Bipolar – Pain – Mental Illness

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Whenever I want to try to help someone understand what I call my “mental pain,” I search other kinds of pain that I’ve experienced that others might identify with. Then I explain how that translates to my mental pain. Of course, it’s different for each of us, and sometimes, it’s even different for me from time to time.

This morning I’m experiencing severe pain in my eyes. I don’t normally feel pain and then think, “Oh, I should use this to explain my mental pain!” But right now, the pain is clawing from the front of my eyeballs through my temples. It’s at an 8 on the pain scale.

I woke up Friday morning and couldn’t see. I closed my eyes, I thought that’s what I was doing, and the pain was, well, blinding. I tried to open them and there was no change. Were they open? Or closed?

I’d started using Restasis almost two months ago and was enjoying moister eyes. I hadn’t realized they had become so uncomfortable. In my panic, I thought that my might eyelids could be stuck to my eyeballs. Was I blind!?

I couldn’t be blind! I couldn’t stand it.

A small flash of reason reached through and I reached for my eyedrops. I’m supposed to use them every few hours throughout the day. I couldn’t find them. I couldn’t see them, and my hand couldn’t find them. Eventually, though I did reach them and squeezed the vial empty into my eyes. It was working! I could see now so I got another vial and did it again. It was getting better. I could see and the pain was lessening.

I can only describe the pain like having sandpaper on the inside of my eyelids. They scraped up and down, again and again. I called my eye doctor six minutes after they opened and was soon being seen. My dry eyes had gone from a .7 (like the California deserts) to a .2 in dryness (like the Atacama Desert, located in Chile, is the driest sandy desert in the world) in dryness.

It occurs to me, as I sit on my couch right now, and wait for the pain in my eyes to subside (this is also new), that this is very much like some of the mental pain I sometimes feel.

How can I explain to someone without a mental illness what the infusion of depression, anxiety, confusion, and panic cause as a sort of mental pain? It hurts. My heavens it hurts so hard. Sometimes I just want it all to stop. It has to stop.

Having this pain in my eyes has made me think about pain and making it stop. Would I be willing to give up my eyes in order to stop this pain if it was to be permanent and get worse and worse? My first response is “no.” But then I realize what I’ve just said. This feeling, this feeling of wanting it to stop no matter what, it’s an illusion that my brain creates when my emotions are desperate for relief.

An illusion? Not an illusion, but subjective. We feel our pain in diverse ways and respond differently too. Can you imagine the pain I’m feeling in my eyes? My pride says you cannot. My suffering is worse than what you can understand. Is this true? Of course it is. Only I understand my personal pain.

Then why should I bother trying to explain what my mental pain is like? Because even if I can’t help someone to fully realize what I’m going through, at the very least it’s a healthy thing for me to do… reach out. And, the person who’s willing to listen is being given the chance to be compassionate. They may not understand what I’m feeling, but maybe they will grow in their ability to be compassionate in the future to others… to me.

My eyes have course sandpaper lining the inside of my eyelids. Every blink feels as though it is ripping more and more of my eye away. I want it to stop.

Do you feel mental and emotional pain? What about physical pain that makes you feel suffering mentally? Do you keep your pain to yourself? Or do you reach out and try to connect with someone who may learn to be compassionate?

Bipolar – The Truth About Emotions

I have Mixed-State Bipolar Type 1. Last December I finally admitted I was having random urges to seriously hurt myself. Over the years I’ve felt that way a lot. I did finally tell my counselor about it. Now, of course, it is in my records. But I was that scared.

My stress and anxieties have been getting hotter and higher over the last few days. Yesterday my son Kyle had his roommate help him move the rest of his sister (my daughter Jessica) move the rest of her things into my tiny house. I think we’ll be fine together.

The truth about Bipolar Type 1 emotions is their severity and extreme mania. I’m not going to list the details for you right now. I’m just so MAD that a second kid, 22 years, has told me he’s got Bipolar 2 and he has to take drugs for it every day or it would be bad for him and that (and I’m not lying about this part) he was incredibly brilliant and could think of things that no one else could. His Bipolar was a gift and he was embracing it because it does so much for making him creative. He would die if he didn’t take his pills. I swear the boy was telling me he has bipolar and he might have been high.

