after the brain thinks of something to do. In my case (this time), I have an excruciating surgery tomorrow morning, and I’m not looking forward to it. I’m not looking forward to the pain. Being able to use my thumb without debilitating pain aim definitely look directly at it. You see, I had the same surgery done on my other thumb two years ago, and I know how horribly, terribly, and frightening that pain was.

Let me quickly bring you up to date. We’ve since discovered that I have the nasty illness commonly called Fibromyalgia. I refer to it as Fibro because that’s just too long. We think that the constant pressure of the cast sent the pain level of a routine harrowing hand surgery above the charts. And no, pain meds didn’t work.

Ah yes, what’s the surgery? I’m having something put between the bones in my thumb joint. I have Osteoarthritis; this disease eats away at the stuff that keeps your bones from grinding against each other and causing intense pain.

Since it is now 2:45 a.m. I’m going to move on quickly. Leading up to today, life has been chaotic, emotional, and expensive beyond our means to pay for.

Bailey, my Kelpie (She’s a cattle dog. Google Kelpie, they’re pretty great dogs.), has struggled with severe skin issues all spring and summer. Our regular vet is booked out for months. Covid hit, and all the vets disappeared. I’m completely serious. In this area, Puget Sound in Washington State, veterinarians have been scrambling to find staff. While we waited to get in, the problems worsened. This leads us to take her to a doggie dermatologist. This is all so expensive. This is also so stressful and is especially so because of my surgery being tomorrow today at 7:30 a.m. PST.

We have a radioactive cat. Maks has growths on his thyroid and had to have feline hyperthyroid radiation treatment. I think I got that right. Anyway, he’s on the mend and zooming around the house. He’s gaining weight, and I think he’ll do really well. While he’s healing, we have to put all the dirty litter in bags, and those bags have to go in buckets, and those buckets have to sit around for 80 before we can take them to the dump. Apparently, they don’t want radioactive waste in landfills.

All these things combined with life in general, Bipolar Disorder, ADHD, PTSD, RA, OA, and Fibromyalgia, and I’m a sitting duck for a generous helping of losing control. I’ve stopped saying that I’m super stressed out because these life events are painful emotionally and overwhelming financially. Marriages and partners break up because of money. Imagine me and my underemployed family (I’m on disability so I’m broke all the time.) We had to borrow money from my mother and charge the rest. She suggested that we put the animals down if we couldn’t afford to get them help. Seriously?

Anxiety, stress, anger… entering the danger zone. And now it’s 3:03 a.m. I think we should add fear to that little list.

I need to post this now. I’ve run out of time to catch you up. Stay tuned to see how this mentally ill woman deals with family members not too willing to stay with me for a while. I won’t be able to do so many things. This time it’s my very dominant hand. My left one thinks I’m dumb if I think it’s going to do right-hand stuff. Self-righteous little bugger. This is a team effort. That hand better get with the program.

I’m going to attempt to get on Twitter and tweet updates on how things are going since blogging are iffy for the time being. I’ve never used Twitter more than a tweet here and there, so this should be interesting. I hope you’ll follow along! Join in my mad life and all the fun and bonkers ways I manage, primarily, to live my Bipolar and highly complex life.  I need to learn to do voice-to-text. (I’m too tired to edit this, so I hope it makes sense.)

Follow me on Twitter @etiquetteofmad

See you on the other side.

Mental and Physical Pain – Mental Wellness

/ Robin / 2 Comments

Last week I was feeling down, frustrated and I suppose a little angry. As in all of life, not one thing is contributing to these feelings. I know a major one is that my dog is sick. She’s in pain and, I can’t do anything more for her. Our veterinarian is short-staffed, so they’ve closed the urgent half of the clinic. A month ago, I made an appointment for her and it’s finally arrived. Its been agony watching something that has been consuming her and is growing worse every day. We don’t know what’s wrong, but we can see the results. She’s tearing her skin off. She itches so badly that she passes the pain from earlier scratching and digs deeper, trying to stop the itching. Next month, she’ll see a dog dermatologist. Thankfully I made this appointment with her regular vet. I’m hoping that they will give her something for the pain, reduce the itching, and help her heal. I don’t see any infection, but I’m not a vet. 

This is Bailey.

I think I know how she feels. In the past, sometimes my skin itched so badly I couldn’t resist the urge to itch it. I’ve woken up the night with blood on my fingers. The despair and anxiety that come with that are immense. (No, I don’t have OCD.)

