Bipolar – When We Fall

Falling Alone is Terrifying.

I never thought I’d have the great backyard that my yard is becoming. Two of my kids are making it into an amazing place to hang out. They’re constructing raised gardens and putting up a trellis for the climbing roses too! I’ve never had climbing roses. And there are lots of vegetables and colorful flowers. I was gone for a week, and they blew up the garden that was here when we moved in. Someone built a pergola by the garden, but here in WA when it rains, that’s not a load of help. We had a guy put fiberglass over the top of it so we can go out and use the previously ineffective and silly pergola in the rain. AAAnnnddd… of course, it leaks. A lot! A seriously, a stupid, moronic and gigantic leaking, leaked, and just damn leaky wet.

Last night the lawn was mowed and the weed eating all done. I was banned from doing any of the work because I’d tripped (as usual) fallen hard on my left knee and arm (my left shoulder has a rotator cuff tear). I couldn’t move my leg for a while. It sucked. I had images of the “Help! I’ve fallen and can’t get up.” commercial in my head. Later on, my eldest son said he had been thinking the same thing. We had a good laugh over it.

The next day Kyle, the same son, skipped work so he could come and walk with me. I was afraid I’d fall again. I’ve been knocking over things every day. Every single day. Coffee travel mug? Got it covered – all over the floor. Water bottle with lemonade? Yep, the hardwood floor is really clean except where I missed it. Now it’s just sticky in places and gathering dust. I guess I’ll be able to find those spots easily enough.

Today I made two messes. The second one was pretty spectacular. As I started crying, I noticed that my night pillbox had opened and three nights of pills spilled on the carpet. We have four cats and a dog, and I nearly freaked out. I had to leave. What if I missed some of them?

Why is this happening to me? Don’t I have enough to deal with without this silliness?

I see a neurologist like next month sometime. Originally it wasn’t for this dropping, knocking and generally blundering along with business, but I think that’s what we’ll have to talk about. Right now I have something else on my mind. Okay, I’m having all these weird issues. The question is what am I going to do now that I feel like I’m losing it?

Bipolar Disorder very often comes dancing along with another illness as you may already know. I do line dancing with ADHD and a few other dirtbags that are better left in a Looni Balloon (not to be confused with Looney Tunes) flick destined to be beaten with a gigantic red rubber hammer where no one will cry over the violence of the act. Sometimes the fear and panic provoke anger and even rage. It seems best to leave such emotions in

I have no spiffy answers for you, but I can tell you what I did to survive my day and end up where I promised I would be.

First, I called my daughter at work. It went to voice mail as I expected. Then I texted her “911” and dictated a message to my texting app. Next, I let her know that whatever my phone put in the message was not my fault because I wasn’t going to read it over for mistakes and that I was taking half a “chill pill.”

Second, I called my son that lives three minutes down the hill from us. He didn’t pick up either. I texted him as well.

The whole while I searched for help I kept trying to breathe. I’ve been practicing a breathing method? Is that what you’d call it? Anyway, I couldn’t get it right so I gave up and let myself just breathe.

It was going to be okay. Right?

OMG! I’m home alone. I need to go babysit my mother’s elderly dog. I’m trying not to freak out, how am I going to get there? It’s important. I have to go. My mom needs a social life. I HAVE to go.

I had my Bluetooth stuck in my ear by this time and was talking to Kyle. He was gently helping me back down. I knew today was his only day off, and I felt bad about bothering him, but he talked with me anyway.

Weird that I’d be thinking of how I was bothering my kids right?

Yes, I do have another son. This one is very hard to reach. He lives with his wife fifteen minutes from our house. Scott, well he’s not the topic of this post, so maybe another time he’ll come up.

I eventually arrived at my mom’s after listening to an audiobook all the way over here. It was a thriller. Maybe not the best choice for this drive, but there it was.

