Angry, Raging, Bipolar

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I scared the ever living poo out of my fancy beta fish a minute ago. I don’t think I’ve ever seen Victor move so fast! He hid on the bottom and refused to take his dinner from me. All I did was walk up to his tank when he didn’t see me coming.

Fish. I feel rather like a fish.

You’d think we’re fish as much as we’re listened to when time after time we beg for different medication. Something has been going on with me mentally for around 3 or 4 months. I just thought it was growing anxiety because I have one more quarter to go and then I’m finished with school. I’ll need a job. I’ve never been able to hold a job for over a year. Even my own brother had to fire me because of my behavior, and my anger.

I take that back, I have worked for longer. When I worked for myself, I was able to manage to work with the management.

This feeling that’s been growing… I told my family in December that I’d had thoughts of hurting myself, and I honestly was. I’d had those feelings on and off for most of my life. Telling them seemed to help. Maybe it did. I felt that way tonight for about 10 minutes.

Then despair, anxiety, rage. Do these feelings take your face and squeeze it till it aches with the pressure?

Anxiety. It has been growing in my mind like a pustule about to burst black tar all over my mind.

I came to understand yesterday, through thinking over the end of the quarter problems and verbally fighting very loudly with another student – repeatedly, a colonoscopy I had to have two days in a row, a painfully torn fascia in my driving foot in December that is still painful (I’m so sick of this boot thing. It causes a painful lump on my shin bone.), intestinal troubles since Christmas, and runaway away anxiety I continuously tell my med provider about (I even take my counselor with me to make sure she’s listening. Oh yeah, that’s working great.)… I get it. I’m in a rage.

I used to live every day, every moment consumed with rage. I wasn’t a good kid. I wasn’t fun for my family to be around. My mother has finally agreed with me that I was, a terrible child. I was full of hateful and blinding – rage.

I have those feelings again. The ones I fought so ineffectively to be rid of. That consuming anger. I feel like I’m about to blow up on someone who probably did nothing to me. It’s just this thing my brain does sometimes day after day, month after month til years are wasted in fury and hate or like now when I’ve been crying out in fear and pain only to be ignored by those I dutifully trust my life to.

I’m so angry. My mind burns and I want to break things and hit stupid people. But I don’t.

I am often moments from saying things that could get me kicked out of school or arrested. But I don’t.

I’m so tired of fighting all the time. I just want to have a life free of pain. No more arthritis or Fibromyalgia. No more being too big to be healthy. No more chronic back pain. This is no life for me. This isn’t what I signed up for. I’m SO ANGRY! It’s like emotional cancer that manifests in feelings that most people can say they understand, but they don’t. Not really. If you have Bipolar Disorder Type 1 and you have had violent, angry, manic episodes you probably understand.  If not, please don’t give up on me.

Question is: what’s gonna give?

Addendum: Read on, please. This changed everything.

This morning I was listening to a TED Talk called, “the role of human emotions in science and research. Great title, right? Sounds like just what I need. At the end of her story, Ilona Stengel said this: I do not suggest that we should use feelings instead of facts. But I say we should not be afraid of using our feelings to implement and catalyze fact-based science and innovation. Emotions and logic do not oppose each other. They compliment each other. And they reinforce each other. The feeling of being dedicated to something meaningful, of belonging to something bigger, and of being empowered is crucial for creativity and innovation. Whatever you’re working on, make sure that it matters, and take it to your heart as much as you like.” [I’m pretty sure this isn’t a word for exact word match.]

Suddenly I understood. All my life I’ve believed I’ve had a purpose. I thought it was within the church, but I was always told, “No, it’s not time now Robin.” And my heart would be broken and my life stripped of meaning.

I believe without meaning, we relinquish our lives to the feelings I have been feeling. For this moment, I remember the meaning of my life. It will not be easy to follow. It incurs great emotional risk (something people with Bipolar Disorder should try to avoid). But if I can remember it. If I can remember it every moment of every day, I won’t have to rely as much upon others for the stability of my mind. My mind will be fighting my emotions with logic. I’ve done it before and I’ve succeeded. I must try again. My children have left my home. They’re all grown up. That role of the parent is gone. I feel like I have no purpose.

But I do. I do. I’d just been swallowed alive by the vomit of extreme emotions that allowed rage to consume me. For this moment. For this morning. I say no.

She said: “Whatever you’re working on, make sure that it matters, and take it to your heart as much as you like.” I am taking up my mission again. I must. If I don’t, then what’s the point? 

Do you understand?

What’s your mission? Tell me.

