Bipolar – Holding Out My Hands

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I’ve been trying to reach a young woman that I am in the same major in at UWT regarding her mental health. To me, it is obvious that she has Bipolar Disorder or something similar. I’ve been in classes with her for three years now. Wow, that’s the entire time that I’ve been going to school there.

I care about this woman and I want to be able to help her understand what’s happening to her. Very often she feels out of control. Outwardly, she’s very loud and emotional. Her emotions are so strong that she disturbs people around her. I really want to get through to her. Our mutual friend knows both our stories and she knows that I’ve been trying to reach her.

We have a friend in common and the three of us have a sort of writers group. We meet one or two times a week after class. I’ve been listening to her and feeling empathic towards her. It hurts me to see her in so much pain, and so confused.

I’ve told her I have Bipolar 1 since last year. It has seemed like she doesn’t understand what I’m telling her when I try to communicate Bipolar to Bipolar… until today. Today I felt that I finally made some headway with her. Our mutual friend agrees.

There were two important things I really wanted to communicate to her and I think I might have gotten through.

  1. You have to work hard to understand this illness and learn how to deal with it. She’s been freaking out about how much we have to do at school. She wants to know how I control it so I can do my school work. Understand, information and planning help me get through.
  2. You have Bipolar Disorder and it will be with you until you die. This is not an illness that you will be healed from. It’s not like the flu in that it runs its course and then it goes away. It isn’t a cold or even cancer which can go into remission. We have ups and downs. Sometimes we do better than other times. Sometimes we’re paralyzed and unable to even breathe. Understand this, you will never be rid of this illness. It will be with you always. You must learn to live with it, understand it and try to use it. Be prepared. Have a safety net. See what I’m doing? You must learn about this illness. It is a beast and you must be brave and face it down.

She asked how I deal with the school work. She and I have a class together and we are both doing an independent study program one on one with the same professor. This professor is amazing. She has high standards and demands a lot of us.

How do I get it done? She’s been feeling so depressed and having such anxiety that she’s struggling to get anything done at all.

There are no simple answers, no quick fixes. Remember what I said.

  1. Learn to understand the beast. Ignorance only makes it worse.
  2. You will have this until you die. Be prepared to deal with it every day. Don’t try to ignore it. Fight it. Then I added a third thing she could do.
  3. Work to master your mind in every way you can. Try mindfulness. I’m trying it. We need every advantage that we can find.

I’ve been dealing with Bipolar Disorder for a long time. I’ve worked a little and a lot and failed and succeeded. I understand the beast and I know what it wants from me. I’m doing okay. I’m able to reach out and teach a fellow sufferer. She is so young. This is so new to her. I think, I hope, that today I was finally able to reach her. I think she is starting to understand that I’ve walked this path for a long time and I might have ideas on how to not crash, on how not to burn.

So today that’s what I want to say. Reach out to others who you identify with. If you can, try to share your experiences and help another person. If you don’t know anyone you in person that you can reach out to try to find someone online to support. If you read someone’s blog and you know they have Bipolar Disorder too, leave them a comment. Say something nice. Encourage them. Let them know they are not alone.

I will continue to reach out to my young friend. I will continue to hope that I can reach her. I will be vulnerable with her so she can see that I understand and that I can stand with her.

Okay. I’m manic. Is it obvious? Feel the pressured speech? See me going on and on? Yeah. Manic.

Be well.

When It Gets Real – Bipolar

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Two days ago, I was notified on my phone that a comment had been made on a post I had originally made on this blog (REDUX) over a year ago. I try to always reply to any comment left on my blogs no matter how long ago the original post was, and to do so as quickly as I can. I believe that when a Reader goes to the trouble of commenting, that we have entered into a conversation and that to be polite, I should reply. It’s the polite thing to do in conversation, right? And, I’m honestly interested in what Readers have to say.

The person implied that they had read the post. Cool…um, not cool. This is what the person said: “This gives me no hope and makes me want to die even more.”