Those horrible emotions appear in various places in life. When my Fibromyalgia flares up and my Rheumatoid Arthritis and Osteoarthritis flare simultaneously, they invoke those same horrible feelings in my soul. I want to withdraw and lay in my bed until I feel better. But, sadly, that’s the worst thing I can do. (One of our cats just went to the bathroom, and I think I’m going to die. Be right back.) I’ve been learning about Fibromyalgia, and one of the first and most important things I MUST do is be active. Physical activity is one of the major and only things it seems that I can do to help me, hopefully, have less pain. 

Pain, this is what I want to mention today. Mental and emotional pain can easily be as crippling as physical pain. I might believe I just can’t get out of bed, but I must. I must move around and not stop. Not doing so can let the anguish take hold and cripple me further. 

I’m also learning that Fybromyalgia causes something referred to as “brain fog.” Let me just say that I have strategies that I’m trying to use to fight my already beat-up brain from Bipolar Disorder and ADHD. (Thanks brain.) The treatments for those two things are in direct conflict, so we had to choose one to address with medication, the other I try to work within other ways. I’ve chosen my Bipolar because adding a stimulant for ADHD would make the mania so much worse. I’m already so manic that I easily drive my family bonkers; I just don’t need more stimulation. And I’m aware now, that Fibromyalgia also makes things messier.

So, where does that leave me? I’m not exactly sure. So far, it seems that brain fog is a mysterious thing. None of my doctors have offered me a solution or even a way to cope with it. I don’t hold this against them. This illness is very debilitating and, like Bipolar, it is lifelong and I must find ways that work for me to cope. Cope. I hope I can thrive, not simply cope. 

I want you to know these things about me because life sometimes sucks for each of us. I can’t possibly understand your frustrations anymore than you can understand mine. Pain, mental and physical is unique to us all. We know that already.

However, let me assure you that I am not alone and, neither are you. As people, as humans, we all struggle with unique things every day. This, as you can imagine, makes the advice that we can give each other very hit and miss, and it misses more than it hits. Why? Because we are as unique as our illnesses or combination of illnesses are. 

They say that our uniqueness makes us special; I believe this is true. We each grow with our individual strengths and weaknesses and these things make us special, unique and wonderful. I choose to believe that these thing are true.

Saying that we’re special always makes me feel a bit frustrated. When I’m feeling crushed beneath the weight of life I don’t feel special. I do feel unique in that sometimes I think that no one understands, and no one can help me. 

Do you ever experience these things? I’d bet all my money that you do. Okay, I have no money, so that’s not a real bet, but I think you understand. We may have illness(es), and sometimes they make us feel crazy. At least, sometimes I do. But, thankfully, I’m not crazy. And honestly, what does being crazy mean?

I can say that I understand depression, anxiety, frustration, anger, physical and mental pain, and the struggle to think straight or think at all. Those things I can promise I know about. You’re not alone in your struggles. 

You are not alone. Not ever. We all feel crazy sometimes. 

Be well, 

Robin

  • Savvy and her mom, Bailey. Unconditional love.

The Stress Monster Is Melting My Brain – Today Sucks… Wonder Why?

/ Robin / Leave a comment

I have Bipolar Disorder and ADHD. You will see them both in today’s post. This post will not be edited by anyone. I suspect that the door in my brain is going to try to say things a beta reader would catch. If you would like to see the bullet main points, if there are any, read on. The full story will follow that.  

Why should YOU read further? 

Reason: I hope from all the bits of my heart that you might see something of me in you and know that you really aren’t alone. You’re not. Please, LOOK at me. 

Now, here I am…. this is my version of transparency.  

Today started pretty slowly, but good. And then I left my room. Sigh, sometimes the spaghetti hits the wall early in the day. Normally, I would say that the old spaghetti trick isn’t necessarily a bad thing. Spaghetti good: encourages and stimulates my ability to see more ideas and options. Spaghetti not so good: other stuff out of my control. 

I wouldn’t normally share the specifics of a particular day with you because, well, this isn’t that sort of place for that. However, today, I think that when I talk about stress I’d like to share with you some of my own stresses. I’m going to limit it to this morning and stop right now (1:47 p.m. PST). 

Stress is a constant ANXIETY feeder in my brain all the time. Constantly. It never stops. I never feel “at peace.” What has been happening today demonstrates exactly what happens when it passes over an imaginary thresh-hold beyond which I flounder and may crash and bury my head someplace where the world stops for a moment. 

I clicked on the Word icon and waited for it to launch. I was planning on writing to you. Then Office said it was updating Office. Then it said I was dumb and that it wouldn’t play and was taking its ball and locking me out. This was the last straw. It was the “break the camel’s back” sort of straw. (What does that mean anyway?) 

I became aware that my breathing was very shallow and quick. My throat tightened and my forehead and eyes scrunched up in emotional pain. I began to cry… So, I texted my support team which includes my kids Jessica and Kyle whom I share a home with. We have a group text for things like who is going to making dinner, where we are, grocery list items, giving voice (expressing) to great things and crappy things in our days. Oh, and loads of funny pictures of our pets. 