I, being offended as I was, asked him some more about it. He said that if he didn’t take his two pills a day something bad would happen because you know he gets manic, really revved up, and psychotic too.

With my teeth clenched I instructed him that that didn’t sound like Bipolar Type 1. Oh, did I mention he changed to that after I challenged him on some of his symptoms? Yeah, apparently you can change what type you have depending on who you’re trying to impress.

I’m not having it anymore.

The day before that another 22 something told me she wouldn’t have kids because she wouldn’t want anyone else to come into this world because of her and “have this shit.”  – She knows I have three kids.

Then yesterday those damn little micro “I wanna hurt myself” crappy thoughts started up. I was angry.

Tonight I’m angry again. I’ve been angry all week it seems. I’m angry because of a seemingly small thing. That’s the way it is with Bipolar people… we experience overly intense emotions. Have you ever noticed that?

Well, when the boys moved Jessica’s stuff in someone moved the giant flashlight I take the dog out to do her business at night with. I couldn’t find it. I was immediate, pardon me, pissed. My dog thinks small flashlights are lasers and need to be chased. So, I had to do a small one. Then I found a poo from earlier. Jess marks them for me in various interesting ways. I was picking that up with my whimmpey flashlight, hiding it from Bailey. And then….. I missed where she just went.

I am always the one who steps in it. I have no idea where it is.

Silly reason to be angry? Normally. When I’m acting and feeling what I consider is normal for myself. Tonight. I’m just angry. I did think of hurting myself. Then it was gone, suddenly hiding back into the neurons of my mind.

Exhausting. Extreme emotions are so exhausting.

So that’s the truth, according to Robin, about Bipolar Emotions. They exist. They are mysterious. They don’t always act in ways one would want them to.

Yeah. That’s the troublesome side of the coin. But you know what? There is another side. Maybe another time.

Angry, Raging, Bipolar

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I scared the ever living poo out of my fancy beta fish a minute ago. I don’t think I’ve ever seen Victor move so fast! He hid on the bottom and refused to take his dinner from me. All I did was walk up to his tank when he didn’t see me coming.

Fish. I feel rather like a fish.

You’d think we’re fish as much as we’re listened to when time after time we beg for different medication. Something has been going on with me mentally for around 3 or 4 months. I just thought it was growing anxiety because I have one more quarter to go and then I’m finished with school. I’ll need a job. I’ve never been able to hold a job for over a year. Even my own brother had to fire me because of my behavior, and my anger.

I take that back, I have worked for longer. When I worked for myself, I was able to manage to work with the management.

This feeling that’s been growing… I told my family in December that I’d had thoughts of hurting myself, and I honestly was. I’d had those feelings on and off for most of my life. Telling them seemed to help. Maybe it did. I felt that way tonight for about 10 minutes.

Then despair, anxiety, rage. Do these feelings take your face and squeeze it till it aches with the pressure?

Anxiety. It has been growing in my mind like a pustule about to burst black tar all over my mind.

I came to understand yesterday, through thinking over the end of the quarter problems and verbally fighting very loudly with another student – repeatedly, a colonoscopy I had to have two days in a row, a painfully torn fascia in my driving foot in December that is still painful (I’m so sick of this boot thing. It causes a painful lump on my shin bone.), intestinal troubles since Christmas, and runaway away anxiety I continuously tell my med provider about (I even take my counselor with me to make sure she’s listening. Oh yeah, that’s working great.)… I get it. I’m in a rage.

I used to live every day, every moment consumed with rage. I wasn’t a good kid. I wasn’t fun for my family to be around. My mother has finally agreed with me that I was, a terrible child. I was full of hateful and blinding – rage.

I have those feelings again. The ones I fought so ineffectively to be rid of. That consuming anger. I feel like I’m about to blow up on someone who probably did nothing to me. It’s just this thing my brain does sometimes day after day, month after month til years are wasted in fury and hate or like now when I’ve been crying out in fear and pain only to be ignored by those I dutifully trust my life to.

I’m so angry. My mind burns and I want to break things and hit stupid people. But I don’t.

I am often moments from saying things that could get me kicked out of school or arrested. But I don’t.