I explained to her what my week was like. At first, it was amusing because I’m always clumsy. Then I got to the point where I fell two days in a row and then escalated to dropping and knocking over more things more often and larger in size.

This is plain silly.

Peel away the story. Remove the falling and the dropping. Strike out everything, but the panic, the difficulty breathing, the 911 messages to my kids, the chill pill and you have my mind reaching out into my world and mixing stuff up. The important things to take away are that I had a system set up already that let me reach out for help. I also could have called my second son and my mother. Everyone knows the drill. Mom (Robin), 911 text – something is very wrong.

I strongly urge you to create your own emergency plan. Get some of your people in on it. You will quite possibly need to educate them about Bipolar Disorder and how it is with you. Tell them what kind of help you may need. If you feel that you just don’t have anyone to trust, and yes, you should be able to trust them. You may be putting your life in their hands so make sure this is the real deal and not just an acquaintance that you want to get to know better. That’s not the person I want you to enlist in your wellness plan.

We’ll talk later about what I like to think of as a wellness emergency plan.

  • Reached out to my people
  • Half a “chill pill”
  • Audiobook
  • Two ice cream bars
  • Talking with you

I feel much better now. Time to do some work.

All my best,

Robin

Bipolar and Back in the Saddle

My dad, the best cowboy I ever met.

In no uncertain terms my dad used to tell me to get my butt back up and do it again! It didn’t matter if it was a horse I’d fallen off of, which happened more than I’d have prefered, or if it was a friend I felt treated me wrongly. Do it again. Don’t stop.

I’m so exhausted. I’ve done so much thinking and writing notes and making Google docs from my iPad in the middle of night… I think you get the idea. The engine starts to turn over but it just never does.

Pressured speech – Bipolar, yeah, I do that.

Know what scares me more though? What keeps me tied so very tight under that horse I’m not going to fall off with chains, in the mountains, in the cold. What scares me more?

Racing thoughts paralize me.

I’ve been trying to slow my mind. Meditation. Exhaustion. Yelling. Denial. I don’t know. My attempts to do this have been weird.

My dad, the cowboy, is gone from this world. I can’t hold his hand or ask him if he thinks something is dumb. I miss the smell of … whatever the newest hobby he was into smelled like. Woodturning for example. Loads of smelling to be had. Fishing, drag racing, raising and training horses, woodturning (did I say that already?), stained glass. Smells. A dad smell.

I wonder sometimes if he looked at life in a way that I need to emulate. Look, he got mad, sure. He threw things, yelled, swore, threw more things, swore some more, made really horribly scary angry faces at us… But he developed time alone and away from everyone when he did these hobbies. I think going out in the RV and making stained glass were the only things he shared with my mom. Oh sure, we all rode horses and shoveled… you know. But I wonder if he could reset during those times.

Did he have racing thoughts too?

He once told me “You’re smart and you think faster than other people do. You’ll be done thinking about things before they start. You’re just going to have to deal with it.” (This is totally true, he said this. Okay, something like it.)

I mention this because I wonder if he saw this particular difficulty in me at that young age? I did show signs of Bipolar at a young age and, I admit, I was a shit to live with, but did he know? I don’t know how my mom didn’t send my dad leave me in the mountains somewhere.

I just never can slow my mind down. Unless… unless it doesn’t work at all. Chained, under the damn horse, in the mountains.

I took a video workshop on ADHD earlier this year. 10 weeks: 3 days in group for an hour and some time with an accountability group the other days. I learned a lot about – I learned that I don’t understand time. If I’ve mentioned this before, please hang in there. I’m just about done.

I am trying to build an editorial calendar where I can put ideas and things I feel strongly about. I can set them in boxes, and then I can move on. And when I’m stuck, silent and chained, I can see the boxes and what I’ve placed in some of them, and I feel hope. I force myself to put something, anything in at least one, little, short, 15 minute box – no – five minute box. Let’s settle with one minute. Then I can be done. I can do that. One minute at a time.