Robin

 

 

 

Bipolar/Colonoscopy/My Birthday

On the 3rd, I turned 55. On the 6th, my eldest child turned 26.20180203_183832

On the 8th I had a colonoscopy. I remembered to take my chill pill ahead of time so it was just mostly terrifying. The doctor came to talk to us after the nasty experience was over. Good news! I didn’t see anything. But, bad news, (despite all my crapping my pants) you weren’t clean enough for me too see far up and get a good look. We’ll have to… do… wait for it… AGAIN. Would you like to reschedule for tomorrow or come back another time? OMG! I just went through all that pain and mess and ruined clothes and bath mats and impromptu showers and crap! and you want me to do it AGAIN??? I just missed a whole week of classes – MIDTERMS – because everyone was so worried that the reason I was crapping all the time was that I had cancer. And now you say I wasn’t cleaned out enough? Reschedule. Oh hell no. This is happening tomorrow. I’m not taking more time away from school for this crap. (my chill pill seems to have failed me completely at this point) We rescheduled for the next day, Friday last week. They prescribed some special super duper pipe cleaner to empty things out to the max this time. I’ve had this stuff before. Makes you want to puke till you pass out. No lie. I was so sick. Did I finish it all off like they threaten you that you have to? Hell NO. You wouldn’t believe me if I told you what happened to me through this week. Thursday, when he said we had to reschedule, I crapped all over the bathroom floor before we left. I thought he said they’d do a couple enemas to try to clean things out. Huh. Wonder where the hell that all came from? Enema my ass.

So Jessica and I went back the next day after another 24 miserable hours of me needing to poop but never feeling that “urge” to go that they talked about. I just went. And went.

I was so, so stressed out. I was mad. I’d had it. I forgot to take my chill pill. When the little woman (yes, I’m still mad) finished my intake (vitals and junk) she took me to this huge room, all by myself (well, my anxiety was with me). It was freezing. How long am I going to be here? Should be 20 to 30 minutes, just depends on how things go. Excuse me?! It’s freezing in here. She brought me a single warmed blanket. A few minutes later she comes into the hall and puts another woman in the room next to mine and says it will just be a few minutes. As she was leaving the woman I said sort of loudly something like this:

“You realize they’re just putting us back here like airplanes in a waiting pattern circling an airport don’t you?”

She brought me another blanket. I’d been banging my legs on the huge exam chair I was sitting on. I thought I was going to freeze my butt to it. I can’t even imagine what that room is used for. The stupid woman had asked me if I was or could be pregnant. I had a D&C years ago. That has always been enough information for the person asking to understand that I meant – no, can’t happen, no way. This woman (and I’ve been alone since 1999) insisted that I could be pregnant in one of my tubes. I nearly bitch slapped her.

Okay, I’m still mad.

Yesterday in one of my classes we’re working in groups. Well hell, all my classes are working in groups. Anyway, this young bossy, know it all boy, who is maybe, maybe 22, informs me that I can’t say that I’m handing out postcards to people on campus and say to my potential backers that we’re hoping it will be given to a student who is stressed.

I can’t say what? You can’t say you hope they’re stressed. You can’t imply that people are stressed. Are you insane? This is basic marketing. You develop your event. You target your audience. Then you market to that audience. Most college students are stressed. Chances are if I give one of them a postcard about our event (to reduce STRESS if you can believe that) on stress… well, I could go on and on. The professor had to come to the back of the room and get us to stop “yelling” at each other 4 times.

The stupid boy would freaking lie to her. He’d tell me to my face that I couldn’t say stuff. Then I’d say exactly what he said to the prof. Then he’d lie and say he didn’t say it.

Then, the little toenail lint roll had the gall to say that he was going to be the first one up to introduce our topic and talk about how much terrible stress he’d been in and missed three weeks of school because of it. I asked him if he was going to try to get the audience to empathize with him so they would be on board with our pitch. He said no way, he wasn’t going to be personal. What the hell? I’m over this boy.

The wonderful professor reminded me that I’ve had a really rough quarter. I really, really have. My last experience last quarter with a group was a disaster too. This time I promised myself I wouldn’t let anyone walk all over me. So, every time he opens his mouth he’s telling someone to do something. I’m probably older than your mother you child. You want to talk about stress? I’ll tell you about stress and when I’m done… you’re gonna feel stress!

I dunno. I’ve got one quarter left. I need to pass this science class. I’ve not been doing the homework since my poop apocalypse.

I’m really feeling my brain coming together in a good way with what I want to do when I graduate. I’ll need a part-time job while I finish setting up the websites and get the book re-typeset and printed. So exciting! Then there’s the resource center for people with mental health difficulties – cutting the crap – people like me who have Bipolar and PTSD and chronic pain and ADHD and anxiety and a very short fuse.

