Last week I was feeling down, frustrated and I suppose a little angry. As in all of life, not one thing is contributing to these feelings. I know a major one is that my dog is sick. She’s in pain and, I can’t do anything more for her. Our veterinarian is short-staffed, so they’ve closed the urgent half of the clinic. A month ago, I made an appointment for her and it’s finally arrived. Its been agony watching something that has been consuming her and is growing worse every day. We don’t know what’s wrong, but we can see the results. She’s tearing her skin off. She itches so badly that she passes the pain from earlier scratching and digs deeper, trying to stop the itching. Next month, she’ll see a dog dermatologist. Thankfully I made this appointment with her regular vet. I’m hoping that they will give her something for the pain, reduce the itching, and help her heal. I don’t see any infection, but I’m not a vet.
I think I know how she feels. In the past, sometimes my skin itched so badly I couldn’t resist the urge to itch it. I’ve woken up the night with blood on my fingers. The despair and anxiety that come with that are immense. (No, I don’t have OCD.)
Those horrible emotions appear in various places in life. When my Fibromyalgia flares up and my Rheumatoid Arthritis and Osteoarthritis flare simultaneously, they invoke those same horrible feelings in my soul. I want to withdraw and lay in my bed until I feel better. But, sadly, that’s the worst thing I can do. (One of our cats just went to the bathroom, and I think I’m going to die. Be right back.) I’ve been learning about Fibromyalgia, and one of the first and most important things I MUST do is be active. Physical activity is one of the major and only things it seems that I can do to help me, hopefully, have less pain.
Pain, this is what I want to mention today. Mental and emotional pain can easily be as crippling as physical pain. I might believe I just can’t get out of bed, but I must. I must move around and not stop. Not doing so can let the anguish take hold and cripple me further.
I’m also learning that Fybromyalgia causes something referred to as “brain fog.” Let me just say that I have strategies that I’m trying to use to fight my already beat-up brain from Bipolar Disorder and ADHD. (Thanks brain.) The treatments for those two things are in direct conflict, so we had to choose one to address with medication, the other I try to work within other ways. I’ve chosen my Bipolar because adding a stimulant for ADHD would make the mania so much worse. I’m already so manic that I easily drive my family bonkers; I just don’t need more stimulation. And I’m aware now, that Fibromyalgia also makes things messier.
So, where does that leave me? I’m not exactly sure. So far, it seems that brain fog is a mysterious thing. None of my doctors have offered me a solution or even a way to cope with it. I don’t hold this against them. This illness is very debilitating and, like Bipolar, it is lifelong and I must find ways that work for me to cope. Cope. I hope I can thrive, not simply cope.
I want you to know these things about me because life sometimes sucks for each of us. I can’t possibly understand your frustrations anymore than you can understand mine. Pain, mental and physical is unique to us all. We know that already.
However, let me assure you that I am not alone and, neither are you. As people, as humans, we all struggle with unique things every day. This, as you can imagine, makes the advice that we can give each other very hit and miss, and it misses more than it hits. Why? Because we are as unique as our illnesses or combination of illnesses are.
They say that our uniqueness makes us special; I believe this is true. We each grow with our individual strengths and weaknesses and these things make us special, unique and wonderful. I choose to believe that these thing are true.
Saying that we’re special always makes me feel a bit frustrated. When I’m feeling crushed beneath the weight of life I don’t feel special. I do feel unique in that sometimes I think that no one understands, and no one can help me.
Do you ever experience these things? I’d bet all my money that you do. Okay, I have no money, so that’s not a real bet, but I think you understand. We may have illness(es), and sometimes they make us feel crazy. At least, sometimes I do. But, thankfully, I’m not crazy. And honestly, what does being crazy mean?
I can say that I understand depression, anxiety, frustration, anger, physical and mental pain, and the struggle to think straight or think at all. Those things I can promise I know about. You’re not alone in your struggles.
You are not alone. Not ever. We all feel crazy sometimes.
I’ve been thinking about you a lot. I’ve been developing an idea I’d like to try – but this isn’t the time for that. Not right this moment.
I’m at the Emergency Hospital (ER) with my daughter. I’m amped up on “fight or flight” in my brain. I’m sitting in my car because I can’t be with her. I’ve been struggling with experiencing a mixed state anxiety/depression and as always, manic (thank you ADHD).
Now, firstly I want to say that even though she’s all grown up, I still want to hold her and comfort her. But not this moment.
We’re here because an important medication didn’t arrive before she ran out. Two days after she ran out… We’re at the ER.
I was here just a few weeks ago for a medication problem as well. Not Covid.
I was tested yesterday, but only because I’m having surgery on Wednesday.