Tonight I’m in a brain fog. It feels like today has just slid on and on. Well, now I’m going to put on my cowboy hat and sit down. I’m gonna push back my cowboy daddy’s recliner (which I insisted on having I have despite the fact that, well, you’ll hear that in a second) I’m going to have to give it an extra shove and scoot my butt all the way back – and then I’m gonna swear. I’m gonna swear because the remote or my iPad or my book or my coffee or the kitten or whatever is way too far for me to reach.

I’m 5′ 3″ on a stool. When my butt scoots back in the seat my feet fly up off the ground and it seems I always wiggle them around like a very young kid. It never fails to amuse me that this was my dad’s chair. When I’m leaning back and can’t reach anything, and no one is around for me to ask nicely or hollar at or beg to get whatever I’m reaching at for me, I claw my way to the right side of the chair and start swing my arm around. I can’t feel anything so I keep at it. I can see myself in my mind’s eye and I know why the kids don’t help me – it is too damn funny to make me suffer! Little legs wagging up and down, swearing and muttering. Yeah, that’s funny, when it’s me.

My dad was a cowboy. What have I learned from him? Well, I have my eyes closed right now and I’m listening to the wind roll over all the plants and trees and bushes and in my front door and the open windows
(it is always windy here)…. and now I hear the bass of the moron driving up the hill in front of the house… and now I hear the wind.

Breathe. In 5 hold – count to 6 – exhale for 8. Do it again Robin. Do it again. Hear the wind. The wind here is the same as it is in the mountains or on the ranch? Daddy, he was the same wherever he was too. Oh we believe he had Bipolar 1 like I do, but I think he found better ways to manage it than I do.

When I feel I’m stuck under the horse I also feel broken. I feel like I can never be mended or fixed… or useful. Never mind that. First thing is first. Racing thoughts or frozen ones. Ouch. I think… I think that I’ve decided I’m not broken.

I believe that belief is everything. Yes, I acknowledge that I have an illness. Or do I? That’s a whole other train of thought so lets run quickly away from that. I have decided. Here and now. Maybe not tomorrow or tomorrow night. But today, now, I don’t believe I’m broken and can’t be fixed. I’m just stunned.

Stunned.

Fall off. Stunned. Get back on and go again.

I don’t want to be trapped in my own head. Time. Use the calendar Robin. It’s a better idea than you think. Stop being subborn. You’re not a jackass. Do it. It will make the chains loose.

When the sun sets it all ends with me. Counselors are left in their offices. Partners are in their own heads. Hopefully. Kids are in bed? I’m left with me. I take the drugs. I go to therapy. I try to act normal. But I am stunned.

I’m going to fill in one box before I go to my room to hopefully sleep for the night.

I’m closing my eyes and listening for the wind. If you’re indoors and can’t actually hear it, then make believe that you do. Remember, believe is everything. Hear the wind. Let it take you away.

“Daddy? It feels like I’ve been stunned for a very long while. I feel… and I think… that it’s time to be a cowboy.

Saddle up

Please, as always, leave a comment if you are so inclined.

Do They Come from Within?

Friends - Thinking Time?

Siberia, the Cat, is doing all the thinking in this friendship. Course, Bailey was a youg thing back then. Siberia has gone to live with the stars.

I read something in a description of an online course last night that I found both intriguing and disturbing.

“Emotions are something that happens TO us and, therefore, they’re outside of our control.”

Can this be true? I currently understand that Bipolar Disorder is a Mood Disorder and is thought to be caused by something going bonkers in my brain chemistry. And for those of you familiar with Agatha Christie I will say that it is thought that my little gray cells have gone bonkers. Okay, just the “little gray cells” is from Christie, but it’s still awesome.

