Bipolar – A Wee Comment On Oxycodone and Other Such Things

Over the last several years doctors have willingly given, even insisted that I let them prescribe Oxycodone for chronic pain. (20mg 3x daily)

It is a completely and commonly known fact that this narcotic is ineffective against chronic pain.

I’m home from my joint replacement surgery. I dislike pain. I have a post-prescription for 5mg of Oxycodone. Surgery was at 12:15 this afternoon. I have just taken two.

I’m a question asker. I ask questions all day and all night. I drive even my lizard, fish, cats and Bailey bonkers with them. Yes, and my family too. So what’s my big question?

QUESTION: If you have fire burning behind your eyes causing the mania and the rage to merge and melt into the endless void of despair… why haven’t you just stopped the pain? Surely with all the meds you take you could have done this so easily. Only 5mg? What’s going on? I thought you were suffering like me.

ANSWER: I didn’t plan the question and I haven’t planned the reply. My answer is simple: I believe there is great purpose for my life. I’m not afraid to be seen, accept when I am, because I’m human. I’m not afraid to teach or lead by example even when it is painful, accept when I am, because I’m human. I’m not afraid to shout down wrong and stand for good and the righteous, accept when I am, because I’m human.

Do you see? My life is and will always be what I make of it. This is the way of things whether Bipolar or not. We are human. We make choices.

Knowing that benzodiazepines and narcotics are black-box meds (THE WILL LIKELY KILL YOU IF TAKEN TOGETHER) I have always chosen not to take them together.

My answer is simple, if a bit wobbly. I’m going to keep going and learning and growing and I’d love it if you came along too. I’d love to get to know you and hear your story.

No, I’m not a doctor or counselor and I have no medical training nor do I claim to be able to heal anyone. But, we all have our unique stories. They’re OUR stories and our stories can’t do quite a lot of things for us.

Time for me to say goodnight friend. If you have a few minutes and would like to say hello you can reach me at: robin.paterson.redux@gmail.com

Be well, Robin

Bipolar – The Truth About Emotions

I have Mixed-State Bipolar Type 1. Last December I finally admitted I was having random urges to seriously hurt myself. Over the years I’ve felt that way a lot. I did finally tell my counselor about it. Now, of course, it is in my records. But I was that scared.

My stress and anxieties have been getting hotter and higher over the last few days. Yesterday my son Kyle had his roommate help him move the rest of his sister (my daughter Jessica) move the rest of her things into my tiny house. I think we’ll be fine together.

The truth about Bipolar Type 1 emotions is their severity and extreme mania. I’m not going to list the details for you right now. I’m just so MAD that a second kid, 22 years, has told me he’s got Bipolar 2 and he has to take drugs for it every day or it would be bad for him and that (and I’m not lying about this part) he was incredibly brilliant and could think of things that no one else could. His Bipolar was a gift and he was embracing it because it does so much for making him creative. He would die if he didn’t take his pills. I swear the boy was telling me he has bipolar and he might have been high.

I, being offended as I was, asked him some more about it. He said that if he didn’t take his two pills a day something bad would happen because you know he gets manic, really revved up, and psychotic too.

With my teeth clenched I instructed him that that didn’t sound like Bipolar Type 1. Oh, did I mention he changed to that after I challenged him on some of his symptoms? Yeah, apparently you can change what type you have depending on who you’re trying to impress.

I’m not having it anymore.

The day before that another 22 something told me she wouldn’t have kids because she wouldn’t want anyone else to come into this world because of her and “have this shit.”  – She knows I have three kids.

Then yesterday those damn little micro “I wanna hurt myself” crappy thoughts started up. I was angry.

Tonight I’m angry again. I’ve been angry all week it seems. I’m angry because of a seemingly small thing. That’s the way it is with Bipolar people… we experience overly intense emotions. Have you ever noticed that?

Well, when the boys moved Jessica’s stuff in someone moved the giant flashlight I take the dog out to do her business at night with. I couldn’t find it. I was immediate, pardon me, pissed. My dog thinks small flashlights are lasers and need to be chased. So, I had to do a small one. Then I found a poo from earlier. Jess marks them for me in various interesting ways. I was picking that up with my whimmpey flashlight, hiding it from Bailey. And then….. I missed where she just went.

I am always the one who steps in it. I have no idea where it is.

Silly reason to be angry? Normally. When I’m acting and feeling what I consider is normal for myself. Tonight. I’m just angry. I did think of hurting myself. Then it was gone, suddenly hiding back into the neurons of my mind.

Exhausting. Extreme emotions are so exhausting.

So that’s the truth, according to Robin, about Bipolar Emotions. They exist. They are mysterious. They don’t always act in ways one would want them to.

Yeah. That’s the troublesome side of the coin. But you know what? There is another side. Maybe another time.

