When Christmas is Gone

Just when I thought no one understood, I saw my dog and kitten sleeping like this.

The kitten had her girl bits taken out and it’s really been hard on her. Bailey, true to her nature, is taking care of Savvy just like she does me.

Instead of asking “where are my people? Who’s going to rescue me?” I’m going to reach out to others more, and be one of their people.

Opioid Dependence and Mental Illness

Pile of pills

I’m not an addict. I’m not! I’m mentally ill. I have Bipolar Disorder. I also suffer from chronic pain in my lower back.

My primary care doctor (PC… PCD? Uhh… let’s go with MD) had been prescribing me oxycodone for the server and persistent (chronic) pain that I’ve had for years. After being active and doing something super strenuous like gardening for 15 minutes I think I’m dying. I’m exaggerating of course, but when I work as hard as Atlas does while holding up the world my eyes leak, I whimper and sit down. Sometimes I end up laying on the floor. The floor is such a very bad idea. If I straighten my legs my whimpering becomes desperate and I realize I’m crying. If I forget myself and straighten my legs I’m done. I can’t move. The pain paralyzes me.

I’m NOT an addict.

When I can think again, I try to find my phone. If I can’t find it right away I feel the panic rising and it triggers thoughts and emotions I thought I’d had under control.

This last time I thought I was managing my mania and depression (mixed state, rapid cycling) pretty well. I haven’t bought piles and piles of books on ducks or Oprah or how to be an astronaut. Honestly, I really haven’t. But please, don’t ask me what I’m thinking about. Also, I’ve been able to get out of bed AND wake-up in the morning and even go for walks. My depression skips through the dandelions with the mania comingling into a mixed state, which is always confusing.

I’m not an addict.

After many months of giving me a legal way to get my the Oxycodone I take for pain legally, and for free. The label on the bottle says I’m to take the little unassuming pills three times a day. They are 20 mg. Currently, I’ve convinced the assistant fellow at the pain clinic to reduce my Oxycodone to 20 mg twice a day.

I’m not an addict.

I’m mentally ill. I have Bipolar Disorder, ADHD, chronic pain, and other stuff.

I was referred to a pain chronic clinic… ah… chronic pain clinic, where my Oxycodone prescription was reissued. A five-minute verbal probe, that’s what it took for the doctor to determine whether or not I needed the narcotic. We didn’t talk about Bipolar Disorder or any potential interactions the Oxycodone might have with drugs that are meant to manage my wild emotions or tame my fantastic panic attacks. I’m not certain she has any record of my current medications. She asked questions, and I quickly tailored my answers to fit what I thought she was waiting to hear. She made a few notes on a paper as small as her palm. I wondered if she was actually making notes that she could refer to later. She thought for a few seconds and then wrote the prescription. I sighed in relief.

I’m not an addict.

A while later, like over a year or maybe two, I’m still taking the narcotic. The clinic has new owners and staff. They no longer asked me questions. Sometimes they required a urine test. Then, they stopped asking me anything at all. We spent my appointment chatting. I started asking if we could please try to figure out what was causing the pain and try to deal with it by correcting the problem. I wanted the pain to stop.

They didn’t listen. They wrote the prescription without hesitation.

I’m telling you, I’m not an addict.

My mental health drug dispenser began paying attention after I updated her about my drugs and included Oxycodone in the list. She stopped talking about whether or not my meds were working to stabilize my moods and started talking about “Black box” warnings.

She had my attention. I started to panic.

At the time I had over five medical people prescribing medications. They didn’t know what the other office prescribed me. They relied on me to tell them the truth. I didn’t have to tell anyone I was taking Oxycodone. That got me thinking.

I’m not an addict.

Later…

I’m still asking the medical folks to figure out the cause of my chronic lower back pain. I’m still not getting results. I’m getting way too much Oxycodone every bloody month.

Because I can, I’ve been researching my of collages of illnesses, disorders, and psychological malfunctions.

Ah ha! Black box warning. Do NOT take anti-anxiety medication (benzine’s) – death may result.

Oxycodone 20 mg

I recently saw Dr. T, my very superior knee surgeon. He saw the condition of my spine when he was looking at the x-rays of my hips. He was making certain that my persistent knee pain, post second replacement, wasn’t being caused by anything running amock in my hips. He was eliminating any possible cause of my knee pain before he even considering using surgery to further correct the inept effort Dr. B made the initial knee replacement. Dr. B successfully replaced my knee, but that’s where the project ended.