I’m so tired of fighting all the time. I just want to have a life free of pain. No more arthritis or Fibromyalgia. No more being too big to be healthy. No more chronic back pain. This is no life for me. This isn’t what I signed up for. I’m SO ANGRY! It’s like emotional cancer that manifests in feelings that most people can say they understand, but they don’t. Not really. If you have Bipolar Disorder Type 1 and you have had violent, angry, manic episodes you probably understand.  If not, please don’t give up on me.

Question is: what’s gonna give?

Addendum: Read on, please. This changed everything.

This morning I was listening to a TED Talk called, “the role of human emotions in science and research. Great title, right? Sounds like just what I need. At the end of her story, Ilona Stengel said this: I do not suggest that we should use feelings instead of facts. But I say we should not be afraid of using our feelings to implement and catalyze fact-based science and innovation. Emotions and logic do not oppose each other. They compliment each other. And they reinforce each other. The feeling of being dedicated to something meaningful, of belonging to something bigger, and of being empowered is crucial for creativity and innovation. Whatever you’re working on, make sure that it matters, and take it to your heart as much as you like.” [I’m pretty sure this isn’t a word for exact word match.]

Suddenly I understood. All my life I’ve believed I’ve had a purpose. I thought it was within the church, but I was always told, “No, it’s not time now Robin.” And my heart would be broken and my life stripped of meaning.

I believe without meaning, we relinquish our lives to the feelings I have been feeling. For this moment, I remember the meaning of my life. It will not be easy to follow. It incurs great emotional risk (something people with Bipolar Disorder should try to avoid). But if I can remember it. If I can remember it every moment of every day, I won’t have to rely as much upon others for the stability of my mind. My mind will be fighting my emotions with logic. I’ve done it before and I’ve succeeded. I must try again. My children have left my home. They’re all grown up. That role of the parent is gone. I feel like I have no purpose.

But I do. I do. I’d just been swallowed alive by the vomit of extreme emotions that allowed rage to consume me. For this moment. For this morning. I say no.

She said: “Whatever you’re working on, make sure that it matters, and take it to your heart as much as you like.” I am taking up my mission again. I must. If I don’t, then what’s the point? 

Do you understand?

What’s your mission? Tell me.

Robin

 

 

 

Bipolar – Danger Signs

solar-flare-1Now that I’m taking 120mg of Latuda again I can consider the signs I was having that I was going into a crisis. I believe it’s important for me, for everyone, to know what happens before we reach a full-blown disaster so we can take precautions and get help early. That said, I recognize that it is often difficult if not impossible to tell when we’re slipping. It’s like standing on a beach when the tide is out. You’re talking to a friend or looking at the beautiful water or a sunset. You’re not paying any attention to your feet, which is unfortunate, because your feet have been slowly sinking into the sand. Now, when you try to move, your feet stick and you fall on your face because you didn’t realize what had been happening while you weren’t paying attention.

The biggest sign that I’m crashing is that I lose my temper violently and in an instant. Most of my life I have been consumed with anger and ill temper. It has kept me from getting to know my family. My father, who is gone now, was as bad tempered and mean with me as I was with him. We reacted to each other like lighter fluid on a bonfire. I believe that he also suffered from Bipolar Disorder.

In addition to a catastrophically hellish temper I was angry all the time. I don’t mean mad. I mean angry like I wanted to hurt someone. My adrenaline was (and is) on all the time. To this day my muscles are hard as rock, cocked as if to lunge into flight or fight. Even after a massage my musculature remains as solid as steel. I never relax.

Over the years I’ve taken medications that cause my face, my jaw in particular, to violently jerk and I can’t talk. I look like I’ve got a massive tick in my face and I sound like I’m hiccupping. Now, when I’m stressed, the tick comes back. As a matter of fact, I’ve been having it happen daily now even during Christmas vacation when I don’t have the pressures of school work. It really frustrates me. It’s so remarkable that people stop talking and stare at my face. It stops conversation dead.

