You Can’t Have My Leg!

It would seem that I’m not done with me yet. I’ve paralyzed myself for a long time, not willing to write, telling myself that I don’t know where to start. So many odd and terrible things have happened to me… are happening each day… that I rationed that I was waiting for a lull in the storms that are me so I could present you with a neat package all polished and not like I am now. If I were a color book I would never have drawing inside my lines.

Here I am. This is what I’m thinking tonight:

My right leg is going to fall off.

Seriously. That’s it. Oh sure, with my alphabet soup (Bipolar 1, ADHD, PTSD, FM, OA… for now) crowding me for more undeserved attention. They annoy me. Like a flock, a gaggle of Canadian Geese launching themselves at me unreserved and underrated. They scare me. They are impossible to reason with. No matter where you are if they decide you need to be chased, you’ll be chased as long as they can chase you. No lie. Your heart will pound excitedly when the medium sized birds take after you on the ground like a Disney movie gone terribly wrong.

My leg. I had my right knee totally replaced in January two years ago. By the following year it was clear that the surgery had failed. The prosthetic that was implanted in my leg bone failed to graft with the bone it was supposed to graft to which would, had it worked, have given me a working and reliable new knee.

Wrong.

August 2013 a surgeon specializing in replacing messed up knee replacements replaced my replaced and prosthetic knee. Both times I suffered terribly (differently each time). I suspect that no surgeon would appreciate me talking with any of their patients and telling them how the whole sordid mess went. (To clarify – Sordid meaning: involving ignoble actions and motives; arousing moral distaste and contempt, sleazy, dirty, seedy, seamy, unsavory, tawdry,cheap, debased, degenerate, dishonorable, disreputable, discreditable, contemptible, ignominious, shameful, and abhorrent. The exact opposite of: respectable.)

The up-to-the-minute report is this: Friday I showed my MD that my entire surgical leg (right) was bigger than the left. No sense in studying it to see if I was imagining it. It obviously belongs on some other person’s body. This is a problem. I don’t even know what the problem is and already I realize it’s a problem. I think my name must translate in some language to “problem”. I’m certain of it.

I exposed the bare and big leg to my doc on Friday last. He sent me back to my surgeon, but not till after we get another and new authorization to see the fella. Seriously. Same leg. Obvious connection. Gotta have that new authorization. I called his office and explained the situation. The woman at his office agreed to request one for me from my MD. (Yes, I’m saying “MD” and not PP, PC or any other ridiculous set of the alphabet… again with the alphabet. He’s my doctor, my medical doctor. That’s Medical Doctor. MD.

What I didn’t realize was that my MD had that very day put in an order for me to have a vascular study done on the affected leg. They would take me as soon as today (Tuesday). Getting an appointment that fast freaked me out. (Just a little FYI.) Since my doc referred me to my surgeon I assumed he was done with me regarding this particular medical happenstance (coincidence).

That last sentence looks strange to me, but my brain refuses to use any other word.

Anyway, the surgeon didn’t order the imaging before he even saw me. I wondered if maybe he had so he would know ahead of time what might be going on. But.. no. My MD ordered it. When he starts a process that really should probably be ordered to the specialist I was being sent to I hit the “worry” button and all hell breaks loose. Again.

Today the resounding thought that pestered me like the rain does every time it soaks me when I take the puppy potty was: “They are going to take my leg off.”

Seriously. “They are going to take my leg off.” That’s what my brain has been saying all damn day.

Just to show you how badly I freak myself out living inside my head with my alphabet soup, my MD has ordered me to have a service/companion dog. This, is our puppy, my service/companion dog in training. She’s so awesome. But more about her at another time.

I’m going to jump now through the rest of the day to now. I’m having considerable back pain which has kept me from sleeping. I began to write this. I got half way through it. Suddenly I see my bedroom door open, but I see no one opening it. Ahh. It’s Maks. Maks is one of our awesome cats. Throughout all my ailments Maks has been my healing kitty. Cat. He’s too old to be a kitty. Just don’t mention that to him and we’ll all get along just fine.

Whenever (most of the time) I’ve been doing particularly terrible, like today and taking my leg off, he comes to me and loves me up. Right now he’s purring and clawing, I mean needing, my right hip. This isn’t where he normally lays. He usually takes up station keeping on my left side somewhere but since we got the puppy (Bailey) he hasn’t been up to see me very often. I’ve been having my son bring him up to me when I retire for the night so he can get used to puppy smells and sounds. It’s working. He’s beside me doing his magical cat thing. How the hell do they know when we need them? Of course I’ve heard about the cats and dogs that can smell/sense impending death or various illnesses. He thinks he’s one of these special and extraordinary furry companions. I agree with him.

He’s been urging me to pet him and love him up stabbing me gently and now snoring at me. The look of love on his face is wonderful. (I know what you’re going to say. Cats don’t make that kind of face and they don’t feel like that you bozo. And then I would tell you to shut your trap. It works for me.) I’ve been alternately petting him and waving his loose fir away and writing this. I like it. I feel better. He knows my alphabet is haunting me. I do… feel better now.

Tomorrow afternoon I’m having the vascular imaging done of my entire right leg. It’s weird and cool to watch. Stay tuned in to this same bat time, this same bat channel.

Wow, can this cat snore.

Overload – Consider ONE Issue at a Time – Stress, Anxiety, and Worry

I’ve been stuck for weeks now on what to say. Or rather, how much to say and about what. If I listed all my “issues” I would just be embarrassed and probably stop writing about them. It would be an impossible feat to follow.

I never thought I’d begin talking (revealing myself) about my many issues starting with these: Stress, Anxiety, and Worry.

Very briefly let me begin by saying I believe that my acute levels of Stress, Anxiety, and Worry are destroying my efforts to reach a level of balance in my life… in myself. They directly affect each part of me and make any difficulties I have . . .   amplified.

