Bipolar – The Diagnosis

This week a situation came up in which I was able to ask each member of my family if any of them have ever tried to learn anything about Bipolar Disorder. Every one of them said, no. I have always been the source of the storms in my family group: parents, brother, and kids. I was always angry or striking out at them (verbally) while in a devastating tsunami of rage. I was unstoppable, and I was very ill. I was a bad child. I constantly fought with my father who had anger demons of his own.

I don’t actually know if learning about BD will enable them to understand me, and even to help me when I’m helpless.

There’s just one problem – Not a single soul on this blue world completely understands Bipolar Disorder. Not one. Even those doctors who are afflicted with the illness do not know precisely how it works or what it is. And the meds I take, almost all of the fine print says it is used for things like seizures and a variety of other things, but not for BD.

Meds for BD are prescribed because the medical community has discovered that in general, some medications seem to help control the symptoms.

Symptoms. This means that the meds are not fixing Bipolar Disorder itself. The meds are just meant to enable us to coexist with other humans.

The fact is that no one understands Bipolar Disorder, not the doctors, researchers, interested persons, or those of us who live with it. You can take a little quiz online that will tell you whether or not you have it (OMG – burn all these quizzes. What? They’re digital? I guess we’ll have to be creative and figure it out.

The reason I’m so irritated and upset about this is because my much younger cousin has been spending gobs more time with my mother than I am. She keeps telling my mom that she has all these mental illnesses. My mother responds with compassion and encouragement. She tries to help her. She spends time with her. A lot of time.

I pointed this out to my mother and she didn’t say anything. The problem is that it’s true. They really haven’t done ANYTHING to try to understand, to keep track of how I’m doing, to be compassionate to ME. It really hurts.

Have you ever experienced something like this?

There are thousands of websites, books, and experts available to people so that they CAN learn about BD, so that they CAN love me despite my extra quirks and behavior that makes them not want to be around me. (This has gotten better, but let’s face it, the BD brain isn’t exactly reliable or dependable.)

I wish, that they would watch a four-minute video or read a nice and short informational page on a website.

I wish.

My mom knows someone better than she knows me. She’s embraced her and is compassionate and supportive of her. She makes excuses for her. She never has done any of that for me. She says that when I was a kid they didn’t know anything about BD so she didn’t know what to do.

“But what about now? 

“Family, I’m 55. Have you ever tried to learn about my illnesses? Ever?”

“No. Well, they didn’t know anything about it back then.”

“Mom, what about now? Today? I still have it. You know I still suffer from it. Why don’t you just Google it or search for a book on Amazon about it?”

I try to ignore the emotional pain that this lack of real love causes me (that’s how it seems to me). The daughter that lives with me has had to learn a little about it because if she didn’t she would have gone crazy. I admit that I’m not the easiest person to live with.

I can only put myself out there hoping that they will demonstrate to me that they love me with the kind of love that refuses to let me go and will do anything it takes to help me. Am I being selfish? Maybe, but I believe that love, well, love does… I don’t know how to say it.

If you have a grasp on how to describe the kind of love I’m trying to explain, please post it in the comments section. I’d love to hear what you have to say about it.

For now, I’m going to go to sleep. Tomorrow is a new day and another day I can work to keep my mental difficulties (read: demons) at bay. I enjoy my work. Once I get going I can work for hours and become completely engrossed in it. But depression has been kicking my legs out from under me this whole week and I have to say that I’d like for it to take a hike now because I’m exhausted and frankly, would rather be manic.

So good night dear Reader. Sleep well.

Bipolar Parent

Greetings friends, how are you doing in these wee hours of Friday morning?

Me? I’ve been both better and worse. Thursday had hours I enjoyed… then it crashed and burned as only the day of a parent can do.

When my three kids were young I had impressed even my ex-mother-in-law (let’s call her Kathy) with how well behaved and just good all around people my children were. Now, we are being stalked by rough and naked emotions that have always existed (that would be me, Bipolar parent) but are now beyond my own mind and have grabbed hold of my youngest.

I thought I was a good person growing up. I felt as though I were a likable person, yet I didn’t have many friends. I was lonely much of the time and kept my own company out on our small ranch with my horse, dogs, cats, chickens, pigs, cows and the occasional ducks.