I’ve been actively discussing my illness with myself since I was initially diagnosed with it in…. ah… before 1992. No, after. I’ll have to look it up. Anyway, it doesn’t matter because I’ve been dealing with myself and all my symptoms since my early teens. (I’ve acknowledged to my dear mom that I understand now what a handful I was and that it was most likely me imagining that I had a rotten life and when my life wasn’t actually rotten. My dad probably had Bipolar Disorder too, that made for frequent fireworks.

Wow. That was that too much? Let’s see if I can make it better –

I grew up in an affluent tourist town nestled in a beautiful harbor in Puget Sound, WA. I didn’t have bling, a rock star car, or cloths to die for. Instead, I had a horse, dogs, cats, acreage, forest, forts, climbing on haystacks, and cops and robbers.

When I was at the age when I should know right from wrong I started misbehaving. Like, misbehaving on purpose. That is, I couldn’t seem to help myself. Much of the time I felt that I was the only right one and that everyone else was wrong. I was always angry, so angry.

My father misbehaved.  Mom suffered in silence. As I’ve said, my symptoms began early and grew worse and worse as the years went on. Is it real? Or is it Memorex? (You’ll just have to Google it.)  {Oh man. I’ll keep working on my pressured writing. These things… they tend to stay around. Do you agree?}

So… maybe that didn’t help. All I’m trying to say is that my pressured speech spills over into my writing and I tend to go on and on and on…. (sorry!) and that some people believe that my emotions are caused by something outside of my body. It happens TO me, not from within me.

Is something being done TO me? This idea is very troubling. Okay, no. It is down-right frightening and deserves to be thought on some more.

You may have noticed that I tend to question everything. I spent about 25 years chasing god just to see if he existed. I didn’t want to spend my life in service to a god that didn’t exist. This was my greatest attempt, at that age and with no knowledge of what was going on, to try to help myself. It didn’t work. Knowledge failed. Prayer failed. Was it I who failed? Exorcism failed.

I admit that there is definitely something wrong with my brain. (Grrrr…. I want to argue about that last sentence – maybe another time.) My moods or my emotions or whatever, whack my thinking around until I make very bad and sometimes dangerous choices. My thinking seems to meander and become clouded. Or, the coals get stirred, and mania sets up house and lights it on fire. Then I’m all ripped me up and anything I do or say will probably smear ash on others.

I’ve been thinking for too long what my next post would be – this wasn’t it. This is the result of what I’ve read and thought about just yesterday and today. I hold these ideas, these issues, in a very important place in my mind and in my life. Beginning to understand some of these things may help me, and I hope you might find help.

I want to learn more clearly what’s really going on with/in us and what WE can do about it. Is there any hope that we will ever feel – normal? Actually, I like to think that “normal” is my being able to be at peace all the time. I believe that there must be a way for us to know peace and even, control ourselves – if we want to.

I plan to toss these ideas around in my next post, but you know how it is – can’t keep my attention from zipping down the crazy rabbit hole every 27 seconds. <wink>

Bipolar Disorder + ADHD = One hell of a busy brain!

ROBIN, slow DOWN!

Don’t tell me what to do!

See ya next time and thanks for staying for a while. Forward me to your friends if you are so inclined or maybe you could sprinkle unicorn sprinkles around. Maybe they can fix something.

Redux – I’m Sorry – Again (Bipolar)

Bailey having a serious nap
“I’m sorry… again.” How many times have you said that or thought about saying it? If you’re like me, you do it a boatload.

So, my dear Reader, I’m sorry again. I begin writing and feel good about how the blog is going. Then “STUFF” happens and – I think you feel my pain.

Well, I think you probably understand. If you’re reading this and you have Bipolar Disorder or some similar struggle you probably understand. It’s like we all get to belong to this exclusive club where the membership fee is high (your life), and the code is an unending trauma. I have given it a name. This thing I’ve created is where I want to put all the things that I don’t think belong here. I want this place, to be honest, interesting, emotional, sometimes educational, and for sure always unique. You’ll hear from me very soon. Life is going to explode soon, and I think I’ll be better if I have more of my writing as a source of stability.