Wow. It’s been a long week right? I feel like things are teetering on spinning out of control. Jessica and I are getting Blue Apron meals three times a week. We both eat like crap… okay… translation… we don’t eat anything. So now we’re eating and cooking together which is super good for both of us and then we do homework together. I tend to fall asleep. She likes to wake me up. Good match.

Well, I’ve talked and talked at you. I’m sure it’s enough. Oh, wait! Two women I’ve met at school, within a week of each other, told me they wanted to be divorced but needed an income first. Both are super stressed. Both are not handling the stress well. One laughs when she’s stressed. I sent her to a new primary care doc so she would feel freer to talk without feeling weird talking to her husband’s doctor. This doc is giving her a chill pill and sending her to counseling. Excellent. The other woman is already taking a chill pill. I recommended going in and telling them how it isn’t working. She spent most of yesterday barfing from the stress.

What is it that there is so much stress and debilitating anxiety around? It scares me. And what is it with young people today telling me I can’t say that anyone is something specific, even though they are that way and they admit that they are… I still can’t say it. What the heck?

I did get a nice letter in the mail for Valentine’s Day. It’s from the Gastro people. I don’t have cancer. Really, you couldn’t have just called? A letter? A damn letter?

People we need each other. We need to shake hands so that we can physically touch someone without being arrested. We need to say thank you to customer service people. We need to take the concerns of other people seriously. We need to respect our elders (you little lint roll). We need to find healthy ways to reduce our anxieties. If I can’t control mine better the next time I might not just argue with the boy loudly. I might yell. Wouldn’t that be awful?

Insidious Black Box

I apologize for the length of this post. Please consider reading the entire post. It’s very important. Your life could depend upon it. (Robin)

Emotionmasks insane faces

I take two medications that I considered to have a Black Box warning. They both depress breathing. Together they can stop my breathing altogether… There are other dangers.

I have chronic pain with Bipolar Disorder and Generalized Anxiety. I am prescribed both Oxycodone and Clonazepam by two different providers. They both know that I take both medications.

I see a pain management specialist for my pain. I have for some time now. To be treated there, I have had to sign a contract that governs my behavior with regards to taking pain medications, I have to take a pee test every time I go in and they count my pills every time as well.

My med provider handles my Clonazepam prescription for anxiety. I suffer from extreme anxiety. Sometimes I feel like my brain is going to explode. Recently, this woman, who is the 4th or 5th provider I’ve had since I started going to this clinic, told me that I’m more likely to kill myself because of anxiety rather than depression. I was always told that a depressed person was more likely to commit suicide when they started to feel better. When they started feeling better, they finally would have the energy to follow through with their suicidal inclinations. Apparently, there is more to it than that.

My counselor and every med provider I’ve had is intimately aware of my massive anxiety and my inability to get it under control. We’ve tried all the counseling type of solutions including Cognitive Behavioral Therapy (talk therapy), mindfulness and other techniques. I’ve not had success with any of them.

My med provider is content for me to only take Lamotrigine, which is primarily to treat my Bipolar Disorder depression symptoms, and not to take anything other than Clonazepam for anxiety. From talking to her, it appears that this is primarily to treat the depressive symptoms that I experience. I have not been able to get any of the med providers who have treated me to give me anything for anxiety other than Clonazepam.

She, my med provider, told me at our second meeting, that people with anxiety are more likely to commit suicide than people with depression. Since I suffer primarily from anxiety, you would think someone would have warned me of this. I understand now why I feel so self-destructive while I’m exploding with anxiety.

She has told me that her goal is to get me off the Clonazepam completely. Now that I’m taking my runaway anxiety and the real chance I will kill myself because of it more seriously, I’m also taking the mix of these two medications seriously. I always have, but my frantic response to my anxiety has created a situation where I’m so afraid of what might happen if I stop taking the drug for anxiety.

I’ve always felt like I’m most insane when my anxiety is at its peak.

I understand that long-term opioid use for chronic pain is not the most effective way to treat it. I’ve wanted to find a different solution for a long time. My pain management provider doesn’t offer other alternatives than pain medications.

I normally don’t want to die. I’ve always had urges that are normally short in duration towards it, but I haven’t had times when I sit there with my bottle of Oxycodone ready to take it all. But, I could.

I’ve never told any of my mental health caregivers that I have suicidal thoughts. I know that my community does not have good facilities to treat acute mental health emergencies. I don’t want to become one of those people who is shuffled into a hospital emergency room with a guard sitting outside my little room. That’s what they do. I have first-hand knowledge of this.

