Bipolar – I Think You Should Take Fewer Pills

I’m going to notify my counselor that I must be rid of my med provider as soon as it can be arranged. I’ve told Arthur, my counselor, that I don’t feel that Jamie (med provider) is working in my best interest. My next appointment with her she started right off by confronting me about what I’d told Arthur. I confessed thit it was true.

It got me no where.

She says that I’m on too many pills and she doesn’t want to add anymore. Apparently, this is her rational for not giving me medication that might actually have helped me.

I’ve been practically begging for something for my anxiety that only get’ s increasingly more consuming with each passing day

This whole school year has been like a nightmare.

She doesn’t want to give me more pills? Bull!! It is not her choice to decide whether what other doctors prescribe me for illnesses she knows even less about than I do.

She has repeatedly used this as an excuse not to give me something that could prevented me from my brake down. I have high cholesterol, my thyroid is out of whack, I have chronic horrible lower back pain, I have FM, RA, OA, a facial tick (probably stress related), PTSD, and have recently been diagnosed with IBS-d. It’s a crap load of stuff, but they have all been dealt with by someone more intelligent than she is.

I’ve asked each and every visit for something to help with the burning anxiety. She refuses. She gives me fewer chill pills.

Does she think I like taking a handful of pills twice a day? Moron.

I’ve finally had a breakdown. I blame her. In December I confessed I’d been having thoughts of harming myself. I’d hidden that for years, but at that point it was too much, and I confessed it.

She did nothing.

If I can’t trust my med provider to guard my mental wellbeing, than who will? There aren’t many options here.

I’ve started to shake, Twitter, and twitch again. I’m graduating today. My anxiety that mixes like a charm with my mania and depression making my constant mixed state even more confusing and painful. It’s too much to handle anymore.

I’m firing her. She truly doesn’t have my best interests in mind. I don’t need one of my medical professionals contributing to my madness. That’s just sick.

Bipolar: It Is Very Difficult to Know

A lot of the time I hesitate to post because I don’t know what you, my reader, expects to read. I struggle with this every day. I could tell you about my day, but that’s so boring – dull! I could stick to only write about myself and what I’ve learned about Bipolar, but I really feel strongly that this kind of important thing deserves a website of its own so that people in pain or who are looking for answers can go to that site and find answers and acceptance right away. So, I’m developing a website to do just that.

I have Bipolar Disorder Type 1 with mixed states. I also entertain much of the rest of the alphabet. I could drone on and on and try to… well, I think you know where that was going.

Basically I’m a normal 55 year single mom of three who is interesting and has a good sense of humor. I have some compelling stuff following me around that makes me complicated, but who doesn’t? Surely everyone has experienced the strange things accompanying Bipolar, anxiety, depression, ADHD, PTSD, FM, OA, etc.

I have a Japanese Fighting fish like all your neighbors do and speaking of neighbors, also just like you, I politely file noise complaints regarding one nice household whenever my TV starts to loudly rattle. Seriously.

I’m so normal I could bore you silly. Although… did I mention my eldest daughter will be moving in with me in a few months? (Honestly, it’s for the best. I need the support and we can both use help with housing expenses.)

In fact things are sooo boring that I’m going to need to graduate from college with another bachelors degree and I’m going to have two sons and a daughter instead of what has been the standard at my house with two daughters and a son.

See? Boring.

I am first and foremost a woman who deals with an incurable illness and will continue to do so until I die. Well, and perhaps afterward too. I mean, who really knows?

If you don’t mind too much, I’m going to write about all of these things. I might even add in the bits where one of my family members believes that God has them on this earth for only one reason and that is to save his children and to draw them back to Him because they are lost.

Maybe I’ll recount some of my experiences growing upon a ranch as a teen who presented with Bipolar at a very young age and how well that went over with my undiagnosed Bipolar father. Maybe I’ll include fun times at the church I was attending that was into casting out demons. Yeah. Fun times.

Have I mentioned I went to Bible College searching for God? I wanted so desperately for Him to take away the pain I felt that was crushing me from within every day. No? Bipolar, prayer, and demonic possession… seems like there’s a story in there, somewhere.

What’s on your mind? Should I throw caution to the wind and open up a bit more? It all, and I do mean all, ties directly back into this sickness, this life long illness I struggle with. It is all infused with, you know it, Bipolar.

I don’t believe it is a disorder. I believe it’s a disease, an illness and should be treated with the respect it deserves… that we deserve.

Talk to me my Readers. Tell me what you think. Do you have questions? I can’t guarantee I’ll answer, but I’ll read all of them. 🤔

Be well.

Robin

Bipolar – Handling an Insane Schedule and Still Having Fun

I tend to forget a very important fact when I’m busy and especially when I’m going to be driving… I have chronic pain in my back and I tend to forget to take my Oxycodone. Or, if I’m going to be driving, I don’t take it. Late this afternoon I remembered I was in pain (I also take Lyrica for FM and have OA so go figure with all the pain right?), I remembered and I took my pain killer. Quickly I was able to do house work and things I had stopped doing again, like moving around like I’m not a super old and very cranky woman.

