Depression

Bipolar – Changing Meds Again

/ Robin

My title “Changing Meds Again” isn’t meant to be a negative statement. It is a part and a way of life for some people. People like myself.

I have many, many issues in the weave that is ME so please do not take what I say about myself and my plans (treatment and such) and assume they will work, or not, for you. They may, but that’s between your med provider and you.

Anyway. I’m at the point where my med provider (this time we’ll call her Toni) Toni, has put me on a “don’t argue, come see me every two weeks until this is straightened out.” schedule. Actually she told me something about my nerves and getting them to calm down. ;0)

Today I started Lyrica for FM. I’ve been waiting for 6 months for this to make it through insurance. (There’s that word again.) Speaking of nerves, it should help quiet a great many of mine I look forward to the possibilities.

Also, in the morning I start back on Wellbutrin. I was on it years ago and it seems like a good thing to try again.

Toni: “Are you depressed?”
Me: “When? Like right now?”
Toni: “All the time. Over all the things, would you say you are mostly happy or mostly sad?”
Me: Hemming an hawing… “Like all the time?”
Toni: gives me a look of ‘honestly, you silently scream depression creating irritation’
Me: regretfully admitting “Okay, yes, depressed. I didn’t want to admit that.”
Toni: “Because it confuses you being a mixed Bipolar?”
Me: “Yes!”
Toni: “Because you’re a manic depressive.”
Me: “Yes!!”

I’m on wellbutrin. I start taking it tomorrow (Thursday) morning. We shall see.We shall see.

Heres my medication list for Bipolar and other mental alphabet soup:
Lamictal
Latuda
Wellbutrin
Diazepam
Lyrica (not directly in the list, but a major player in my new “list”)
Oxycodone  (not directly in the list, but a major player in my new “list”)

I fired my counselor. Talked to the head guy of counseling assignments. I explained the problem. She is only 4 years practicing while I need someone who can handle me. All of me. From the head to the toe… toes. From my head to my toes. Eh. From Arthritis and FM, to Bipolar and ADHD, from chronic pain to degenerative disk disease/arthritis in spine. I need someone who can help me focus and go through my day still being me but maybe being more experienced and work in biofeedback, mindfulness and neuroplasticity. With my medications I think this is the next logical step.

Medications are not going to fix me. They will hopefully allow me to function without… you know don’t you? Without the craziness running what feels like all the rest of my life.

I need to be able to manage. I must be able to succeed and what I want to do.

Bucket list? That’s for babies. Try barrel mitigated by soup.

Be well my friend. More later. I’m going to begin answering questions some people have been asking. I hope it will be helpful.

Ciao

Bipolar – Do Not Leave

/ Robin

While I sobbed last afternoon on my front porch my puppy sat off to the side confused.

My mom listened for a minute. I was short and concise. I was hysterical. I couldn’t stop. I couldn’t breathe.

She told me to call her later.

Then she drove away.

Bipolar – Insurance

/ Robin

I’ve been on the phone last Thursday, Friday and today with people of perhaps challenged intelligence trying to un-mess my daughter’s health insurance. No luck so far. Maybe tomorrow.

The thing that kills me about being Bipolar and insurance is not having or not having it… I mean insurance. The thing that kills me is that being both Bipolar 1, ADHD and being able to become depressed in the barest moment is that despite finally succeeding in getting my prescription for Lyrica cleared for my FM (Fibromyalgia) I’m depressed. (I’m a mixed state Bipolar so I’m very good at this little trick of the brain.)

I’m frustrated and angry and depressed and frustrated and angry and depressed…. I haven’t experienced more than a few minutes of gladness for the Lyrica victory. I’ll have to focus on this more and try to let the victory overtake me by it’s great possibilities for relief for me.

If you have BP or other such thing, you may find that you have difficulty with your health in other areas. I was reading an insurance fact sheet today that said that disabled people (of which I am a subset of) tend to neglect their health… Google it darling. ;0)

I have my father’s teeth. Neither of us have any. I’ve not been able to wear the standard dentures that the State provides to those on disability insurance. I’m hopeful (I hope) that my insurance will cover more costly ones including posts that will done at the University of Washington. I think it’s the School of Oral Surgery. I have complicating issues so I think, rather, I trust and hope, that the new face will be covered.

I have to be honest, the fear that insurance won’t cover a new face for me terrifies me. I’m 51 years old and I have no teeth. I cannot wear regular dentures.

Add my lack of ability of what I consider the ability to smile a truly joyful smile to my Alphabet soup and you have a mixture that’s hard to swallow. So to speak. Well, I did choke on a blueberry muffin this morning at breakfast.