So what’s the answer? Do I chance dying in my sleep? Or do I chance ending my life while I’m awake? Both are real dangers.

I’ve decided to deal with my feelings of self-destruction now. With the danger of the two medications and my new understanding the relationship between anxiety and suicide, I have promised my family that I will talk to my counselor on Wednesday when I see him. I will admit that I think about suicide. That’s a huge step for me.

I’m afraid. Admitting how I’ve been feeling for years is like admitting that I can’t control the one area of dealing with my mental health that I always felt I could say I didn’t have a problem with. I’ll finally be admitting I have no control over my depression or my anxiety in relationship to staying alive.

As I say, I don’t want to die. When my anxiety runs away I cannot always control myself. I can become violent and destructive. I break down and cannot function. I become paralyzed yet also hysterical.

Yesterday I talked to my mother and all three of my kids and admitted the truth to them. My youngest who is a psych major at the same university that I attend (so is her partner) said she had been wondering if that was a problem for me. They all agree that they would rather I call them than I call a suicide line. I’ll talk to my therapist about that.

I have tried to learn to practice mindfulness several times in the past. I never fully committed to it. Mindfulness was just part of the learning experience in one of my classes I just finished. It’s time for me to review the materials I have about it, I have lots. I need to try to learn how to harness it’s potential in earnest this time. My life depends upon it.

I have a particular fear: I’m terrified of my anxiety. I know what it does to me. I sometimes feel the insidious devil of insanity creeping through my mind trying to take over, and it literally shreds my mind.

If you have any Black Box warnings for medication yourself, please take it seriously. Now that I am self-aware of my true situation I’m ready to find a way to deal with my symptoms.

 

My main medications:

Chronic Pain – Oxycodone / Nucynta

Anxiety / PTSD – Clonazepam / Benzodiazepines

Bipolar Disorder / Depression – Lamotrigine

 

Oxycodone – Warnings

“To make sure this medicine is safe for you, tell your doctor if you have:

  • a history of drug abuse, alcohol addiction, or mental illness
  • if you use a sedative like Valium (diazepam, alprazolam, lorazepam, Ativan, Klonopin, Restoril, Tranxene, Versed, Xanax, and others)”

https://www.drugs.com/oxycodone.html

Clonazepam – Warnings

Risks from Concomitant Use with Opioids
Use of benzodiazepines, including Clonazepam, and opioids may result in profound sedation, respiratory depression, coma, and death. Because of these risks, reserve concomitant prescribing of benzodiazepines and opioids for use in patients for whom alternative treatment options are inadequate.

Observational studies have demonstrated that concomitant use of opioid analgesics and benzodiazepines increases the risk of drug-related mortality compared to use of opioids alone. If a decision is made to prescribe Clonazepam concomitantly with opioids, prescribe the lowest effective dosages and minimum durations of concomitant use, and follow patients closely for signs and symptoms of respiratory depression and sedation.
(The above Warning is taken from: https://www.drugs.com/pro/clonazepam.html)
Concomitant: (synonyms: attendant, accompanying, associated, related, connected)

Lamotrigine – Warnings

To make sure lamotrigine is safe for you, tell your doctor if you have:

  • A history of depression or suicidal thoughts or actions
  • Some people have thoughts about suicide while taking this medicine. Your doctor will need to check your progress at regular visits. Your family or other caregivers should also be alert to changes in your mood or symptoms.

https://www.drugs.com/mtm/lamotrigine.html

Nucynta – Side Effects for Health Care Professionals

Psychiatric – Common (1% to 10%): Insomnia, confusion, abnormal dreams, anxiety, depression, irritability, nervousness, drug withdrawal syndrome, restlessness, sleep disorder, hallucination, depressed mood.
https://www.drugs.com/sfx/nucynta-side-effects.html

 

Benzodiazepines

Benzodiazepines may be used in the treatment of anxiety, panic disorder, seizures, or sleep disorders.
https://www.drugs.com/drug-class/benzodiazepines.html

 

Brain Scan

brain This morning I’m going to the hospital for a brain scan. It’s for the facial tic I’ve been having forever and because I’ve been falling asleep suddenly and for no apparent reason. I did a sleep study last year and it came out normal so it isn’t sleep apnea. Between this stuff and my Bipolar, ADHD, PTSD, FM, anxiety, RA, OA, chronic pain and all that malarkey I can tell you with all honesty… I’m a bit MORE anxious than normal. I’ve been trying to get all the mental stuff undercontrol by staying on my meds, going to counseling, learning mindfullness and trying to learn to meditate, but it’s been slow going. Oh, and I’m too heavy for my knees. One has been replaced twice and the other one collapses without warning. I’m pretty sure that’s because of the weight and lack of muscle. I’ve been walking my dog Bailey all summer for 1-2 miles all summer 3-4 times a week and I’ve gained weight. Maybe it’s muscle, maybe not, but it’s more weight.