I immediately stopped what I was doing and read the original post. It was heavy. I’ve never hidden the dark days from you. I’ve also never hidden when the dark days change to grey, and then to blue and sunny.

I want you to know that I struggle. Sometimes I struggle every day. Sometimes my heart is full of light and I feel peaceful.

I am linking that original post Original post. I’ve gone back and put some things in bold/italics. I’ve not changed anything else. I did try to reply to the person as quickly as I could in an effort to reach them. I don’t know if they read my reply.

Please feel free to read it. You’re welcome to comment on it here. I stand by what I wrote. It is all a part of who I am and what I struggle with. Bipolar Disorder is not like some diseases that go into remission or go completely away. I will always have it. I will always search for ways to live better with it and to faithfully and consistently practice the things that help me.

Am I better than I was when I wrote that post? I don’t really know. I’m different. My life is different. My world is different.

I just bit the tip of my tongue. That’s different.

Everything is relevant and always in flux. It is what we do in the darkest of times, in the best of times, in every single moment of time that is what makes the difference in whether I live, or I die.

Today, just like yesterday, I choose to continue the fight. I choose to live.

That’s all I can do. For myself. But I can ask that of you too.

Choose this day… to live.

Relaxing Music

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I just found this. I’ve not listened to the whole thing, but so far I really like it. Tell me what you think.

I’ve been so very stressed and angry lately. I have got to calm down. I’m suffering in my classes and in my mind.

This is my last quarter before I graduate. I’m going to try to make it my best one. First, get my emotions under control.

I have to keep reminding myself…

I’m UNSTOPPABLE!

Watch “Relaxing Piano Music: Beautiful Music, Romantic Music, Relaxing Music, Sleep Music ★136” on YouTube

Bipolar: It Is Very Difficult to Know

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A lot of the time I hesitate to post because I don’t know what you, my reader, expects to read. I struggle with this every day. I could tell you about my day, but that’s so boring – dull! I could stick to only write about myself and what I’ve learned about Bipolar, but I really feel strongly that this kind of important thing deserves a website of its own so that people in pain or who are looking for answers can go to that site and find answers and acceptance right away. So, I’m developing a website to do just that.

I have Bipolar Disorder Type 1 with mixed states. I also entertain much of the rest of the alphabet. I could drone on and on and try to… well, I think you know where that was going.

Basically I’m a normal 55 year single mom of three who is interesting and has a good sense of humor. I have some compelling stuff following me around that makes me complicated, but who doesn’t? Surely everyone has experienced the strange things accompanying Bipolar, anxiety, depression, ADHD, PTSD, FM, OA, etc.

I have a Japanese Fighting fish like all your neighbors do and speaking of neighbors, also just like you, I politely file noise complaints regarding one nice household whenever my TV starts to loudly rattle. Seriously.

I’m so normal I could bore you silly. Although… did I mention my eldest daughter will be moving in with me in a few months? (Honestly, it’s for the best. I need the support and we can both use help with housing expenses.)

In fact things are sooo boring that I’m going to need to graduate from college with another bachelors degree and I’m going to have two sons and a daughter instead of what has been the standard at my house with two daughters and a son.

See? Boring.

I am first and foremost a woman who deals with an incurable illness and will continue to do so until I die. Well, and perhaps afterward too. I mean, who really knows?

If you don’t mind too much, I’m going to write about all of these things. I might even add in the bits where one of my family members believes that God has them on this earth for only one reason and that is to save his children and to draw them back to Him because they are lost.

Maybe I’ll recount some of my experiences growing upon a ranch as a teen who presented with Bipolar at a very young age and how well that went over with my undiagnosed Bipolar father. Maybe I’ll include fun times at the church I was attending that was into casting out demons. Yeah. Fun times.

Have I mentioned I went to Bible College searching for God? I wanted so desperately for Him to take away the pain I felt that was crushing me from within every day. No? Bipolar, prayer, and demonic possession… seems like there’s a story in there, somewhere.