It sucked. My leg from the knee down, well, it kind of turned the wrong way.

Dr. T corrected the first replacement. He tried to minimize the damage his surgery could do while trying not to blow up my entire joint… okay, the joint that was already gone.

Dr. T showed me the x-rays he’d just had taken and explained where and why he left Dr. B’s “efforts,” while replacing the replacement. A month ago we tried a shot to relieve the pain and keep from having to have surgery again.

Nope. I’ve had no relief from the pain. In fact, my brain was overjoyed and thought that my knee was doing awesome. Holy cow! I should NOT have knelt down like that! Looks like surgery is probably what our next conversation will be about. I’ll need to be on pain medication again…. I intend to be off Oxycodine ASAP. I would really like to have some kind of painkiller to take after surgery – assuming I have it. Always be prepared! Sigh…

I’m not an addict.

After my constant complaining about my back pain that happens every time, I do regular human type activities involving the lower back. I’ve finally had x-rays of my back taken. Holy heck. Next stop is at a spine doctor.

The online personal information provided by my medical organization includes this: Opioid Dependence.

My chronic pain clinic instructs me to continue taking the Oxycodone. I haven’t been able to identify any specific relief from the pain in a long time. I have never felt any “fun” results from taking it. It has never made me feel sleepy.

I have found that taking Oxycodone at bedtime with the medication I take for Restless Legs Syndrome (RLS) helps me to get to sleep and not wake up in agony caused by the RLS.

Am I an addict?

“Taking opioids over a long period of time produces dependence, such that when people stop taking the drug, they have physical and psychological symptoms of withdrawal (such as muscle cramping, diarrhea, and anxiety). Dependence is not the same thing as addiction; although everyone who takes opioids for an extended period will become dependent, only a small percentage also experience the compulsive, continuing need for the drug that characterizes addiction.”*

I’m mentally ill. In my opinion taking any medication, especially one that alters my brain chemistry (opioids do this), should be thought about and discussed with other medical personnel who are also responsible for my continued living – and to live my best life.

Am I an addict?

No.

I have Opioid Dependence.

Dependence. I can live with that, but look, let’s get rid of that too. Okay?

{I have Bipolar Disorder. I’m a little manic now. I’m using it to write and post while I can. So, for now, I will post often because tomorrow, I may be depressed and unable to say what’s on my mind. I may not have anything on my mind.}

* https://ghr.nlm.nih.gov/condition/opioid-addiction

5-Minutes

5minutes Are you listening? Can you hear me?

I need you to hear me.

I need you to know what I mean when I say, “I just can’t!”

You really need to understand this illness before we talk about, “I just can’t” It will make so much more sense then.

I’ve written about my troubles for years in my paper journals. I’ve always imagined that when I die, one of my family, my kids perhaps, would read them and finally understand me. They would finally understand that I’m not a bad person, a lazy person, or a freeloader.

I’m sick. I’ve always been a sick person.

With technology what it is today, it’s easy to find an informative book that explains what it is to have what I have. I’ve searched YouTube for videos that explain me and have found a few that try to do it and seem to do it well. We’re all different of course so what describes one person may not completely fit me. But if the person watching will just listen, listen and hear the pain and the wrongness of it all.

Wrongness. That’s what it is.

You’d think, maybe this is the child whose rage never seemed to end, a brat that pushed and pushed…. Wouldn’t you like an explanation?

I’d think someone who claims to love me would take a few minutes to watch a 5-minute video, just a five-minute video, to learn about me. Surely, someone, anyone of you must care enough to sit for five-minutes for me? Did you hang out in line for coffee or in line at the grocery store? Is that silly? Have you “liked” any funny pictures or memes today? Did you watch ANY TV? What were you doing on commercials? Why is this so hard for you?

Did you watch the news today or read your Facebook feed? Have you texted anyone or talked on the phone?

Would you think I didn’t love you if I didn’t return your calls or texts for two or three weeks? Would you call and check on me?

How much energy does it take to watch a video?

What are you afraid of?

I’d have thought I’ve shown you enough of what this illness is that you have nothing left to fear.

And yet, you don’t hesitate. You completely stop.

“I don’t have time.”

Will you have time to visit me in the hospital?

I’m not going to try to kill myself just to get your attention. But I can’t promise to do what’s best for me all the time.