And now… I simply cannot reread this. I hope that it is at least a little understandable. I’m very frustrated and irritable and need to explore my current method, well, my current exploration of a way, to reign myself in so I can slow down, if not be peaceful before bed. I’m speaking of something called Mindfulness.

Mindfulness… Do you know it? So far my friend it seems a good thing to hedge my bets by. (Or is that “with”?)

Good night.

Please write. I reply to all letters.

Weird Parenting – I’m Eclectic and Bipolar

/ Robin

I’m eclectic… I get it from my brain. Honest.

Back to being a pissy parent. We all have our pissy moments right? Ask your kids. If you allow them to be honest I’d guess they’ll say you are (sometimes). I am. Remember? But what next?

I can’t tell you how to be a great parent. I don’t think there is a cookie cutter version of the “perfect parent”. What I will do is share some of myself and my life; our family life. I’ll share some of the interesting (read… weird) things I’ve done in my journey and efforts to be a great parent. That was always my goal. I never wanted or want to be a good parent. I only and always want to be an excellent, amazing, great parent. That’s all.

One of the things I’ve found to be most interesting and thankfully very workable starts with me. I’m super massively curiously. My kids sometimes think I’m too curious. I want to know all about so many things. As a Bipolar parent this can come in handy. When I’m functioning pretty well (not screaming over “spilt milk”) and can stand on my own and all by myself I love to do weird things with the kids.

We live about an hour from Mt. Rainier National Park. It is an amazing park. I could pick the kids up at school and be up at Paradise in under two hours. We ate lunch or a snack out of the back of the truck (car, after the Explorer was repossessed). The very easiest food for me to pack, and one that doesn’t cost much, was to get a brick of cheese (not a giant one), a tube of summer sausage, crackers, 2 pops for each of us, bottled water, and some candy. Oh, and my pocket knife, to slice the cheese and sausage.

We have been poor, very poor, since any of my kids can remember. I have always hated that and resented everyone, including myself, for it. I never thought it was fair. But that was just how I “felt”. As I learned and grew I’ve come to understand that at this point in life it just is what it is. There isn’t any sense beating myself over the head about it or raging at family members who have $.

The thing was I wanted to find things for us to do as a family. I wanted them to see we are family and we will always be here for each other. I started with the fun things like taking off on spur of the moment wild trips to the mountain. None of their friends could say they did that.

What am I saying to you? I’m saying this: my mind wanders hither and thither all the time. Like Alice said, “I think about 6 impossible things before breakfast.” That’s always been me. I was stuck in depression much of the kids’ childhoods… growing years… before high school. I really fought myself to do the things that I knew were right. Providing a fun and fast trip to get us all outdoors in some of the most beautiful places in the world. (I mean that every place we stopped for pictures or to explore or just anything, that individual spot was fun at that time. That moment.

I’m curious, remember? Shaking off depression and plunging into a floating maniac free fall. Okay. Maybe calling it a rocket which takes off likety-split. The internet was just reaching survivable speeds for mania driven for me. My brain spun and smoked constantly as I devoured every bit of information on anything that caught my fancy… day or night.

This obsession turned out to make our trips interesting as well as fun. Information, you know, the stuff that can grow our brains to be smarter? Yeah, I had a lot of that.

I had just one problem. Only one of my three kids could give a hoot. The one that did wasn’t anywhere near as interested in information as I am and we diverge all the time. But we do both like to learn about things we’re interested in. She reads. Not so with the other two. They saw their out of control mom buy 100’s of books and devour many of them. Books lived in our small duplex more than we people did. They don’t actually like to read just for the love of reading.

Mom has all these books. Many are about how to help myself be successful in life and finances. They saw neither of those oh so important things happen when I brought a new book home or printed reams of information from cool websites. Obviously, books aren’t great. Words aren’t great. They don’t even work. (I’m not really sure what that means, but I think you get my drift.)

My attention wanders constantly. I have ADHD and am Bipolar type 1. My brain hears this instruction incessantly: go… go… go… go… go… GO!!!!

Keeping kids happy… my books did and do help me do that. They give me a place to take my mind to where I can be quite and stop talking for a time. They revel in the silence. Books give me ideas. A LOT of ideas. Running the kids to the mountain is one of my greatest ideas for my young, single mom, Bipolar, ADHD, poor family. We sang. We laughed. We ate fun food. We played in the snow without snow cloths (never enough money to get warm cloths for playing in snow).

