I’m in such pain…. I’m a BP1, ADHD, PTSD, FM, OA, MOM

Seriously though… I’m in an extraordinarly dismal pain deep in my bones I think. I’m not certain. It starts somewhere around my swollen and annoying disks down around the L-something-or-other.

Restless legs? Perhaps. Runs in the women on my mom’s side of the family.

Anxiety encouraging psychosomatic (maybe) spinal pain to radiate through Restless Legs and deep to the ass of the leg with the double times new knee.

Translation… My equal isn’t ibriumating. Get it? Equilibrium. Equal. Equal-ibrium.  New knee as in “not using it much for years and am lopsided and out of synch.)

What?

Seriously though… From my lower back down past my toes especially in my right leg and alien beastie is trying to pull the bones out of my flesh. Meat. Oh my.

Seriously though… Hurts like a “$(%*& ”   of  a    ” )(*&#_ ”   If you know what I mean.

Sitting on my bum on the floor is a feat of unsurpassed hilarity. Translation: I’m either laughing madly – or – crying with great abandon. Take your pick.

Tonight the pain started about 1:15 in the afternoon PST.   Not EST.   PST.

I took my Oxycodone and heating pad and lie down (lay down… well I wasn’t “sitting” down) on my bed while my puppy (Australian Shepherd/Heeler named Bailey, a little girl) snoozed at my feet. Literally. She slept temporarily where my feet could go on my queen sized bed. Then she slept where they also could have been. And then again. Add. Spin. Rinse. Repeat.

Where was I? Right. Bloody bleeding sickly . . . agony. Pain. Unrelenting, mind blowing, consuming… pain.

I don’t watch American Idol. Did once, when it all first began. Still have a fondness for Kelly Clarkson. The queen upon the Idol throne. I sat tonight not watching the 13th season with my son (Kyle, 19. He’s a boy.). I think I must have been doing it louder than I noticed because suddenly he sideswiped my attention from my ass to, well, to my whining. I was whimpering and whining.

I never allow myself that luxury while my kids are about. At least, not before this. Today, I’m in such pain… And it started well before bedtime.

Oh damn!  I just want to sleep.

I think, I think I’ll go soak my ass. Okay, I’ll soak everything that will fit in the tub too. Maybe some soothing heat not floating around my body will help some. Oh great bird of the universe I hope so. Damn I do hope so.

My car is in the shop. Again.

My phone is stupid and dead.

My knee is still new.

My weather is nice. Just right today.

My belly is too big.

My kids are amazing. And my puppy too.

I can see my feet again.  When I move my boobs out of the way. I’m short you know.

I’m in so much pain.

Good night.

Tomorrow is going to come whether I’ve slept or not. As it always does and always should do. I would do well to remember this.

Come on pain, time to have a bath. Pain, would you consider going down the drain? Please. No? Screw you. I’m having that bath anyway.

Again. Good night.

What’s Wrong with Me?

All right then…. early on in my adventure in this thing called “me”… things were really rough. Actually, things have always been rough for me.

STOP!

Wow, that was horrible. I cannot relive all the horror that I’ve been through just to tell you this thing I’ve discovered.

When my kids were young and I was coming apart at the seams I struggled against myself to find peace. Some days the darkness wanted me too much it seemed. God was nothing and I was all alone. Alone in my head with myself.

The thing about me is I’m never ready to stop. Even when that’s what I’m screaming that it’s what I truly wish for.

I came across an idea, a lot of ideas. Things written and spoken that gave me the beginning of control. Control of myself… stopping.

Think about this. . . I am the only one in my head, controlling what I think and who I am. Yes, I may be admitting I’m bonkers and I’ve chosen to be bonkers… but I’m not. I’m not!

Youch! Bipolar is . . . my brain dancing to a private tune. When I’m off my meds or on something that just isn’t working for me my blessed brain runs amok. Everyday I enter into negotiations with myself to see if I’m going to cooperate. Cooperate with myself.

I am the only one who can control what I think.

Just me.

Yes there have been and will times when I don’t believe that. But it is true. My strength comes from within myself. I had to be on medication after medication and so much pain… when the drugs started helping me begin to hold on to myself, I was finally able to find an idea that would see me through this day.

I am the only one who can control what I think.

Okay, I need a little help with that from drugs, but what’s a girl to do when her brain runs bizarre?

I am the only one who can control what I think. Just me.

I won’t say I’ve been saved, because that’s not what this is about. It is about mental health, about my brain dancing Bipolar, ADHD, PTSD and always some new alphabet soup. I’ve been trying on OA and FM. We’re not on great terms just yet. And then I saw the Neurologist last week and he told me basically I’m mental. This facial tick I’ve developed over the last six months or so is my brain trying to get my attention.

Let me get this straight. My often out of control brain wants my attention so it, my brain, thought it would have a party on my face? Seriously? Sucks. He suggested I see my mental health professional. Wow. Show stopper.