Maybe I’ll have to mourn the death of you so that I can learn to live without you. Because you see, I already live like this. You are emotionally unavailable to me. Without “my people” surrounding me in a protective layer of love to cushion me when I fall….

Adults are just like children. We all have a fair expectation of being loved. When that expectation is not met we wither and begin to slip away.

Do you have five-minutes?

I need you to listen to me today.

Just follow the link.

Then maybe we could talk.

I’ve had a thought. I’ve unwillingly learned more about inappropriate relations whether they be physical, racial, or political just watching prime time TV than you’ve learned about me on purpose.

It isn’t rocket science. But it is science. I am sick. Unlike some illnesses like some cancers where the patient may go into remission or finally be overcome by it, my sickness has not given me a moment’s rest.

Sometimes I wish I had an illness you could see so that you would mourn me when I die. But for today, I live as though I’m normal. That’s how you see me. Normal. That’s how I look. This illness is rude beyond anything I’ve ever seen. It grabs hold and never lets you go. It bombards me from within, from where you cannot see. This illness, it stays in the “ON” position from before I was diagnosed until I die.

That’s right. I have it now. You cannot see it. I will die with it.

Would you watch the video?

Or would you rather I had cancer? Then you’d have something you could see.

I’m tired of being unseen for who I am.

Please, are you listening? Can you hear me?

I’m wondering if you’ve ever felt anything like this. This is all true in my life. What about you? If you have known that, I hear you. I will listen to you. I have way more than 5-minutes to give you.

* I had my counselor read this yesterday so that he could see what’s in my brain. I told him I was going to edit it, polish it up before I posted it so it would be clearer in some places. He suggested that I not do that. He felt that letting you see where my brain was at was a place of raw emotion. He urged me to keep the “rawness” in it. So, here it is. Right from my brain and served up to you on a virtual platter.

Bipolar – I Think You Should Take Fewer Pills

I’m going to notify my counselor that I must be rid of my med provider as soon as it can be arranged. I’ve told Arthur, my counselor, that I don’t feel that Jamie (med provider) is working in my best interest. My next appointment with her she started right off by confronting me about what I’d told Arthur. I confessed thit it was true.

It got me no where.

She says that I’m on too many pills and she doesn’t want to add anymore. Apparently, this is her rational for not giving me medication that might actually have helped me.

I’ve been practically begging for something for my anxiety that only get’ s increasingly more consuming with each passing day

This whole school year has been like a nightmare.

She doesn’t want to give me more pills? Bull!! It is not her choice to decide whether what other doctors prescribe me for illnesses she knows even less about than I do.

She has repeatedly used this as an excuse not to give me something that could prevented me from my brake down. I have high cholesterol, my thyroid is out of whack, I have chronic horrible lower back pain, I have FM, RA, OA, a facial tick (probably stress related), PTSD, and have recently been diagnosed with IBS-d. It’s a crap load of stuff, but they have all been dealt with by someone more intelligent than she is.

I’ve asked each and every visit for something to help with the burning anxiety. She refuses. She gives me fewer chill pills.

Does she think I like taking a handful of pills twice a day? Moron.

I’ve finally had a breakdown. I blame her. In December I confessed I’d been having thoughts of harming myself. I’d hidden that for years, but at that point it was too much, and I confessed it.

She did nothing.

If I can’t trust my med provider to guard my mental wellbeing, than who will? There aren’t many options here.

I’ve started to shake, Twitter, and twitch again. I’m graduating today. My anxiety that mixes like a charm with my mania and depression making my constant mixed state even more confusing and painful. It’s too much to handle anymore.

I’m firing her. She truly doesn’t have my best interests in mind. I don’t need one of my medical professionals contributing to my madness. That’s just sick.

Bipolar Disorder-Announcing a New, Really Helpful Book on Living Successfully With Our Super Powers

Success_Key_400x400

I’m graduating from the University of Washington at Tacoma on the 11th. I can’t wait. This entire year the pressure has been building within me. It feels tangible, like a physical thing pulling at me, never letting me alone.

I broke. I threw the mouse for my laptop. I threw it really hard right in front of my daughter who has just moved in with me. I scared her. It’s been years since I’ve acted like that, so violent and scary. She didn’t know what to do. My dog, who is supposed to be my emotional support dog, ran for Jessica’s room and hid there until it was safe to come back out. I had to get her to forgive me and we calmed each other down. She doesn’t like me yelling, raiding my voice or swearing.