This is the text I sent them: 

Ok, keeping it brief:
– Word keeps trying to update, fails, then refuses to open
– one the boys in the big boy tank is visibly sick [Fancy Guppy]
– twitch won’t run, so no escape in minecraft
– my anxiety is way past healthy
– only 2 chill pills left
– I am going to blog/write but I guess it will be on paper or Google docs
– I’m soooo frustrated
– I still want to get some new guppies to not kill. To put where? With Banana boy.
– insert much foul mouth swearing
– and… Son of [Some content removed. Sorry.] crispy cracker with toilet exploding hot sauce
– So I can’t play, I can’t write…
on the flip side:
– We did get back from a walk just as the weather freaked out again
– I’m not dead
-I have you guys
– my hand feels better, mostly [during a wind storm a few days ago I dropped a heavy sharp corner of a bookcase shelf on the scar of the thumb I just had the joint replaced last December 17th. I have RA and OA.]  

I followed that up later with:

I’m struggling

What brought me to this state, besides the obvious? I’ll bet you may have experienced this yourself. (Wait. How can I “bet you may have”? Anyway, on with the.. Uh… show.)

Bailey and I escape the house to walk around the block walking as fast as we can to beat the wind and rain. And… home dry!! That was fun.

I take multiple mood stabilizers. I have Bipolar Disorder Type 1 and run manic most of the time. I experience mixed states and enjoyably also cycle rapidly. Fun! Additionally, (sounds like a speech) I also have the stimulating ADHD. Yippie! We’ve elected not to treat the ADHD with medication. Who needs a stimulant to stimulate an already over-stimulated brain? Not me, thank you very much. 

FYI: I’ve recently, after years of refusing to do it, switched over to having a pharmacy send my medications to me in bubble packs. One of the major reasons I wouldn’t do it is because brain meds can be changed fairly frequently when we are trying to find the right combination that works for me and keeps me from driving everyone around me to the point where they want to duct tape me to a chair in my room and shut the door. 

Anxiety. Remember that? Unless a person has Bipolar Disorder they simply cannot understand what having it is like. They just can’t. I’ll try to sprinkle in a few things to help explain what’s so important about this stuff.

That’s the setup. 

I take:

1. Mood stabilizer in the morning (A)

2.The same mood stabilizer in the evening only double the dose (A)

3. I take another mood stabilizer in the morning (B)

4. I take the same mood stabilizer in the evening (B)

5. I take a “chill pill” (one in the “benzine” family) ( C) 

6. I take one before bed (D)

Fine. I do that. Only at the moment, I’m completely out of

1. A in the evening

2. B morning and evening

3. C (OMG)

4. D

These are ALL MOOD STABILIZERS! I don’t have any of them. 

Remember my mentioning my thumb. The next day I fell on that thumb and while it saved my face from planting itself in the garden at the Vet’s office. ALL my weight landed on that hand. I weigh over 50 lbs. I’m sure 50 lbs would have hurt a lot. I weigh over 100 lbs above that. My thumb/hand has been hurting, but only when I use it, touch it, or put pressure on it – think ice pack or heating pad. 

I called the bubble pack pharmacy again (did it yesterday as well) and practically begged the poor lady to tell me that my missing FOUR brain meds would be here yesterday. She couldn’t. 28 minutes later I came away with a USPS tracking number and the medications that should be in it. ALL of the medications [A, B, C, D] are in that box. 

Of course, I jumped on Jessica’s computer (now not trusting my own) and looked it up. [Insert creative bad words developed while growing up on a ranch. Use your imagination.] They appear to all be in the same package. The package took 24 hours to leave OH. (Uh…) 

See – things progress. I don’t pop on Facebook to visit friends. Rarely. It is now 4:08. While I sent myself that text message from my phone (SMS) to FB messenger, copied it, and pasted it here I saw an ad that indicated it might lower our energy costs. Stupidly, I clicked it. Ten minutes this sales guy calls me. Seriously. I had just been trying to find out if they were legit (I couldn’t) when this name pops up on my phone, “Blah Blah Solar Company.” Oh hell no. No, no, no, no. Nuh-uh. Having been in businesses I and my family have owned I can tell you that this ad clearly misrepresented themselves and what they were offering.  

I am known in my family as the one to go to if you need someone to kick-back. Meaning since I think I know more than they do I will explain to them what exactly I think about whatever-it-is and how it’s going to be. I shot of pic of the ad from the monitor and was getting ready to send it to my city utility company to see what they knew (and probably to show them something possibly fraudulent – no, I have no idea what I’m talking about. 