I was a shit.

Seriously. I was a short, freckled shit. Today my mother and I can look years back and point to much of my careening and completely out of control behavior and emotions and say, “That, that right there!” And recognize it as full on Bipolar Disorder presenting before I even had my drivers license.

In short – I was angry all the time and blamed everyone one else for everything. My depression and anger were crushing me and the only name I could give it was – sin. I was a practicing Christian and all those “evil” emotions were clearly not of God… but that’s a topic for another time.

My youngest and his regular doctor decided that he does not have the highly genetic Bipolar brain that I’m still learning to embrace. Anxiety. Depression. Mania. Mood swings. Irrational behavior. That’s Scott, my “I’m a psych major. I already know how to deal with anger and anxiety.”

Scott is transitioning from my second daughter, Sydney, to my second son, Scott. (Incidentally my father’s name was Scott.) Scott is undergoing hormone treatment. He wasn’t always easy to talk to about things that he felt “attacked” him. Now he’s so much more difficult.

I despair.

He turns 21 this Saturday. He’s angry and bitter and is working so hard to make people not like him that I just want to sit down and breathe like I’m having a baby all the time. He and his wife are both psychology majors who it seems aren’t studying behavior.

Odd.

Scott sounds just like I did. If transitioning changes him into the sex his mind believes him to be, then I will continue to try to learn and gain deeper understanding. However, he’s a grown man (he says) and I expect him to at least respect me.

§ On Father’s Day Scott thanked me for being both his mom and his dad growing up. §

What I will not do is accept from him the same behavior at 21 that I had at 14. He has tools around him to teach him about what’s running loose in his little grey cells. Me – religion, animals, and hypnosis.

The weight of his relentless ill-will and violent anger crushed me at dinner. It was like fighting with my dad, but I was the reasoning one (yeah, no. My dad wasn’t good at being rational when angry either.)

Top the whole bloody mess off with a leaking red cherry on it and you have a self-entitled disrespecting second son.

I’m not having it anymore.

Being a parent with Bipolar is terrifying literally every second of that child’s life for me. With Scott acting like the individual (did I mention pressured speech?) that he clearly isn’t I have no clue how to even begin to help him to stop yelling into my face that I should shut up because I’m not listening.

Huh?

Parenting the twenty-something kid today is a massive challenge for this Bipolar mom. I have been charged with the crime of trying to build good family memories. I have felt despair and anger towards Scott. These are not the memories I want to build. We’re going to work this out, but I realize that I will very possibly react like I have Bipolar Disorder while we do it.

I can do this. I can figure out my part in healing our relationship. Be loving and kind… and forgiving.

However, Scott is a grown man and if he does not have Bipolar Disorder or some other explanation for his behavior, then he’d better watch out. I corralled the three of them through their teens by myself and while not properly medicated for my illness.

Respect me as your mom.

Respect my illness.

Respect yourself and get help if we just can’t talk it out.

I really wanted to go old school, like back to when I was a kid, and wash his mouth out with some nasty bar of soap like Dial or Lava and spank him with a wooden spoon. Two if the first one breaks.

Sigh….. parenting never ends, not really. My mom is still my mom. Who else would she be?

Scott, baby? YOU! It’s time for YOU to shut up and listen.

Bipolar – I Think You Should Take Fewer Pills

I’m going to notify my counselor that I must be rid of my med provider as soon as it can be arranged. I’ve told Arthur, my counselor, that I don’t feel that Jamie (med provider) is working in my best interest. My next appointment with her she started right off by confronting me about what I’d told Arthur. I confessed thit it was true.

It got me no where.

She says that I’m on too many pills and she doesn’t want to add anymore. Apparently, this is her rational for not giving me medication that might actually have helped me.

I’ve been practically begging for something for my anxiety that only get’ s increasingly more consuming with each passing day

This whole school year has been like a nightmare.

She doesn’t want to give me more pills? Bull!! It is not her choice to decide whether what other doctors prescribe me for illnesses she knows even less about than I do.