How’ve I been doing? Pretty darn good. I told my med provider that this last week. I told her I hadn’t felt this well in years.

Now, I last saw her in December so she has no idea what’s going on in my had. Maybe I had chocolate cake for breakfast or something. She doesn’t know. But, my saying I was doing pretty well extended my next visit to 6 to 8 weeks. 6 – 8 WEEKS!! And yet, I said that would be fine. Practically that night I had an explosion.

I rather prefer NOT to have explosions anymore thank you very much!

What have I been struggling with? Communicating with my family. We don’t understand how it’s done. It seems like everyone is expecting agent 99 to pop in with a decoder shoe at any time!

OMG – Okay. This afternoon I took a nap that lasted longer than an hour, and yet, I’m still so tired. I’m going to sleep now (here’s to hoping) and work on this

Until next time may you look up and see stars in the night sky. (Yow-zah! I just fell asleep sitting up again. Time for sleep for real. Good night my friends.

Robin, Un-niche-able

 

Bipolar and Panic?

Hi, hullo and greetings to y’all!

Wow. Here I am again. I mean “wow” because that’s how things tend to be. I struggled so hard last year to keep my brain together and spending time angry, confused, abandoned and really isolated that it never occurred to me that I was… acting normal.

Yeah, Kind of odd. I know that.

I have an objective, errr… an intent I suppose, to tell you what’s been going on in my head and my life just briefly before I fall asleep. At least that’s the plan. The sleep part is for sure the plan.

I just finished a challenging and possibly lifechanging 10 week webinar course that taught us about how coming together like that in the small group setting to learn about each other and about the particulars of our experiences, what we hoped to learn from the course, and more. I acknowledged that I have ADHD. It was easy to finally feel like I wasn’t a fraud because you know what? Every single other person there has it too.

I feel liberated from those few people who felt that just because I was told that I had these extra letters following close behind the other letters following me, didn’t mean I was trying to be lazy or milk the system. OMG! Milk the system. For what? My monthly stipend of less than $800 a month.

<Do you see how random I’m being? No? I am trying very hard to sound like I’m at least trying to make sense.>

Two things for tonight:

  1. ADHD is a serious learning disability that have a potentially devastating impact on myself and those around me. Worse yet…
  2. Bipolar Type 1 is the name of my little world that has no bounds. I’ve come up against the idea that there is no research or course of treatment suggested when the client has both Bipolar Type 1 and ADHD together.
  3. Sorry, there is a third one after all. If no one knows how to treat both diseases in the same person’s head at the same time… Yeah, I don’t want to go there just now.
  4. Geeze. I’ve been hysterically everyday so far this week. I’m just sure that if anyone were to look into my ears you’d see my brain turning to liquid!

{Remind me to tell you about the breakthrough I had with my bonkers Med Provider and about hysteria just underneath the skin the next time we talk.}

Knowing what I do about Bipolar, and now what I’ve learned about ADHD I think I’m justified in saying that… I’m screwed. <Wait! That should have been in caps… sec.> I’M SCREWED!

Treatment for one can make the other worse and so forth and so on till well after the serpent has eaten its own tail.

It isn’t as though I want to be unemployable. It just happens that this is my reality in the here and now. My shouting at walls to make them move over … now, that sounds silly even to me.

Please pardon me. I’ve been sleeping an hour or so a night then I will eventually fall doing something like sitting straight up or using my laptop or talking. So, then I crash and sleep for two whole days. Why is this such a problem if I’m on disability? That’s way too loaded of a question to talk about while I’m falling asleep. But it will be part of my next visit with you… very soon.

I’ll be posting a link to Eric’s podcast and his webinar soon incase you’re interested. The cool thing was that I found a whole ton of stuff that I could apply from one illness to the other.

Sleep well my friends. Sleep well.

 

Robin