So this time, when my temper soared uncontrollably and I saw my family react to my words as though they’d been slapped, I realized I was in trouble. I thought I was just feeling my temper returning. I felt like I was keeping it under control. I didn’t realize others noticed it until we were celebrating Christmas Day at my brother’s house and I was talking to my daughter and her fiancée when suddenly Sydney stopped short and looked at me as though I’d just stabbed her. I shut my mouth fast. I knew I was in trouble. I had to stop myself from talking the rest of the day unless I was paying attention to what I was saying and how I was saying it.

My med provider and I had a backup plan in place incase reducing my Latuda to 80mg didn’t work. I was to return to the 120mg dosage immediately. So that’s what I did. I couldn’t wait until I was able to get back in to see her in three more weeks. I’m feeling much less volatile now.

I know it is rarely as easy a fix as returning to a medication that I already know works for me. It’s never that easy. This time was an exception for which I am grateful.

We, you and I, impact those around us. Our behavior doesn’t happen in a vacuum. We have a responsibility to control our behavior for our own health and for our family and friends. It’s funny that I say we need to control ourselves because that’s exactly what I’ve never been able to do. Not till I got well medicated.

The take away – be vigilant for signs of crashing. Then take action swiftly.

Bipolar – Remembering Our Past

I need you to understand that I in no way discount what anyone has gone through. Things may be exactly as you recall them. This post is meant merely to ask the reader to consider things.

One of the great troubles with Bipolar Disorder is that we tend to ruminate what we view as the horrors of our past. We think we remember all the times we have been depressed and felt like we wanted to die. We think we remember the charge the mania gave us and may long for the positive influence we think we remember happening. We may be paralyzed by thoughts of our past in which we hurt others and maybe tried to hurt ourselves. If any of this sounds like you, listen closely to this:

There are three things that are known about memory that I want you to know.

  1. People can recall events that never happened.
  2. All memories are inaccurate to some degree.
  3. Identifying false memories may be next to impossible
    (Psychology Today, June 2016, pg. 21)

It may not be necessary to crucify yourself on the altar of regret. It is possible that you do not remember the past as it actually happened. I have found these things to be true in my own life. I think I remember being mean to my kids and speaking unkindly to them as I wallowed in my anger and depression on a daily basis. Anger was my friend and I was angry every day and I felt I took it out on my kids.

But you know what? My kids and my family don’t remember it that way. My kids, who are now 18, 21 and 24, remember me as working hard to be a good mom and always loving them. They don’t remember me being abusive. It’s three against one. Maybe I’m wrong. Maybe I was a good mom. They all seem to have turned out to be good people. I need to believe them. That guilt crushes me at times. I’m choosing to believe that I wasn’t as bad as I recall. I was a good person.

Bipolar sufferers feel emotions more intensely than other people. We remember incidents where our world has crashed down around us because that’s what we remember feeling at the time and so that’s what we feel now as we think about the past.

We may think we remember the situation even being worse than it was. Another person may remember the same situation as not being quite as dire as we do. In fact, we may be remembering an incident as more intense and devastating than it was. We may even be remembering something that happened in our head, that we think happened, that never did happen. Can you imagine that? Maybe you are a better person than you think you are. These things are true for all people, but I’m talking about us and our magnificent emotions.

What I want you to understand is that you and I, we should cut ourselves some slack. Our memories are never perfect and unless you have proof that what you remember happened or felt actually did occur, relax a little. Maybe we’re not as horrible as we think we are.

I have “memories” of being a horrible mom. I “remember” saying things and not doing things that amount to neglect or even abuse as a parent. I’ve asked my kids and my family about some of the bad things that I “remember” doing and saying. Generally, they all agree I wasn’t the horrible parent I think I was.

The kids are glad they grew up with me and not their father. That means a lot to me. He’s not a bad man, but they say they would have hated me if I’d let their father have them.

Even though I truly was in a deep depression and on a manic high most of their early lives they love me and want me in their lives. I run in a mixed state so you never know how I’ll act. I recall letting especially my youngest get away with more things because I was afraid I was being too sever with her. My older two say I did let her get away with too much. At least I remember that correctly.

On the other hand, maybe you are remembering certain things correctly and you were horrible. In that case I hope we can learn from those situations and find ways to keep them from happening again.

My message: Try to cut yourself some slack. Consider the three things we know about memory and apply them to yourself. You and I are probably not at horrible as we think we are.

I hope.