So I’m having my brain scanned. They have me coming in sleep deprived. That’s fun.

Well, I guess I should get ready to go. Wish me luck. May the force be with us all. ;0)

Bipolar – Anxiety Rising

(Sept. 04) I’ve been sitting here trying to think of how to begin writing this and I’ve been getting nowhere. School is coming and I’m stressed out about that.

I have tremendous back pain and I go to a pain management doctor for my pain medication. The doctor that I’ve been seeing for like two years has stopped working in pain management and has opened a family practice. She was great. She really worked with me and worked to manage my pain knowing that I have Bipolar Disorder, PTSD, GAD, ADHD and so on. She was the one who prescribed my chill pill (medication anxiety) that I started taking during the school year last year when I had an anxiety meltdown.

The new pain management doctor started out by accusing me of selling my oxycodone and refused to refill my chill pill. I had a prescription of Oxycodone at the pharmacy to pick up which she didn’t take into account. I didn’t do anything wrong. I don’t like her. I don’t trust her with my health. My next visit to her she accused me of breaking my pain management contract by not bringing in the second pain medication I’m on. I was never told to bring the bottle in with me. Oxycodone yes, the other stuff, no.

My back has been bothering me.

My facial tick is back. It comes with anxiety like snow falls in the mountains… when the cold and precipitation is sufficient, the snow comes. Actually the vicious tick came with my beginning to take Gabapentin gain instead of Lyrica (Gabapentin can also be used for anxiety as well as for FM, which is why I tried taking it again).

FAST FORWARD TO TODAY Sept 28

I’ve been taking my chill pill daily. I survived my first day of classes because of the pill. I usually wake up in a cold sweat whenever anything remotely stressful is going to happen during the day. Like, for instance, going back to school.

Anxiety is such a huge part of my being right now that although I’ve lived in my new house for about two months I haven’t been to the grocery store by myself even once. I needed to buy some poetry books from the bookstore about 20 minutes from my house and instead of just going and getting them I called my eldest daughter and bribed her (I’d buy her a book if she’d come with me) to come with me. I just find it stressful to do things alone. I do not have a rational reason. I’ve done all the thinking and reasoning about my anxiety that my counselor and I have come up with and the anxiety does nothing but get worse.

I stopped taking the Gabapentin and the facial tick immediately started going away. When I’m stressed it comes back. I hope it isn’t permanent.

I see my med. Provider (the gal who manages my mental health medications) Sara in the morning. I’m asking her for something to treat the sever anxiety on a long term basis. The chill pill is great but it’s for a crisis and not meant for long-term consumption.

I get so wigged out about things that earlier tonight I already mapped out in my head the route that I would take to get to see Sara and then called my daughter to make sure that I could get to the grocery store from where I was coming from. I’m planning on going to get some milk on my way home in the morning. I need to do it on my own. I think if I have the chill pill I can.

It’s amazing. I wish I could take it all the time. I’ve been having to use it to go to sleep at night. When I don’t take it I’m awake until after 2 or 3 in the morning. Then I wake up sweating. I’ve even resorted to listening to relaxing meditative music/waves on YouTube all night. I found a channel on my TV provider to listen to that works as well called Soundscapes.

The struggle I’m having with anxiety is so severe that I’ve not been willing to blog and that makes me sad. My counselor has put forth the idea that perhaps my mania is manifesting as anxiety and that It’s really part of my Bipolar Disorder. I sort of hope that’s the case. If it is, I’m confident we can deal with it.

Why haven’t I been in to see my med. Provider sooner? She’s been booked. It’s been over a month since I last saw her. I’ve talked to her on the phone and my counselor talked to her on my behalf too.

Hopefully tomorrow I can communicate clearly how absolutely painful this anxiety is. My counselor is supposed to go to that meeting with me. I hope she can actually make it. It would give Sara a clearer picture of what’s going on with me.

Now, I’m going to listen to Rachel Platten’s “Fight Song” then I’m going to go to bed. I might read for a few minutes. Maybe one or two. Seriously, that’s as long as I’ll read.

I have high expectations for my visit with Sara and Rebecca (my counselor) in the morning. We got this. I have to believe, we got this.