Bipolar and Chronic Pain Just Plain Suck

Monday my Bipolar brain took a chance an had a lumbar steroid shot to attempt to relieve massive pain I’ve been experiencing for years. I respond quickly to medications and other treatments and it’s been this way with the lumbar shot. By the next morning I was experiencing muscle cramps and painful spasms. Although I wanted, in my strange way, to think something had gone wrong I decided that these things were happening because my body was moving more freely because there was less pain. Even a slightly longer reach or stretching a muscle beyond what it has been doing for the last 25 years.

The second night my back lit up. All the nerves in my lower back were on fire again. I got an ice pack and sat in my recliner (which my mother thoughtfully gifted to me) and tried to ride out the storm. No such luck. Kyle was staying up late playing a game on the X-box and for the first time he saw a little of the hell my body puts me through. I thought I could get it to calm down with the ice. No such luck. I was reclining in the chair to better freeze the painful area. I couldn’t stand it any longer and I started kicking my legs and groan with the pain.

My anxiety level was reaching critical mass and I felt I was losing control. My mind was unable to restrain or reign in my response to the pain. It was excruciating. I asked Kyle to rinse out the tub for me (Bailey, the puppy, loves to play in the tub when she’s not having a bath.). Not knowing what else to do he did so quickly. I climbed in before the water got more than a few inches deep. I sat with my back to the spigot and the water turned hot. I was so tired I kept falling asleep.

I don’t know why I didn’t use the heating pad. That’s what it’s for really. That and the big ice packs. I think when the pain becomes so great that we can no longer think clearly. Also being Bipolar I’m not always prepared for nor able to deal with such pain. I was so drowsy. I walked close to the wall so I wouldn’t fall down the stairs. Finally I realized I’d not taken anything for my back all evening because I was feeling better. I jumped the gun.

I keep a record of when and what and how much of each drug I take during the say so I don’t over or underdose. I was way under.

Today I asked Kyle if he’d ever seen me like that, in that much pain. He hadn’t. I told him how this was only some of the pain I have been in. If it had been any worse I wouldn’t have reclined my chair because I knew I would break it. He didn’t say anything. He didn’t need to. I know he is starting to understand.

This, this is Kyle in the first grade. Today he is a sophomore at UWT (University of Washington at Tacoma)
kyle1st-grade

I’ve tried to hide my infirmities from my kids as they’ve grown up. The fits of anger and depression, the aggression and the manias… I couldn’t hide them all the time. Maybe never. I’m not sure. Today all three are remarkable individuals.

Raising them I was in constant physical and mental pain. I nearly lost myself. Today, for the first time in…. forever I put away the groceries anfter shopping and wasn’t in any pain. No pain in my physical body at all.

I had no idea how much pain I’d been in… until after some of it was gone.

It is my hope, that now that some of the chronic pain is alleviated my work to balance my mind will be more successful.

My friend, I have learned many lessons from this experience with ongoing pain. I didn’t know I was blinded by the pain. I didn’t know the pain made my mind, my Bipolar mind, more messy. If you experience other pain in your body that can be addressed, pain so great it alters your daily activities including you need to be doing with your kids. Myself… I couldn’t even stand long enough to cook. When coaching softball my pain was like a monster. I’m sure I wasn’t very effective. I cared a lot about those kids though. I just thought the pain was part of carting around sports equipment. I was wrong.

Consider your body… has it got a hold on your mind? On your Bipolar behavior?

Be well my friend.

Bipolar – The Friend That Never Leaves

Well, she does rather enjoy chasing and eating leaves. There are no leaves on my back porch.

image

This is my Bailey. Those are her chair and leaf.  Think… phoenix.

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Bipolar – Fractured

I don’t like to talk about the spin, the time when I free fall and cannot make myself stop. When anger and grief and pain explode in my life… not just my brain. What I think, this is what and who I am.

For the moment. Sometimes these moments can draw on for the proverbial eternity and we try to think, if we could, that we’re coming near the end, that we cannot stand this anymore.

I didn’t have more than brief moments of these things. Most of the time I have been so manic that I thought my brain would implode from shear spinning. You see my friend, I’m a mixed Bipolar 1. Those of you who aren’t familiar with this condition, congratulations. Today you win the lottery. This last few weeks have been terrible. I have been very depressed and unable to see it or deal with it. When it was suggested that this might be where my massive irritation was coming from I had a difficult time admitting that it probably was. (See how I did that? I still skirted around it.)

I have exploded, with my kids present, too many times. Recently, too many times. Okay, not exactly always at them. Sometimes just when they’re around. When I’ve considered my past I worry for the times they’ve been exposed to my insanity. Being a single mom and going ballistic for what seems now like for no reason at all leaves a mark on kids. They say it’s worse than divorce. I’m both. Bipolar and divorced. I worry for they scars they carry… because of me.

I’m a mixed state depressed and yet manic Bipolar 1. I have two kids still at home. I am alone. I have no friend to speak of accept one and we met on line and don’t speak of these things. I’m glad for that. I can be normal with her. She knows I’m Bipolar and she doesn’t care. I act rationally if a little meanderingly with her. And yet, I fear I’ll say something and she’ll walk away too. So many have that I’ve quit trying to find friends.

My family doesn’t (beyond my kids) understand. Not at all. When they care to try to… they… well they don’t. Recently I learned that when my mother took home stuff to read about Bipolar she never read them. She’s never looked it up on line. She’s now 72. She has no excuse. She knows how to use Google.

Yet we all know that even the great Google cannot explain this that we are. We are ourselves. We are great in mental volume, if not in order. We excel in emotion, if not in control.