Remember how things are going today and that those precious lost medications for anxiety, that’s part of mood stabilization, are completely out of my system. Blotto. 

Blotto. I don’t know what that means, but I like to say it. [Use Google Mom!] Google says I was spelling it wrong, but it essentially means “extremely drunk. ‘we got blotto.’”)

When I use the word “blotto,” which I do, I mean something like “the shit hit the fan.” Yes, I think that works. Or maybe more gently, “Crap.” But sometimes I just say “blotto” just because I like the way it feels when I speak it. Weird. Right. 

Can you see anything? Yes, of course, you can. Bipolar mania. ADHD. 

How is my day? Blotto. But, it’s getting better. 

4:35 p.m. Kyle get’s home from work. He asks me how I’m doing. I say, “Fine.” (More abbreviated chit-chat. I hate it when I talk like that.) “I’m not making dinner. Can you two deal with it?” He says they will. I make licorice tea (decaf). Set a five minute because I always forget it. Put on headphones. Stop writing this for a few minutes while I get ready for music. The playlist I made to help me hold on has been “misplaced,” so I’m making a new one. Bluetooth. Headphones. Volume is very high. Kyle comes back in and gets my attention. He didn’t know I’d plugged my head in. My tea, it was done. Oh yeah. Yeah! Headphones die. Kyle sets them to charge. He loves me. “Mind if I play music, uh, loud?” Sure. :0)  

YouTube playing. Right now. Breath… out. Imagine with me just that. Breath… out as the music draws me in. Eyes close. Head embraces the sounds. Nods. Taylor Swift. Gretch Wilson. What??? 

5:00 p.m. “Redneck Woman.” I sigh and begin to relax. “Fight Song.” (“…. cause I still gotta lot of fight in me.”) 

Hours remain before bedtime and I’ve lost focus. I’ve written all this down (thankfully skipping all the interruptions like talking for 28 minutes to the new pharmacy and all that stuff) for just two reasons. 

Reason 1: In some crazy way I hope you focused a little on my day and not your own. Maybe this you were entertained? ;0)

Reason 2: I hope from all the bits of my heart that you might see something of me in you and know that you really aren’t alone. You’re not. Please, LOOK at me. 

5:15 p.m. Pink “Just Like Fire.” The music helps. First deep breath. Thank goodness. 

…… And now the med provider has called to try to rescue me!!! I’m talking to you while I listen to him type out “emergency” orders for my local pharmacy. So funny.  ADDENDUM: The pharmacy received the orders. Insurance denied. The pharmacy says  I can pay cash. No, I can’t. Called the med provider and left another message as he asked me to do if there was a problem. There is indeed a problem. Further TRANSPARENCY: Thankfully my kids kept bugging me to try cannabis (legal here) just like my MD has been trying to get me to do for over ten years. 

Alright. I think that covers the majority of my day. I hope I haven’t bored you or convinced you to head for the hills. This, this post, is me being “transparent.” I’ve wondered what a day in the life of a “stable and normal” person is like. I see them posting about how I can conquer my anxiety and depression and they know because they’ve done it too. I’m sure some have and are doing great. The problem is that I’m reading what they say from a bunch of clean whiteness with sharp letters that make up clean looking lines containing words. What? It looks, with the eyes, clean. Life isn’t clean. It is so messy. I’m messy. I’m guessing you can see that. I just always want to know something of their story. What were they like before they were able to write this logically layed article with bullet points? 

Robin, STOP. FULL and or HARD STOP. 

Okay, geeze. 

Always honest. Always trying to be better. Always here, even when I’m stuck inside my head. Please reach out or feel free to leave comments. How are you as we head into more stressful days. I don’t know about you, but this Thanksgiving especially is going to be more stressful than the normal stressful. We don’t want to give or get the covid. (That’s what we call it now. Just, “the covid.”) It gets complicated. 

I’ll be back. 

A question I was asked today: 

Do you have any desire to harm yourself?   [something like that]

No. No, I do not. 

(This is what transparency looks like from me.) 

Bipolar and ADHD Brains Working from Home

/ Robin / Leave a comment

I love this video! The ideas on how to work from home can give us direction on how to create a healthy environment for ourselves during this very interesting time.

The video is different from many other resources on coping with being home because it is specifically targeted towards the ADHD brain. And… so what! It’s excellent and Jessica’s ideas are on target for brains of any flavor.

We did a bit of finger-pointing this morning while watching it. I really tried hard not to point with multiple fingers at the same person. (Okay, I didn’t try even a little bit!)
My ADHD brain seems very similar to brains right now.

What do you think? Do you know any brains that seem to be sharing any of these traits? Ha! I bet you do!