What’s on your mind? Should I throw caution to the wind and open up a bit more? It all, and I do mean all, ties directly back into this sickness, this life long illness I struggle with. It is all infused with, you know it, Bipolar.

I don’t believe it is a disorder. I believe it’s a disease, an illness and should be treated with the respect it deserves… that we deserve.

Talk to me my Readers. Tell me what you think. Do you have questions? I can’t guarantee I’ll answer, but I’ll read all of them. 🤔

Be well.

Robin

A Train Journey on YouTube

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A Train Journey on YouTube

A Train Journey on YouTube

I haven’t tried posting from YouTube to here before. Tell me how it worked.

I’m listening to this right now. It will play on my phone all night. I got one of the charging pads so it would be easy to work with and hear.

Nite friends

Bipolar Mixing Ahead

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I’m feeling manic and depressed and distressed and full of anxiety. I hate these feelings. I’m coasting along, knowing these are the better days and I should not waste them. The plan… I have a plan. I have part of a plan.

And my cat is kneading the edge of my blanket that’s sticking out from under my head. OMG! He purrs SO LOUD! – I digress…

I haven’t looked at Facebook for weeks. I want to connect with old friends, but I’m afraid. (This bit is what triggered me) A while back I finally found a friend I’d lost long ago. This friend is doing well. In fact, when I ask how things are going I’m always told that things are perfect. Couldn’t be better. Married the love of their life. I guess I’m happy that things are so perfect for this friend. But I’m not, and it has nothing to do with this stinking sudden mixed episode I’m currently enjoying.

I watched the whole speech given by the student about all the loss and pain that murder by gun has brought us recently. Emma González speech

Then I read about a friend’s dad that went scary nuts at the hospital, and about another friend (about 25 years old) whose grandfather just molested her. You know how family members are often in denial? Grandma denied it and she ended up in jail. I don’t have the details and I don’t care about them because details are not what I’m so freaked out about.

Another friend is excited to not have needed pain meds today and is looking forward to doing chores and growing her eyebrows back in. Then I saw an honestly beautiful painting a dear friend just finished of three burrows… I think it was the burrows that got me.

My mixed state is just like our worlds today. I say “worlds” because we each live in our own little spheres, our worlds. None of them are like another.

There is nothing I can do to influence any of these people’s lives right now. But I’ve been working on influencing mine. I’ve been expressing to you what I’m thinking and feeling right now.

I feel my emotions smoothing out, the peaks aren’t so drastic.

Have you ever tried to listen to music or waterfalls or rain and soft music at night to help you get sleepy? I have. I’ve tried dozens of sounds. I’ve found something that I didn’t even know existed while chasing rabbits on YouTube. It’s a train going down tracks, at a constant speed, with no whistles, no horns, just the steady and almost hypnotic sound of a traveling train.

Wow, thanks for walking with me through that. If the circumstances had been different, well, I’d rather not go there.

I’d like to get my perfect friend to more than tell me we all have our own journeys
we must live. That’s crap. If you have a friend you know is in pain, and you have training in that field and you don’t reach out…. shame….

Shame on me.

Things to do ASAP: call Karen, email Marcella, email School the email, get pic of Bailey, myself and my daughter Jessica with the Easter bunny, clean hardwood floors, throw ball for Bailey on obstacle course, use elliptical, write, do class time in online classes on mindfulness and short story writing… today. If I can get my butt out of bed when the alarm goes off and don’t watch TV I have a good chance of getting it all done. If not, some will roll over into Monday.

And yes, I do sometimes do exactly what I say not to do. I set my bar too bloody high. Yep. I do that… sometimes.

(Written last night at midnight)

Warning! Rhino

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Next time you’re relaxing, walking around with friends or hanging out on a wood bench in a park, be on the lookout for Rhinos. Recently they’ve been spotted lurking around in crowded cities, small towns and communities.

If a Rhino happens to find you by surprise you really ought to know a couple of important things.