My brain, with a “mental” disorder… is mental. Super sucks.

I am the only one who can control what I think. Just me.

Maybe that’s what my mind has been trying to tell me. That I need to listen to myself, that I need to learn and teach myself. I need to find whatever helps me handle me (good and healthy things) and pursue them with great vigor.

I must always remember that I am the only one who can control what I think. Just me — with a little help from my meds.

Confused yet? You are? Good. Me too.

You Can’t Have My Leg!

It would seem that I’m not done with me yet. I’ve paralyzed myself for a long time, not willing to write, telling myself that I don’t know where to start. So many odd and terrible things have happened to me… are happening each day… that I rationed that I was waiting for a lull in the storms that are me so I could present you with a neat package all polished and not like I am now. If I were a color book I would never have drawing inside my lines.

Here I am. This is what I’m thinking tonight:

My right leg is going to fall off.

Seriously. That’s it. Oh sure, with my alphabet soup (Bipolar 1, ADHD, PTSD, FM, OA… for now) crowding me for more undeserved attention. They annoy me. Like a flock, a gaggle of Canadian Geese launching themselves at me unreserved and underrated. They scare me. They are impossible to reason with. No matter where you are if they decide you need to be chased, you’ll be chased as long as they can chase you. No lie. Your heart will pound excitedly when the medium sized birds take after you on the ground like a Disney movie gone terribly wrong.

My leg. I had my right knee totally replaced in January two years ago. By the following year it was clear that the surgery had failed. The prosthetic that was implanted in my leg bone failed to graft with the bone it was supposed to graft to which would, had it worked, have given me a working and reliable new knee.

Wrong.

August 2013 a surgeon specializing in replacing messed up knee replacements replaced my replaced and prosthetic knee. Both times I suffered terribly (differently each time). I suspect that no surgeon would appreciate me talking with any of their patients and telling them how the whole sordid mess went. (To clarify – Sordid meaning: involving ignoble actions and motives; arousing moral distaste and contempt, sleazy, dirty, seedy, seamy, unsavory, tawdry,cheap, debased, degenerate, dishonorable, disreputable, discreditable, contemptible, ignominious, shameful, and abhorrent. The exact opposite of: respectable.)

The up-to-the-minute report is this: Friday I showed my MD that my entire surgical leg (right) was bigger than the left. No sense in studying it to see if I was imagining it. It obviously belongs on some other person’s body. This is a problem. I don’t even know what the problem is and already I realize it’s a problem. I think my name must translate in some language to “problem”. I’m certain of it.

I exposed the bare and big leg to my doc on Friday last. He sent me back to my surgeon, but not till after we get another and new authorization to see the fella. Seriously. Same leg. Obvious connection. Gotta have that new authorization. I called his office and explained the situation. The woman at his office agreed to request one for me from my MD. (Yes, I’m saying “MD” and not PP, PC or any other ridiculous set of the alphabet… again with the alphabet. He’s my doctor, my medical doctor. That’s Medical Doctor. MD.

What I didn’t realize was that my MD had that very day put in an order for me to have a vascular study done on the affected leg. They would take me as soon as today (Tuesday). Getting an appointment that fast freaked me out. (Just a little FYI.) Since my doc referred me to my surgeon I assumed he was done with me regarding this particular medical happenstance (coincidence).

That last sentence looks strange to me, but my brain refuses to use any other word.

Anyway, the surgeon didn’t order the imaging before he even saw me. I wondered if maybe he had so he would know ahead of time what might be going on. But.. no. My MD ordered it. When he starts a process that really should probably be ordered to the specialist I was being sent to I hit the “worry” button and all hell breaks loose. Again.

Today the resounding thought that pestered me like the rain does every time it soaks me when I take the puppy potty was: “They are going to take my leg off.”

Seriously. “They are going to take my leg off.” That’s what my brain has been saying all damn day.

Just to show you how badly I freak myself out living inside my head with my alphabet soup, my MD has ordered me to have a service/companion dog. This, is our puppy, my service/companion dog in training. She’s so awesome. But more about her at another time.

I’m going to jump now through the rest of the day to now. I’m having considerable back pain which has kept me from sleeping. I began to write this. I got half way through it. Suddenly I see my bedroom door open, but I see no one opening it. Ahh. It’s Maks. Maks is one of our awesome cats. Throughout all my ailments Maks has been my healing kitty. Cat. He’s too old to be a kitty. Just don’t mention that to him and we’ll all get along just fine.

Whenever (most of the time) I’ve been doing particularly terrible, like today and taking my leg off, he comes to me and loves me up. Right now he’s purring and clawing, I mean needing, my right hip. This isn’t where he normally lays. He usually takes up station keeping on my left side somewhere but since we got the puppy (Bailey) he hasn’t been up to see me very often. I’ve been having my son bring him up to me when I retire for the night so he can get used to puppy smells and sounds. It’s working. He’s beside me doing his magical cat thing. How the hell do they know when we need them? Of course I’ve heard about the cats and dogs that can smell/sense impending death or various illnesses. He thinks he’s one of these special and extraordinary furry companions. I agree with him.