I spent a lot of time this last few weeks in grief, anger, fear, irritation and depression. I suppose, don’t understand why I avoid that. I think it seems to my fractured mind that admitting depression means loosing the last bastion of my mind. Confusing, I know. New meds sedate me too the point where I simply cannot not sleep. This frightens me as well. You see, as my med provider put it, “We need to get your nerves calmed down.” Now, when I’m not so calm as to sleep, I’m not calm. There must be a middle ground. I must give my mind time to heal. Be patient.

My kids suffer I think. They are afraid they may have inherited my genes too much. But you know, after all of me, all of living with me, they still believe in themselves. They have ego. EGO. All three believe in themselves.

See you thought I’d never finish the “pride” letter didn’t you? Ha! They have pride in themselves that is good. It isn’t forced. It’s part of who they are. Part of their hardwiring. I asked them how they each manage to be so sure of themselves. This is what they said, each one said this:

“Mom, you taught us to believe in ourselves. You drilled it into us. You, you did this.” I did. I made them who they are. (Give this wording to me for now. I deserve it.)

I have my own ego. Ego born of an accurate estimation of ones abilities is a good thing. I’ve struggled with this thinking I’m really stupid because I never finish anything. But I have. I’ve successfully raised three amazing kids (young adults). I know what I’m good at and they are many things. I finish things when my brain lets me. One thing.

I’ve raised three amazing kids. I’ve been a wreck this week. But, I started on Lyrica for some of my physical pain. I should be scheduled soon for a shot in my spine and that should alleviate a lot of my other physical pain. My additional meds should mitigate some of my mental pain. Even though I’m up in the middle of the night again, I feel restless, but hopeful. For the moment. These moments will grow longer, this much I know from experience. I must stay the course and take all my meds every single bloody day.

I have one thing to say to you and I hope you will listen.

I’ve raised great kids. Awesome kids. I love them beyond words. I… have raised awesome kids despite myself.

My friends write to me and comment on my letter. I wish to read your thoughts. You too are important to me. Till the nest time, be well and be patient with yourself. Give yourself a chance to heal.

(Oh, and there are now 23 pot shops. (Oy veh)

Bipolar – Insurance

I’ve been on the phone last Thursday, Friday and today with people of perhaps challenged intelligence trying to un-mess my daughter’s health insurance. No luck so far. Maybe tomorrow.

The thing that kills me about being Bipolar and insurance is not having or not having it… I mean insurance. The thing that kills me is that being both Bipolar 1, ADHD and being able to become depressed in the barest moment is that despite finally succeeding in getting my prescription for Lyrica cleared for my FM (Fibromyalgia) I’m depressed. (I’m a mixed state Bipolar so I’m very good at this little trick of the brain.)

I’m frustrated and angry and depressed and frustrated and angry and depressed…. I haven’t experienced more than a few minutes of gladness for the Lyrica victory. I’ll have to focus on this more and try to let the victory overtake me by it’s great possibilities for relief for me.

If you have BP or other such thing, you may find that you have difficulty with your health in other areas. I was reading an insurance fact sheet today that said that disabled people (of which I am a subset of) tend to neglect their health… Google it darling. ;0)

I have my father’s teeth. Neither of us have any. I’ve not been able to wear the standard dentures that the State provides to those on disability insurance. I’m hopeful (I hope) that my insurance will cover more costly ones including posts that will done at the University of Washington. I think it’s the School of Oral Surgery. I have complicating issues so I think, rather, I trust and hope, that the new face will be covered.

I have to be honest, the fear that insurance won’t cover a new face for me terrifies me. I’m 51 years old and I have no teeth. I cannot wear regular dentures.

Add my lack of ability of what I consider the ability to smile a truly joyful smile to my Alphabet soup and you have a mixture that’s hard to swallow. So to speak. Well, I did choke on a blueberry muffin this morning at breakfast.

And now… I simply cannot reread this. I hope that it is at least a little understandable. I’m very frustrated and irritable and need to explore my current method, well, my current exploration of a way, to reign myself in so I can slow down, if not be peaceful before bed. I’m speaking of something called Mindfulness.

Mindfulness… Do you know it? So far my friend it seems a good thing to hedge my bets by. (Or is that “with”?)

Good night.

Please write. I reply to all letters.

Bipolar – The blow. . .

There isn’t any good way for me to tell this to you. I can’t think of a single way to soften the blow. . .

The blow. That’s funny. We’ve counted 3 times. Today I found another one. There are 21 medical marijuana shops traveling from my house, down a major arterial into the city,  and ending downtown.

Twenty-one gigantic green pluses (+) all along the road. These mark the blessed spots where the water grows greener. The pot shops.

There are more pot shops in this 5 mile drive than there are coffee shops. I live near Seattle. Go figure.

My Primary Care Provider (read… doctor) has tried to convince me to use the green lung goo for several years. I suppose he feels that Bp 1, OA, FM, anxiety, and ADHD are a bit much to handle. Hmm… and chronic pain from bulging disks and arthritis (specifically in my lower back) and that it might relieve my pain (read “issues”, loving referred to as my “alphabet soup”).

Nah, I don’t think so. I visited an old work friend who has been on the stuff for years (beginning before it was legal here) and I tell you after I visited her and her husband at their multi-generational home… I think not.

That’s a NO.

I’m not going to go into my specific reasons about this issue because I’m only writing to tell you this one immutable fact:

THERE ARE 21 POT shops BETWEEN my HOUSE and DOWNTOWN.

5 miles.

21 pot shops.

Forget my alphabet soup my friend.

That’s a bit too much.

21.

 

{If you disparage of my use of the term “pot shop”, you are thinking this thing through way too hard.}