She has repeatedly used this as an excuse not to give me something that could prevented me from my brake down. I have high cholesterol, my thyroid is out of whack, I have chronic horrible lower back pain, I have FM, RA, OA, a facial tick (probably stress related), PTSD, and have recently been diagnosed with IBS-d. It’s a crap load of stuff, but they have all been dealt with by someone more intelligent than she is.

I’ve asked each and every visit for something to help with the burning anxiety. She refuses. She gives me fewer chill pills.

Does she think I like taking a handful of pills twice a day? Moron.

I’ve finally had a breakdown. I blame her. In December I confessed I’d been having thoughts of harming myself. I’d hidden that for years, but at that point it was too much, and I confessed it.

She did nothing.

If I can’t trust my med provider to guard my mental wellbeing, than who will? There aren’t many options here.

I’ve started to shake, Twitter, and twitch again. I’m graduating today. My anxiety that mixes like a charm with my mania and depression making my constant mixed state even more confusing and painful. It’s too much to handle anymore.

I’m firing her. She truly doesn’t have my best interests in mind. I don’t need one of my medical professionals contributing to my madness. That’s just sick.

Brain Scan

brain This morning I’m going to the hospital for a brain scan. It’s for the facial tic I’ve been having forever and because I’ve been falling asleep suddenly and for no apparent reason. I did a sleep study last year and it came out normal so it isn’t sleep apnea. Between this stuff and my Bipolar, ADHD, PTSD, FM, anxiety, RA, OA, chronic pain and all that malarkey I can tell you with all honesty… I’m a bit MORE anxious than normal. I’ve been trying to get all the mental stuff undercontrol by staying on my meds, going to counseling, learning mindfullness and trying to learn to meditate, but it’s been slow going. Oh, and I’m too heavy for my knees. One has been replaced twice and the other one collapses without warning. I’m pretty sure that’s because of the weight and lack of muscle. I’ve been walking my dog Bailey all summer for 1-2 miles all summer 3-4 times a week and I’ve gained weight. Maybe it’s muscle, maybe not, but it’s more weight.

So I’m having my brain scanned. They have me coming in sleep deprived. That’s fun.

Well, I guess I should get ready to go. Wish me luck. May the force be with us all. ;0)

Bipolar – Secrets

secretsIf I were to describe depression using a color, I would say it is black. Red would fit nicely with the mania and perhaps green or yellow might be anxiety. It would be nice if things were distinct like that so that I could easily identify how I’m doing. It might even be nice for those who are part of my support system to see those colors so they can know how I’m doing. It would be easier than trying to explain how I am when I can barely breathe.

Speaking of people in my support system, sometimes there are thoughts or moods or things I’ve done or thought about doing that I am afraid to speak of, things I think are better left never spoken of.

I try not to think about those things or those thoughts. They bring with them pain and even humiliation.

I would not want my family to know parts of the person I was during some of my manic times. They are not aware of some of the more horrific behaviors that I experienced.

As much as I don’t want to revisit these horrible moments in my past I can’t help but wonder if they now contribute to the over state of anxiety that lives with me each moment of my day.

The tick I developed as a result of medication(s) I was taking seems nearly gone with one major exception: whenever I am in anyway anxious it comes back and I can hardly talk. It seems to those I’m talking to to be a violent case of stuttering, only I know it isn’t. I feel embarrassed when it overwhelms me. No matter how much I try to relax when it starts, the only way I can stop it is to remove myself from the situation or to stop talking. Imagine yourself working with your physical therapist and trying to explain how your therapy at home has been going and suddenly not being able to talk.

Is it possible that dealing with some of the long-buried moments of horror might enable me to experience less overall anxiety? In my current state, I must say “no” because to deal with those secret things terrifies me far too much. I hope that I can use the tools I’m learning to deal with these hidden anxieties. I hope I can use them by myself to find healing from my past. If I can’t do it myself, I hope one day to be able to deal with them working with someone who can help me walk through them.

Today, that’s what I’m choosing to believe: I can deal with them myself. Just because I’ve got a mental illness or three doesn’t mean I must air all my dirty laundry. Some of it I must learn to deal with on my own.

Some secrets… I choose to remain as secrets.