First, Stand your ground and shout! 
If no tree or scrub is available to allow your escape, stand and face the animal (rhinos have poor eyesight but are attracted to movement). As the rhino approaches, scream and shout as loud as you can. A charging rhino may beer away from a noisy target.

Second, Run in the opposite direction.
A rhino will continue running in the same direction when it is charging and is not likely to turn around and come back for another attack. Once you have evaded the charge and the rhino has veered off, run in the opposite direction.

 

The Ultimate Worst-Case Scenario Survival Handbook
David Borgenicht, Joshua Piven & Ben Winters, pg 22.

A Confession & Positive Med Visit

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CONFESSION – Impact of Bipolar Mania – 
In the last few years, I’ve accumulated 15 websites, blogs and email accounts.

Yesterday I visited with my Med Provider Jamie. She finally heard me. She decided that my mood stabilizer wasn’t working, so she’s increased it and has me taking it twice a day instead of just once.

When I first got there, she started by saying that my counselor Arthur had told her that I really felt that she was doing me more harm than good in her treatment of me. I said yes, I felt that way. Then I explained why. I have been feeling at least as bad as I did when I wasn’t being treated at all with meds for my illnesses.

She also agreed to talk to my Chronic Pain Management guy about taking medications that it is strongly suggested that they not be taken at the same time. He didn’t agree with her stance on the subject. I want to mention that I’m almost completely off my pain meds now. (Boy am I feeling it.) I’ve done this so she’ll stop complaining that I can’t mix my meds (a Benzo and Oxycodone). The problem is, and I should have realized this before I lowered my pain meds, that at the clinic I go to they don’t want me taking the Benzo at all. I felt threatened when she informed me that some of the providers there would just cut me off right now. I responded by pointing out that she wasn’t doing anything about my super massive anxiety.

This last quarter I started having outbursts in one of my classes (4 times in one class the professor had to come and get the guy I was arguing with and myself to be quieter). It was humiliating.

I’ve also been experiencing rage. It’s been a really long time since I’ve felt this bad. I admit… I’ve been really scared that a meltdown is coming. Now that she’s adjusted my meds, I feel like things might get better.

Bipolar – Med Provider Day

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I’m unstoppable.

I’ve been trying to sleep, but it eludes me like a chicken running for its life.

I’m going to see my med provider at 10 in the morning today. I hope she listens this time. If she doesn’t I’ll be requesting someone else and informing them of why I’m choosing to under go all the stress that comes with a decision like that. I’ve had enough.

I’m going to confront her with the facts. I’ve been keeping a list of my symptoms since I saw her 30 days ago. It has grown quite long. It looks even worse than before I was being medicated.

I’m unstoppable.

My pain management guy and I had to ween me off one of the long acting pain killers I’ve been taking for a couple of years because of supply issues. I went from 100 mg twice a day to 50 mg over night because there wasn’t anymore to be found anywhere. No one knew it was going to happen so there was no helping it. It didn’t feel so great. Then we kind of gradually weened me off the rest. Now my pain level is constantly higher. Also, the torn fascia in my foot still isn’t healed. It’s painful. I got special shoes for it today. But as the compassionate woman said while I walked around and around testing shoes, my foot was going to feel soar and tired. It still is. It wasn’t fun.

All this has added to my overall stress level, as you can imagine. Withdrawal is never a good time, nor is added pain.

I’m unstoppable.

I will be thankful if my counselor, Arthur, can make it to my appointment. He said he’d try. He feels it is important for her to understand my mental state from his side of the equation. He’s been with me two previous visits.

It hasn’t helped.

I’m still choosing to be unstoppable.

I may stumble, and I may fall over and over, but this damn illness is not going to continue to run my life. I’m very ill. I’m too exhausted not to fight anymore. I feel like my life has been a waste.

I’ve had enough.

I’m unstoppable.

Help me. Or, stay out of my way.

I refuse to stop!

I’m Bipolar 1-How Much Further Must I Go?