I forgot what I was saying again. I started what I want to tell you about in my next letter. Nope, that’s gone too. Hold on… think… relax… switch the TV to mute… I want to tell you more about these sudden trips next time. I’ll tell you about Tarzan yells, deer, mountainside museums, rocks, singing country music, lakes, mud slides and fell trees across the road. And I must not forget the movie in the woods after dark. Cheap, fun, fast trips.

You know what our little trips did for me? I got excited thinking about going, about treating the kids to something terrific. That boosted my morale and pleased me. I even smiled. I miss those trips. Remind me to tell you why we don’t go anymore.

Point? getting my hiney up and doing things just so I could surprise the kids always pulled me up from the darkness. I didn’t have a choice.

Thought followed by action… this is a secret weapon I use as often as I remember to… help me be more like me.

And now I must say good night my friends. I think I’ll play some nature sounds with soft music on YouTube from the playlist I made just for that purpose. Lest you think I need to fill the quite void of no talking I must share with you one more little interesting thing.

Someone in the near area is having a party. The sounds of vehicles on the highway (half a mile away) periodically are drowned by crazy laughing.  Sounds like something from haunted woods. Wish I could make out what they say. Wait… it’s the ass. You know, the ass down the road. The one that resembles a pony. He makes his ass sound. Then the creepy laughing. Then back to the highway. Yeah, TV is getting unmuted.

Till next time… Wait, I thought of something else. Thank you to those of you who have taken time to write notes to me. I love hearing from you. Please write me notes, post comments and even share my letters to you as often as you like. If you’re a parent and Bipolar you and I have a lot in common. So share, comment and tell people you know who might find Redux (this blog) amusing or helpful.

Signing off till next time.

Robin

P.S. I didn’t even apologize for jumping around today. I’m not even going to go back and make it more organized. You get the words today the way they prompted me to put them down. Uh… in. In my Chrome. Never mind that. Pass it on my friends. And keep writing.

 

Bipolar 1, ADHD, FM, PTSD, Anxiety, Chronic Pain, OA – Now What??

/ Robin

If I’d started my blog off listing all my bits of my alphabet you might have clicked off and dismissed me as a hypochondriac. Personally, I might have too. However, the fun facts pile continuously up and I wonder if I might be much older than my drivers license says I am.

I’m 51 degrees old. Wait. 51 years old. Yes, that’s it. I think it’s time I leveled with you and give you my “medical” life. I am much more than my medical stuff. I’ve had my right knee replaced twice – in just two years. I know, that’s very young to even have it done once, but twice on the same knee… Skip that. Here’s a “brief” list. Each item is a medically real thing for me.

Bipolar 1
ADHD
FM
PTSD
Anxiety
Chronic Pain
Degenerative Disk Disorder
OA
2 Total Knee Replacements
Cataracts
Allergies – environmental, biological and food
Depression
Manic
Stress – Excessive
Obsess
Asthma
Dentures – Full

I’ve also had a ruptured appendix, broken ankle, blood clots, carpal tunnel syndrome, rage… I think you get the idea.

Over the last couple of months I’ve thought I’ve been falling asleep while driving. It freaks the freak out of me. No matter what I do I don’t seem able to prevent it. I even pull over and try to nap just so I can complete a 40 minute drive home. I’m not able to nap when I pull off the road. I try. No go. I can sleep in a parking lot when I’m too tired to drive, but it’s not working now. I sing, I scream, I pound my feet on the floor, I hit my steering wheel… Nothing helps.

It’s very scary. No, it terrifies me. Suddenly I’m about to rear end another car or find myself drifting to one side or the other. I’ve been asking my health care people what it could be. I eventually got around to my pain management specialist. I described it to her and asked if she thought it might be any of my many medications. Like my med provider, she didn’t think so. She wanted to know if I was born prematurely. Nope. Seizures? Nada.

Michelle, the pain specialist, asked if I could describe what happens as a “loss of time”. Maybe I’m not really falling asleep. Maybe I’m just losing time and tune back in just seconds later. Do I remember actually falling asleep or feeling sleepy. No. I’ve even tried coming home and trying to sleep. Not sleepy. No naps.

She sent me home charging me with looking into Absence Seizures. She knows I love to research stuff. I appreciate that she lets me learn and talk with her about my health care. I have read a bit about Absence Seizures. I think she might be right. Before I left she agreed she would get me in to see a neurologist she likes to use in a city about an hour from here. I’m going to have an EEG to see what’s going on.

New bipolar med on Wednesday… Friday a possible new diagnosis to add to my alphabet soup. Know what I keep thinking?

… Well shit.