I love this video! The ideas on how to work from home can give us direction on how to create a healthy environment for ourselves during this very interesting time.
The video is different from many other resources on coping with being home because it is specifically targeted towards the ADHD brain. And… so what! It’s excellent and Jessica’s ideas are on target for brains of any flavor.
We did a bit of finger-pointing this morning while watching it. I really tried hard not to point with multiple fingers at the same person. (Okay, I didn’t try even a little bit!) My ADHD brain seems very similar to brains right now.
What do you think? Do you know any brains that seem to be sharing any of these traits? Ha! I bet you do!
I’m not sure how to say this without making it all messy, so I’ll try to put it as simply as possible. I’m complicated. Life is complicated and it seems to keep getting more complicated all the time.
Last week I found out I have Sleep Apnea. I never sleep. I wake up 10-20 times an hour. I always thought I had a weak bladder. Nope. Not breathing. Daytime my oxygen is at 98. During sleep it’s about 84. This seems to be of some concern. Yeah. So is my ADHD keeping me from paying attention? Or is it my mania? Or my constant state of exhaustion? Oiy!
Tomorrow I’m having a joint in my thumb replaced.
“I hate my wife.” (My kids say I’m not allowed to say “I hate my life,” anymore. Oh, and I have neither husband nor wife.)
Sleep Apnea and Bipolar = How the hell would I know?
New thumb and writing = Figuring out how to use Dragon (OMG)
Bipolar/ADHD – To Focus or Not to Focus, That’s the Damn Question!
I apologize if you don’t like the word “damn.” My mom still corrects me when I use it. You know it’s taken me a really long time to learn how to say it convincingly. I mean, forever when I’d get mad and say it people would actually say to my face things like, “Yeah, no. Don’t say that. You just can’t say that.” I’d ask why not. “You just can’t.” Why not? “Robin. You sound ridiculous.” How, can anyone sound ridiculous swearing!!?? It is swearing!! I thought all swearing sounded stupid. Apparently not.
Apparently, I still sound silly when I swear. My advantage, if I have one, is that when I’m really backed against the wall (read – super, super, very, very angry in a The Hulk sort of way) I may not have the best use or depth and breadth of swear words, but I make up for it in shear fury. Sometime I even scare myself with the power of that, what is it called, that RAGE. I hate rage. Yippie…. If I seem less than optimistic it may be because she referred to me as “atypical atypical.” I don’t know about you… but I dunno what the damn that means.
I’ve been in that place where a ton of stuff has been building and building and I haven’t realized that I haven’t released the pressure off of ANY of the things that need to chill out. I didn’t recognize how stressed I was or how long it had been since I’d had a good long laugh. I hadn’t been doing any of the right healthy things that would have kept me bouncing my life ball along the way I want it to go. Instead, well, yep, the doo-doo hit that fan thing and I went kaboom!
Sadly, I kaboom-ed the day after I started the new medication. My normal reaction would be to stop taking the medication immediately and talk to the provider. I can be very sensitive to some medications and have reacted violently to at least one of them. This time I was certain that I sensed I was feeling my old companion, rage, and not a medication complication. I could have called her up and told her it didn’t work. In fact, not only could I tell her did it not work, I could tell her I became hysterical and physically violent. I threw things and yelled and screamed. I slammed cupboards and the garage door and kicked them some more to make sure they knew they were in for it. I yelled and slammed, and slammed and yelled again, then again. I even stomped on the recycling and got it all ready to be taken out. I was feeling better so I screamed some more.
It didn’t take me long. It never does. All that adrenaline seems to surge around and drive all the clogged moods and emotions directly before it shoving them straight out my mouth and into the air where everyone can hear everything is say and scream. Hence, yeah, all the yelling. This is my most unscientific assessment. What do you think? I kind of like it. There are a few drawbacks to this.
First, while I’m acting all bonkers I sound like a fighter jet screaming in a rage stuck in the face of my kid who has been standing four feet away from me the whole time. I suck. She still loves me. She knows I’d do it for her. We’re a team. An unbreakable team. And, none of that matters. I ask her forgiveness. I apologize. I don’t expect her to help me fix my mess or even ask her to. It isn’t her job. Should I have realized I was brutalizing her emotionally by just raging against nothing? Of course. But, the unfortunate thing about losing one’s shit is that one has lost one’s shit and there isn’t a rotten thing one can do about it at that particular time. I know. It pretty much sucks.
Second, I made a mess and I have to clean up my own mess when I rage-out. This time things were very different than other times. I got to the point(s) fast. Meaning, I talked very fast and I stopped carrying on faster than was usual.