When It Gets Real – Bipolar

Two days ago, I was notified on my phone that a comment had been made on a post I had originally made on this blog (REDUX) over a year ago. I try to always reply to any comment left on my blogs no matter how long ago the original post was, and to do so as quickly as I can. I believe that when a Reader goes to the trouble of commenting, that we have entered into a conversation and that to be polite, I should reply. It’s the polite thing to do in conversation, right? And, I’m honestly interested in what Readers have to say.

The person implied that they had read the post. Cool…um, not cool. This is what the person said: “This gives me no hope and makes me want to die even more.”

I immediately stopped what I was doing and read the original post. It was heavy. I’ve never hidden the dark days from you. I’ve also never hidden when the dark days change to grey, and then to blue and sunny.

I want you to know that I struggle. Sometimes I struggle every day. Sometimes my heart is full of light and I feel peaceful.

I am linking that original post Original post. I’ve gone back and put some things in bold/italics. I’ve not changed anything else. I did try to reply to the person as quickly as I could in an effort to reach them. I don’t know if they read my reply.

Please feel free to read it. You’re welcome to comment on it here. I stand by what I wrote. It is all a part of who I am and what I struggle with. Bipolar Disorder is not like some diseases that go into remission or go completely away. I will always have it. I will always search for ways to live better with it and to faithfully and consistently practice the things that help me.

Am I better than I was when I wrote that post? I don’t really know. I’m different. My life is different. My world is different.

I just bit the tip of my tongue. That’s different.

Everything is relevant and always in flux. It is what we do in the darkest of times, in the best of times, in every single moment of time that is what makes the difference in whether I live, or I die.

Today, just like yesterday, I choose to continue the fight. I choose to live.

That’s all I can do. For myself. But I can ask that of you too.

Choose this day… to live.

Insidious Black Box

I apologize for the length of this post. Please consider reading the entire post. It’s very important. Your life could depend upon it. (Robin)

Emotionmasks insane faces

I take two medications that I considered to have a Black Box warning. They both depress breathing. Together they can stop my breathing altogether… There are other dangers.

I have chronic pain with Bipolar Disorder and Generalized Anxiety. I am prescribed both Oxycodone and Clonazepam by two different providers. They both know that I take both medications.

I see a pain management specialist for my pain. I have for some time now. To be treated there, I have had to sign a contract that governs my behavior with regards to taking pain medications, I have to take a pee test every time I go in and they count my pills every time as well.

My med provider handles my Clonazepam prescription for anxiety. I suffer from extreme anxiety. Sometimes I feel like my brain is going to explode. Recently, this woman, who is the 4th or 5th provider I’ve had since I started going to this clinic, told me that I’m more likely to kill myself because of anxiety rather than depression. I was always told that a depressed person was more likely to commit suicide when they started to feel better. When they started feeling better, they finally would have the energy to follow through with their suicidal inclinations. Apparently, there is more to it than that.

My counselor and every med provider I’ve had is intimately aware of my massive anxiety and my inability to get it under control. We’ve tried all the counseling type of solutions including Cognitive Behavioral Therapy (talk therapy), mindfulness and other techniques. I’ve not had success with any of them.

My med provider is content for me to only take Lamotrigine, which is primarily to treat my Bipolar Disorder depression symptoms, and not to take anything other than Clonazepam for anxiety. From talking to her, it appears that this is primarily to treat the depressive symptoms that I experience. I have not been able to get any of the med providers who have treated me to give me anything for anxiety other than Clonazepam.

She, my med provider, told me at our second meeting, that people with anxiety are more likely to commit suicide than people with depression. Since I suffer primarily from anxiety, you would think someone would have warned me of this. I understand now why I feel so self-destructive while I’m exploding with anxiety.

She has told me that her goal is to get me off the Clonazepam completely. Now that I’m taking my runaway anxiety and the real chance I will kill myself because of it more seriously, I’m also taking the mix of these two medications seriously. I always have, but my frantic response to my anxiety has created a situation where I’m so afraid of what might happen if I stop taking the drug for anxiety.

I’ve always felt like I’m most insane when my anxiety is at its peak.

I understand that long-term opioid use for chronic pain is not the most effective way to treat it. I’ve wanted to find a different solution for a long time. My pain management provider doesn’t offer other alternatives than pain medications.

I normally don’t want to die. I’ve always had urges that are normally short in duration towards it, but I haven’t had times when I sit there with my bottle of Oxycodone ready to take it all. But, I could.

I’ve never told any of my mental health caregivers that I have suicidal thoughts. I know that my community does not have good facilities to treat acute mental health emergencies. I don’t want to become one of those people who is shuffled into a hospital emergency room with a guard sitting outside my little room. That’s what they do. I have first-hand knowledge of this.