The pressure to get a job frightens me and cracks begin to tear in the fragile being that is me.

My grandfather had a window washing company and a carpet cleaning company. When he retired my father and mother took it over. Now, my brother and his partner run the company, I have had two publishing companies that I started myself. Then my brain went kaboom! And it all went away.

I’ve gone back to college hoping to gain the skills necessary to better start and run another new business. I’m planning on having another publishing company that focuses on non-fiction, especially regarding mental health. Here, in this blog, I share with you my honest experiences and troubles. What I don’t do, is preach to you about what I think are answers to my problems. If you scan my posts, you may see different ways I deal with my illnesses.

Announcing a New, Really Helpful Book on
Living Successfully With Our Super Powers

I believe that the dozens and dozens of books on mental illness and especially on Bipolar Disorder miss the mark in dealing with the real issues I face every day. Let me give you an example. I don’t know about you, but I have a ton of trouble focusing on one thing long enough finish it. Also, anxiety has been beating me over the head and for the first time, I felt it was necessary to tell my family and my counselor that I’d been having brief moments of wanting to hurt myself. I’ve felt it so strongly that I was frightened that I might actually do something.

Am I qualified to give advice regarding Bipolar Disorder? I don’t have a degree in psychology, but I have raised three kids on my own. I’ve been dealing with my illness for as long as I can recall. My mother always thought it was her fault that I behaved the way I did. I finally learned that I had been presenting symptoms since I was very young. She thought I was possessed I think. My parents sent me to stay for the summer with her very religious sister and her family. I think she was hoping it might change me. It never did. Oh, I want to mention that I have a degree in Religious Education (or something like that). I no longer actively practice my faith.

Why am I qualified to undertake this project? I care about each of you. I want to present different ideas on how to survive and even thrive despite having a life long illness. I’ll be getting my degree in Writing Studies in a few days. Hopefully that has taught me how to communicate my thoughts better. I don’t aim for perfection in my blogs. I just want to express my real life situations and feelings to you.

Most of the books that I have are primarily loaded with worksheets. Worksheets! I can barely sit still long enough to focus and understand a short chapter there’s no way I’m doing worksheets. How do you feel about them?

Well, that’s enough of that. Maybe you’ll be interested in it, maybe you won’t. To each is his own.

I am a survivor. I might fall and be all scuffed up, but I’ll heal and I’ll get back to work. I believe that I know what my passion is and I’ve committed myself to give myself over to it.

Have you ever considered doing that?

I hope that you’ll stick around and maybe recommend my blog to others who might resonate with it.

We are a group of people who are not understood by the general public. We’ve gone from being stuck in special hospitals for the instant and given inhumane treatments to today when we are blamed for mass shootings. I don’t know about you, but I think it’s time that we rally around ourselves and learn about ourselves first. Then, I would like to see us enter into our communities and make a difference. We are real people who want to live real lives.

I’m not going to try to get you to come to seminars where I will convince you to purchase expensive kits that include DVDs, workbooks, cards to memorize and other “useful” things.

No, that’s not how it should be done.

There are more of us who suffer from illnesses like Bipolar Disorder than “normal” people could possibly imagine. We are everywhere. I think it’s time to take our special superpowers and use them to change our lives, and maybe our world.

Do we have superpowers? Of course, we do. Can you recall the last time someone you know was suffering and you understood how they felt and knew just what to do for them? No? Well, don’t be discouraged. Our superpowers are often there and doing their things. We just don’t recognize them for what they are.

So school’s almost over and I’ll have time to work exclusively on my new business. There is so much for me to learn. And I have so much to share with you.

If you’re curious or have a suggestion for me to consider please email me right away. I’ll take every message seriously. After all, who knows better what will help us other than ourselves.

I think it’s time to rock! How about you? Are you ready to get the messy monster off your back even a little bit? I can’t cure you. No one can. If they tell you they can they are liars. What I can do is walk alongside you, understand your pain, and search for ways to live fulfilling lives.

Please tell me what you think about this project. I honestly want to hear your thoughts on it.

Oh one more thing, I find a lot of things funny. I had one of my class in stitches Thursday. I was supposed to be giving a presentation and I turned it into a standup routine. I can’t help myself. I love to make people laugh. I didn’t talk about my illness, but I have many times before. There is so much that I have to take with a dose of laughter.

Well, be well my friends

Robin