I’m not high. Just experiencing less pain. It’s makes such a difference with the Lyrica and Oxy and the anti-inflammatory they have me on for my OA.

Back to the really important stuff: The Magical How to Be Too Busy and Still Have Fun.

Since my last post things have gotten more complicated and because I neglected to take some of my meds as prescribed I started being angry for no good reason and wanting to lash out. Took my meds…. I’m ok now. I can’t stress enough that we have to take our meds. You don’t think you need them? Especially during this next 30 days or so then you are nuts and a dope. Take your meds.

Starting last
Saturday  – Afternoon at my parents just to visit (my dad has stage four cancer and they “say” he has 6 – 12 months left) My brother and I are trying to spend time with them as much as possible.

Sunday (today) – Early family dinner at my parents with Tony and Mat too (my brother and his partner)

Monday – Take Kyle to the bus at 7:50 (the transit bus line stops exactly 8 minutes before our house)
– Take Syd to friend’s house so friend can get Syd to work on time (Kyle and I will be heading to Seattle)
– Pick up kyle at UWT at 11:00
– Arrive at UW medical center to get my new dentures (only Kyle and Syd know I’m getting them now)
– Drive through Seattle/Tacoma traffic through rush hour home. Usually takes 2 to 2.5 hours. Crazy drive. Seatac is almost that far.
– Pick up Sydney at end of bus route at 6:00 or find her a ride home

Tuesday – Sydney Braces for teeth…. orthodontist appt. at 7:50 a.m.
– 3:00 Sydney works till 5
– Kyle school then works till 5
– My brother’s birthday – at Bob’s Burgers (Where everyone will see my new teeth and that I cannot work them very well yet. So funny!)

Wednesday – Pick up “Carol”, my friend for lunch at Seatac during her layover. Actually, I’m picking up Jessica (my other daughter) from the airport and sneaking her home to surprise her sibs. 1:15 p.m.
– 3:00 Sydney works till 5

Thursday – Thanksgiving where I will again try to eat and talk with my new face. I anticipate talking funny for a bit and eating… carefully. lol
– Dinner at my brother and Mat’s at 4:30. It will be a banquet for kings and queens. They always throw amazing parties. The food is amazing. But then, they have lots of money.

Sat – Sun Syd is supposed to work on a project with a girl from school…. only she doesn’t know her sister will be leaving Monday. OMG!

I think those are the highlights. All the while I will be thinking of my dad and how he’s doing. And that the stress of all these secrets is making my brain burn like a torch lighting the way to a wondrous gift: family… and taking my meds as prescribed every day. Even the stupid ones that want to be taken 3 times a day. Uh. Don’t you hate those? Makes me bonkers.

My friend Carol and Jessica are the only ones that know what’s going on. No, Jessica doesn’t know I’m coming to the airport with my face in (dentures, it really changes your face).

Now more how to survive Thanksgiving tips that I use myself:
Play games – I don’t care if they’re card games with others or computer games by yourself. Play something!
Breath – from deep down in the belly when you feel the stress monster coming for you.
Ask for a hug – you don’t even need to say why. Just ask for one… or give one, maybe more than one!
Eat properly, and drink lots of water. No booze. NO BOOZE. Seriously. Don’t drink it.
Get enough sleep.
Smile. Smile for others if you can’t for yourself. Don’t bring your world down to your mood if you’re cranky.
Meditate, pray, be still… recharge yourself. Go to your happy place.
Oh, and do not over eat.

And then the next day will come and what you did the day before will still be with you so make wise choices.

Lastly, if you have a service dog avail them of their services. It’s what you have them for! Mine is sleeping soundly in her place at the foot and her side of my bed. Even with her cone on she knows when I need her. (She had her girl bits removed and wants to lick it too much) So that damn cone  is another stressor for us all. It makes it very difficult to train her with it on.

I’ve taken on a lot this week. I’ve decided I can make it work if I take my time and keep things separated. I believe I can do this. I even have a separate schedule in my desk in my room for Jessica coming. If I mess that up the game will be blown. Normally, I wouldn’t do this much, but Jess and I decided she should come home for a quick visit now and a longer one in December in case something happens with my dad; her grandpa.

She just became a Senior Airman in the USAF. I’m so proud of her! Her new stripes and all that are so cool. I can’t wait to see the picture of her in her blues besides her selfie. lol

And now the test. Can I follow my own plans to succeed? Have I set myself up for a huge fall? I don’t think so. I’m having to focus on others;  always a good thing. Focus. That’s important. I’ve got to stay focused and balanced and ask for help when I need it. Sometimes that’s hard to do.

Let me know how you fair this week my friend. I’ll tell you how I do when I’m through next Monday.

May you escape the nibble of a turkey on the end of your nose. May you eat said turkey instead. May you stuff your bird with stuffing . And may you spend time with loved ones, even if it’s only by phone or Hangout or… thinking of them. A little bit of love goes a long way. May you succeed in all your goals

Ciao,

Robin

Bipolar – The blow. . .

There isn’t any good way for me to tell this to you. I can’t think of a single way to soften the blow. . .