So what’s the answer? Do I chance dying in my sleep? Or do I chance ending my life while I’m awake? Both are real dangers.

I’ve decided to deal with my feelings of self-destruction now. With the danger of the two medications and my new understanding the relationship between anxiety and suicide, I have promised my family that I will talk to my counselor on Wednesday when I see him. I will admit that I think about suicide. That’s a huge step for me.

I’m afraid. Admitting how I’ve been feeling for years is like admitting that I can’t control the one area of dealing with my mental health that I always felt I could say I didn’t have a problem with. I’ll finally be admitting I have no control over my depression or my anxiety in relationship to staying alive.

As I say, I don’t want to die. When my anxiety runs away I cannot always control myself. I can become violent and destructive. I break down and cannot function. I become paralyzed yet also hysterical.

Yesterday I talked to my mother and all three of my kids and admitted the truth to them. My youngest who is a psych major at the same university that I attend (so is her partner) said she had been wondering if that was a problem for me. They all agree that they would rather I call them than I call a suicide line. I’ll talk to my therapist about that.

I have tried to learn to practice mindfulness several times in the past. I never fully committed to it. Mindfulness was just part of the learning experience in one of my classes I just finished. It’s time for me to review the materials I have about it, I have lots. I need to try to learn how to harness it’s potential in earnest this time. My life depends upon it.

I have a particular fear: I’m terrified of my anxiety. I know what it does to me. I sometimes feel the insidious devil of insanity creeping through my mind trying to take over, and it literally shreds my mind.

If you have any Black Box warnings for medication yourself, please take it seriously. Now that I am self-aware of my true situation I’m ready to find a way to deal with my symptoms.

 

My main medications:

Chronic Pain – Oxycodone / Nucynta

Anxiety / PTSD – Clonazepam / Benzodiazepines

Bipolar Disorder / Depression – Lamotrigine

 

Oxycodone – Warnings

“To make sure this medicine is safe for you, tell your doctor if you have:

  • a history of drug abuse, alcohol addiction, or mental illness
  • if you use a sedative like Valium (diazepam, alprazolam, lorazepam, Ativan, Klonopin, Restoril, Tranxene, Versed, Xanax, and others)”

https://www.drugs.com/oxycodone.html

Clonazepam – Warnings

Risks from Concomitant Use with Opioids
Use of benzodiazepines, including Clonazepam, and opioids may result in profound sedation, respiratory depression, coma, and death. Because of these risks, reserve concomitant prescribing of benzodiazepines and opioids for use in patients for whom alternative treatment options are inadequate.

Observational studies have demonstrated that concomitant use of opioid analgesics and benzodiazepines increases the risk of drug-related mortality compared to use of opioids alone. If a decision is made to prescribe Clonazepam concomitantly with opioids, prescribe the lowest effective dosages and minimum durations of concomitant use, and follow patients closely for signs and symptoms of respiratory depression and sedation.
(The above Warning is taken from: https://www.drugs.com/pro/clonazepam.html)
Concomitant: (synonyms: attendant, accompanying, associated, related, connected)

Lamotrigine – Warnings

To make sure lamotrigine is safe for you, tell your doctor if you have:

  • A history of depression or suicidal thoughts or actions
  • Some people have thoughts about suicide while taking this medicine. Your doctor will need to check your progress at regular visits. Your family or other caregivers should also be alert to changes in your mood or symptoms.

https://www.drugs.com/mtm/lamotrigine.html

Nucynta – Side Effects for Health Care Professionals

Psychiatric – Common (1% to 10%): Insomnia, confusion, abnormal dreams, anxiety, depression, irritability, nervousness, drug withdrawal syndrome, restlessness, sleep disorder, hallucination, depressed mood.
https://www.drugs.com/sfx/nucynta-side-effects.html

 

Benzodiazepines

Benzodiazepines may be used in the treatment of anxiety, panic disorder, seizures, or sleep disorders.
https://www.drugs.com/drug-class/benzodiazepines.html

 

Anxiety Storm

They always ask me if I’m depressed.

I’ve got Bipolar Type 1 and I cycle super rapidly, what do you think?

No, really, are you depressed?

Let me tell you the truth, I hope you hear me say it this one time because I’ve had enough.

Go ahead.

My anxiety, my stress – if that’s what you need to call it – is at 7 of 10. 10 is call the morgue. My adrenaline has been full on since I can first remember. Fight or flight…. or both.

Yes, that fight or flight reflex can be triggered.

Listen to me. All the time. It’s all the time. Stop asking me if I’m depressed because the answer will always be yes. What you should be concerned about is my anxiety. I’m more likely to have the top of my head exploded from that than I am from depression.

You know, you’d be surprised at how often that’s the case.

Shit.