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I’m dang angry. I’ve worked my agitated ass off for three years, stumbling under the nightmares of depression and raging as anxiety unleashed tries to undo all that I’ve endured. So close. One more quarter and I’ll graduate from UWT. One more quarter and I’ll have to get a job and support myself.

Listen to me dear Reader, if you have a medical professional who won’t listen to you or thinks your complaint is in your head (duh) or is in some way not treating you with the dignity and respect that your insurance dollars demand of them… stand up and say something! You do not always need to be nice. Trust me on this one.

I learned long ago to hide much of my mental crappiness that was going on in my skull. I was super high functioning. I had kids to raise. I can play the “I’m fine, I’m a great” parent game.

But you know what? Turns out that didn’t help the “me” of today. The “me” of today STILL needs something for anxiety. Go ahead moron. Yes, you Jamie, you have ignored my pleas for something to do for me what all the hundreds of hours of counseling have been unable to do… relieve my over the top anxiety.

I’ve asked this woman for something for anxiety since the first time I saw her. You know what she did? She started lowering my Clonazapam (spelling). Every time I’ve seen her, she reduces it. “It is just one less pill. You’ll be okay.” [bitch]

I went home with 10 pills for 30 days.

She increased my Ritalin dosage and made it extended length. I didn’t ask for that. What? You want me to calm down so we can finish our 20 minutes on time? Have you dosed me so that I’ll be a good woman and let you get done with me?

Well guess what? The shits hitting this fan.

Can any of you relate? Have you felt unheard and improperly treated? Guess what? You are NOT ALONE. Not by a screaming momma long shot.

I have IBSd. I had to talk to my counselor from home. Since I was in my own I felt FREE to explain again about my anxiety and graduation and jobs and money and acting out in class because I simply cannot contain the mountain of anxiety spilling … over into my phone call.

For an hour I yelled about Jamie to my poor counselor. I accused her of having her own agenda and it didn’t include my mental health. I’m done. She either treats my anxiety when I see her next week or –

Or I will hand deliver a letter I’ve been writing about our times together to the facility director. I’m done.

I’ve worked my hardest, trying to keep hold of myself while my wild mood swings tried to prevent me from my goal – getting a college degree at 55.

This, this Jamie, she can’t seem to hear, see, understand, empathize or give a rats ass whether I self-destruct because my anxiety has paralyzed me again. I sit on the sofa and I cry because I’m terrified I’ll fail. So I don’t start. Then the panick sets in as I realize I can’t write the paper.

In the name of the oath that we have been lead to believe that those in the medical profession must swear to, treat me for my illness.

I cannot imagine going through the graduation ceremony in the Tacoma Dome with my freaking anxiety not treated.

I cannot imagine the day after graduation when I need to be looking for a job, but because Jamie didn’t treat my well documented illness I am instead sitting in the back yard vegetable garden pretending to being weeding. The problem with this scenario is that I have arthritis, and if I have sat in the garden without anyone home to help me up… I’m not going to getup. It would mean that I’d given up. It would mean that I’d be punishing myself for continuing to be the Bipolar failure that I’ve always been. (How I feel.)

And Jamie? Still with me? You could have prevented me from losing all the ground I’d worked so damn hard all these years to reach. And why? For what? From here it just seems you’re stupid. Some medical “professionals” are stupid you know. I’ve even taken my counselor with me on two occasions to verify what I tell her.

I’m done.

I’m saying Hell No! That’s enough of this irresponsible crap. You expect those of us with mental health issues to behave? Then treat us right. Hear us when we call for help. If we bring backup pay special attention. I’m trying to get my son to go with me. He’s a psychology major.

To all of you struggling to work with your own Jamie’s, you stand fast. Do not let them push you around. They’re there to serve your medical needs. Document what you talk about and when. Keep a clear record so if you need a new med provider you can state your case and prove that they aren’t listening.

One reminder though. If you’re really messed up you may not be thinking straight. No worries. You just take a family member or someone who you can trust with you.

You’re not alone.

Oh, and if you happen to be a Jamie, what’s your damn excuse?