The blow. That’s funny. We’ve counted 3 times. Today I found another one. There are 21 medical marijuana shops traveling from my house, down a major arterial into the city,  and ending downtown.

Twenty-one gigantic green pluses (+) all along the road. These mark the blessed spots where the water grows greener. The pot shops.

There are more pot shops in this 5 mile drive than there are coffee shops. I live near Seattle. Go figure.

My Primary Care Provider (read… doctor) has tried to convince me to use the green lung goo for several years. I suppose he feels that Bp 1, OA, FM, anxiety, and ADHD are a bit much to handle. Hmm… and chronic pain from bulging disks and arthritis (specifically in my lower back) and that it might relieve my pain (read “issues”, loving referred to as my “alphabet soup”).

Nah, I don’t think so. I visited an old work friend who has been on the stuff for years (beginning before it was legal here) and I tell you after I visited her and her husband at their multi-generational home… I think not.

That’s a NO.

I’m not going to go into my specific reasons about this issue because I’m only writing to tell you this one immutable fact:

THERE ARE 21 POT shops BETWEEN my HOUSE and DOWNTOWN.

5 miles.

21 pot shops.

Forget my alphabet soup my friend.

That’s a bit too much.

21.

 

{If you disparage of my use of the term “pot shop”, you are thinking this thing through way too hard.}

Bipolar – PENS & Oxycodone

I love pens. I really, really want to get one of those very expensive jobbies. I saw some in a gift boutique downtown Wednesday afternoon. They were 2013 models and at a bargain 50% off the normal $450 and $300. Oiy! Maybe not today. I’d love to get one for myself and one for my eldest daughter. We both love to write.

Writing can be a passionate thing. It is with me. Always with me I’m investing something of myself when I write whether it’s something blatantly obviously personal or if it’s something going on in my head that I want to talk about.

Right now I want to say something that I think is very important so sit up and read carefully. I’m putting this in terms of applying to myself so I know this from personal experience.

I have chronic pain. I have something wrong with my L4 and L5 disks, degenerative disks all the length of my spine, osteoarthritis, and fibromyalgia. I have a twice replaced right knee (replaced twice in two years, the first time it didn’t work) known as a TKR. I am 51 years old and I must say I do not appreciate needing to go to a pain management specialist and taking narcotics… every day.

I’ve been having what i can only label as nightmares now that I’m taking closer to the prescribed amount each day. (I also take Tramadol but that gives me migraines after a few days use). I don’t normally have nightmares. I was having trouble discerning reality fro dream when I would wake up in the morning.

Tonight I woke after another “nightmare” and remember something quite startling. When I was “incarcerated” in a facility to recover for my TKR the second time because my parents were moving and my kids wouldn’t be around to care for me giving me meds and such. It was a horrible experience. Besides generally feeling like I was incarcerated I was on Oxycodone at my maximum dosage every single time I could take it. The staff were only too happy to let me have it.

Unfortunately I had several nights in which I had terrifying and convincing hallucinations. It has taken me a long time to admit they didn’t really happen. Add to that, that I don’t remember my eldest daughter calling me daily from the MacDill Air Force base where she works as an air traffic controler. We live across the country from each other and that eats at my heart. We’ve always been close and the distance is difficult. But I don’t remember her calls and I know that bothers her. She took care of me during my first recovery and had to go through my even having two blood clots below my surgical knee. That was also a nightmare.

Last night and tonight I’ve been about at the level of Oxycodone that I was at in the rehabilitation center (read: nursing home) and I’ve started having hallucinations, not nightmares.

I suspect my use of pain medications is on the way down. We’ve tried a number of things and nothing seems to help.

I have an idea that I am sure will help. Ever hear of neuroplasticity? I’m sure you’ve heard of Luminosity, that’ s neuroplasticity. For me, this will mean using mindfulness to “remap” my brain and in doing so enable my actual brain structure to interpret pain differently. It won’t seem painful to me.  I guess I could put it like that without going into detail right now. I will soon though.

Neuroplasticity is becoming my key to dealing with my much of my troubles. Think of it, how awesome it will be to control my chronic pain, Bipolar, FM and OA… at least to a degree. Many advanced meditation practitioners are known to change their brains in a manner like the mindfulness I’ve mentioned.

Mindfulness. Neuroplasticity. How great to have the possibility of using these disciplines to help myself!

I’m not likely to be drug free… but I’ll get as far as I can.

I’ll talk about Mindfulness and Neuroplasticity in depth soon. They are very important disciplines that science backs up. I mean they are both proven scientifically to work in the areas I need. They impact many other things too.  After all, they are not confined to “topics” the brain considers. They do however, change the brain in ways we cannot comprehend considering the vast expanse, the last frontier as they say. At night I’ve taken to listening to Pandora. I searched and found a Mindfulness station to listen through the night. It’s playing right now. I finally decided to subscribe. Know why? The commercials were scaring me as I slept. Ew.

Watch your consumption of drugs like Oxycodone. You could have side affects you would think would anticipate.

Be cautious. Be ever vigilant.

Catch you later.I’m trying to stay awake for a while. Those hallucinations were getting very weird. Scary.

Robin