He’s been urging me to pet him and love him up stabbing me gently and now snoring at me. The look of love on his face is wonderful. (I know what you’re going to say. Cats don’t make that kind of face and they don’t feel like that you bozo. And then I would tell you to shut your trap. It works for me.) I’ve been alternately petting him and waving his loose fir away and writing this. I like it. I feel better. He knows my alphabet is haunting me. I do… feel better now.

Tomorrow afternoon I’m having the vascular imaging done of my entire right leg. It’s weird and cool to watch. Stay tuned in to this same bat time, this same bat channel.

Wow, can this cat snore.

Overload – Consider ONE Issue at a Time – Stress, Anxiety, and Worry

I’ve been stuck for weeks now on what to say. Or rather, how much to say and about what. If I listed all my “issues” I would just be embarrassed and probably stop writing about them. It would be an impossible feat to follow.

I never thought I’d begin talking (revealing myself) about my many issues starting with these: Stress, Anxiety, and Worry.

Very briefly let me begin by saying I believe that my acute levels of Stress, Anxiety, and Worry are destroying my efforts to reach a level of balance in my life… in myself. They directly affect each part of me and make any difficulties I have . . .   amplified.

And they, Stress, Anxiety, and Worry, give me headaches.

NEXT: How Stress, Anxiety, and Worry impact my brain. I have Bipolar Type I.

Don’t Tell Me to Be Positive When I’m Fighting to Get Out of My Own Skin

It is so much easier to be positive, to weather the storms of everyday life and those days that turn to shit… when the fine balancing line of I who dance with (Bipolar) is made so so much harder when meds are being adjusted. That in between time when the last drug tried and worked, well, all accept the backlash… The time in between when I leave one drug and begin the search for another and another… The time when I am the most vulnerable… The time when stress becomes STRESS… The time I’m not ready to hear that my baby who serves proudly in the United States Air Force might not be coming back when we planned.

Sure there are special events I’ve spent a good amount of money on and her brother and sister will both be on vacation then, but none of that matters really.

I’m in the in between time when I am scared that if something comes up I won’t be ready/able to deal with it.

It has… and I’m not. I just spent the last little while seeing how long I could hold my breath while I tried to stop crying. There is still a reasonable chance she’ll be home then… but I’m not real reasonable right now. Not even close.

It is in this place that I find myself being reasonably medicated in regards to my overall Bipolar but not to my constant mania, not to the surprising and instant fury, not to the despair that doesn’t eat away at my soul… because I’m so manic that there isn’t time… this is where I find myself.

I imagine my other two kids (19 and 16) have a hard time understanding the relationship their older sister and I have. She and I love so many of the same things… we’re happy to sit and read books in the living room or going on a long drive. I try and then try not so hard to find things the younger two and I can do together, be together. I fail so often I can’t remember the last time we found something fun to do together or something we understood why the other liked something and felt joy at the other’s happiness. I don’t know what happened. Have I been lying to myself about what kind of mom I am? Lying about the mom I’ve been in their shadowed lives?

Shadowed lives? I just thought of this now… shadowed lives. I mean that they have grown up poor material possessions and even poorer still when I consider that they have grown up with the massive Bipolar being that is me. The shadow of the lives I wanted for them.

They say it doesn’t matter. We’re together. But it matters to me. It does matter when I hear my youngest child planning on working full-time as soon as school gets out for summer because she doesn’t feel like I can support the three of us. She believes so strongly we will be without food or a place to live. Right now she’s totally correct. I have refused to let either of her siblings work the summers before high school graduation. Why? Because these are the days when adult life kicks into gear and never looking back it never slows down. Rest, live, enjoy before … before becoming what I consider a full-fledged adult. Of course they probably are much more so than most of their friends, but that doesn’t matter. I’ll be damned if they have to work before I want them to. Know why else my baby thinks/wants a job? She wants some money of her own. Anything, something.

Back to the beginning now where I’ve wiped my face with toilet paper and rubbed my eyes too hard and I try to breathe. In two days I’ll see my med provider. Because of backlash I’m off sleeping pills and Neurontin (for Bipolar and FM). I’m running hard with sticky emotions … well … sticking to my life and driving me to my knees… to a single one.

The bloody new series “Resurrection” features a theme song that is wrenching my heart this way and that. I hear the refrain over and over taunting me and my ridiculous hold on my emotions  and my thoughts… “I’m coming home, I’m coming home…”

Toilet paper in hand I sit upon my bed. My heating pad tries in vain to ease the tight knots in my shoulders. My breathing has slowed. My tears stopped for now. I keep hearing that song… “I’m coming home…” endlessly repeating….

I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming…

I’m crying again.