Okay, I say “as usual” but that really isn’t fair. It isn’t a “usual” thing anymore. It used to be my normal state everyday. I might not have thrown things all the time, but that rage was dwelling just behind my eyes, barely under control, for far too many years of my life. Now it is a moment that happens a couple times a year. That’s it. I’m proud of the progress I’ve made. If you’ve struggled with something like this too and you’ve gained ground on it, if you’ve got your foot on it’s neck, even if you’ve just finally figured out where the neck is, then I applaud you! Keep your foot right there and press harder! You can keep doing this. Never, ever stop fighting.
It’s been over a week since I started this new medication. Now that my moods/emotions have finished imploding and exploding simultaneously I can begin to assess how I think the medication is working for me. I ask my two kids who live with me what they think and remind them to take my explosions out of the equation. We’ve all agreed that we shouldn’t make that part of our assessment. We have decided, that for now, all things considered, that I’m not manic and I’m definitely focusing better. Yep. Better focus, but not all the time and we wouldn’t say it’s great. And my ability to chose the right or appropriate thing to be focused about is lacking wisdom.
For example: Do hours of research for business proposal and writing projects by doing deep dives down Google rabbit holes. Nut house! (I’m trying to find someone to make a prototype for me of a product I’ve developed. Since I have so much extra time and not a thing to think about I’m researching crowd funding like Kick-starter
I’ve tried to do this event called The National Novel Writing Month for several years, but every year I… I give up. I convince myself that although I have been working on a viable and interesting story for months or even is some cases for years, I don’t have what it takes to write those 50,000 words in one month. Loads of other people do. But I can’t. So I never try.
This year my daughter and I were both ready to do it and then… um… I got sick. Honestly! I got a really bad head cold. And my arthritis is killing both my thumbs. And my sciatic hurts when I sit. And I sneezed. And I forgot that a mystery has to plant clues. I have to plan more!!!
Oh my gosh!!
Isn’t Scrivener just terrific? It shows you just how much research you should have done before you started writing. Apparently I’m much more of an Outliner than a Pantser. (I’ll explain in another post.)
Any port in a storm. Any excuse in an open schedule when I can waste as much time as possible. And my head cold is gone. And I’m still researching. And it is now November 7th and I have 87 words written towards a 50,000 word count goal. I do, however, have a lot of research including my murder victims, the killer, heroine, places the bodies are found (it happens during the Seattle World’s Fair – “Alaska-Yukon-Pacific-Exposition 1909“), the exact dates they were found, etc. I’m very excited about it. I’ve finally come to realize that once I have my victims all named and given them occupations/affiliations, chosen the day their body is found based upon the group they are affiliated with (groups at the fair have special days to celebrate their organizations), chosen where their body will be discovered and decide how many victims there will be the story will flow very easily. I really have a lot of it worked out in my head already. It’s the logistics that I’d decided I couldn’t do so I couldn’t write it. And then I decided that I wouldn’t be able to write the draft (note that I’m writing a DRAFT) if I don’t actually start writing on the first day of the month.
That was just a silly thought. Oh bother. Way to not believe in yourself bird! What would the kids say???
That’s easy. I’ve already been told off. LOL I talked about it with the daughter that is doing this with me and she helped me with some of the details I was struggling with. She actually got excited about it. The way the actually history of Seattle in 1909 and the real fair, etc fit with my mystery are all very exciting! Her being interested in helping me and talking about it with me really gave me confidence that I could carry on and do this thing.
I feel better.
One more thing before I let you go. In the middle of the day I was ultra productive. I took a pic of one of our cats. Savvy, actually. She’s our youngest. She’s our rescue. She thinks my Kelpie (dog) Bailey is her mother… still! Bailey is still not interested, but still is willing to play with her when she decides to. It’s amazing to see her put her nose under Savvy’s belly and flip her up into the air. Savvy doesn’t seem to mind. At that point, the game is ON!
While my daughter was at school I got a really cute picture of Savvy. I wisely decided to use my time to use some filters (I never do this sort of thing. I think I’ve used filters twice now.) and change the pic up and send them to her so she could feel encouraged. She’s been having some anxiety at school and I wanted to get her mind to snap off that feeling and on to something I know she’ll give 100% of her attention to for a few minutes. (She goes to a school where this isn’t a problem. She can take a break and the teacher doesn’t care.) Well, 30, 35, 40… I don’t know. Some-odd-minutes later I finally finished my very productive time wasting maneuvers and tried to return to doing whatever it was that I was not successful doing before I distracted myself from earlier.
Is it working? Am I focusing better? You tell me. What do you think?
This is what I was doing…. I asked myself, “How many filters could I use to make the same cat, in the same pose, look cool?” You be the judge.