And they, Stress, Anxiety, and Worry, give me headaches.

NEXT: How Stress, Anxiety, and Worry impact my brain. I have Bipolar Type I.

Don’t Tell Me to Be Positive When I’m Fighting to Get Out of My Own Skin

It is so much easier to be positive, to weather the storms of everyday life and those days that turn to shit… when the fine balancing line of I who dance with (Bipolar) is made so so much harder when meds are being adjusted. That in between time when the last drug tried and worked, well, all accept the backlash… The time in between when I leave one drug and begin the search for another and another… The time when I am the most vulnerable… The time when stress becomes STRESS… The time I’m not ready to hear that my baby who serves proudly in the United States Air Force might not be coming back when we planned.

Sure there are special events I’ve spent a good amount of money on and her brother and sister will both be on vacation then, but none of that matters really.

I’m in the in between time when I am scared that if something comes up I won’t be ready/able to deal with it.

It has… and I’m not. I just spent the last little while seeing how long I could hold my breath while I tried to stop crying. There is still a reasonable chance she’ll be home then… but I’m not real reasonable right now. Not even close.

It is in this place that I find myself being reasonably medicated in regards to my overall Bipolar but not to my constant mania, not to the surprising and instant fury, not to the despair that doesn’t eat away at my soul… because I’m so manic that there isn’t time… this is where I find myself.

I imagine my other two kids (19 and 16) have a hard time understanding the relationship their older sister and I have. She and I love so many of the same things… we’re happy to sit and read books in the living room or going on a long drive. I try and then try not so hard to find things the younger two and I can do together, be together. I fail so often I can’t remember the last time we found something fun to do together or something we understood why the other liked something and felt joy at the other’s happiness. I don’t know what happened. Have I been lying to myself about what kind of mom I am? Lying about the mom I’ve been in their shadowed lives?

Shadowed lives? I just thought of this now… shadowed lives. I mean that they have grown up poor material possessions and even poorer still when I consider that they have grown up with the massive Bipolar being that is me. The shadow of the lives I wanted for them.

They say it doesn’t matter. We’re together. But it matters to me. It does matter when I hear my youngest child planning on working full-time as soon as school gets out for summer because she doesn’t feel like I can support the three of us. She believes so strongly we will be without food or a place to live. Right now she’s totally correct. I have refused to let either of her siblings work the summers before high school graduation. Why? Because these are the days when adult life kicks into gear and never looking back it never slows down. Rest, live, enjoy before … before becoming what I consider a full-fledged adult. Of course they probably are much more so than most of their friends, but that doesn’t matter. I’ll be damned if they have to work before I want them to. Know why else my baby thinks/wants a job? She wants some money of her own. Anything, something.

Back to the beginning now where I’ve wiped my face with toilet paper and rubbed my eyes too hard and I try to breathe. In two days I’ll see my med provider. Because of backlash I’m off sleeping pills and Neurontin (for Bipolar and FM). I’m running hard with sticky emotions … well … sticking to my life and driving me to my knees… to a single one.

The bloody new series “Resurrection” features a theme song that is wrenching my heart this way and that. I hear the refrain over and over taunting me and my ridiculous hold on my emotions  and my thoughts… “I’m coming home, I’m coming home…”

Toilet paper in hand I sit upon my bed. My heating pad tries in vain to ease the tight knots in my shoulders. My breathing has slowed. My tears stopped for now. I keep hearing that song… “I’m coming home…” endlessly repeating….

I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming home
I’m coming home
tell the world I’m coming home
let the rain, wash away, all the pain of yesterday
I know my kingdom awaits, and they’ve forgiven my mistakes
I’m coming home
I’m coming home
tell the world I’m coming…

I’m crying again.

A Huge Detail-One Face of Moodiness

I have moved into my room where it is cooler than the rest of the house, not to cool down, but to calm down. The cool room was just a bonus. Someone had just called and I felt that they were wrong, not I. It was something very important to me. And now it has to be put off and may not be ready for when my eldest daughter comes home on leave.

I plunged to despair and frustration with a swaggle of anxiety and frustration and went to my room to pout. To have a really good angry… pout.

I felt my old enemy rage upon me as so many times before. This time, I was almost ready. Almost. Fortunately I stopped myself before I started I started my wrecking ball at my family.

I cooled down a bit then realized I haven’t done this in several weeks. I’ve been on Neurontin and I really like what it does for me. What I don’t like is that I struggle not to fall asleep at all hours. We’ve been adjusting to this and losing all that the Neurontin benefited me. Then WHAM! I realized what was happening. I was going down the low road again. I was starting to implode again… then I realized I needed to stop. I realized that the lower dose of Neurontin (going lower and lower) was allowing me to slide. And it didn’t feel good at all.

I was crashing and I was gonna go down swinging.

Wait…. I have a few chill pills left. I took one.

And now I can write and consider a little nap before dinner to sooth my mind.

Restoring myself to equilibrium.

You know what? I’m glad I had sense enough (this time) to remove myself without any parting shots. And to use the cooler room and when being alone to realize what was happening. And sometimes, I have to tell you honestly, the truth is that sometimes, I need a little more help to “reset” myself.

I’m forever happy, that I have been able to eventually come back round to front “sort of side-wise”.

And… thank you for the little special pills. Taken with care and sparingly. But absolutely – taken.

Sadness & Our Families

Friday I got “good” news. I saw a neurologist and finally got to rule out any of the neurological problems that can cause facial ticks. Mine has been getting worse. Sometimes I just have to stop talking. I’ve noticed it gets worse when I’m even a little stressed… or excited. I have to stop and take a breath. It’s frustrating.

The doctor told me to talk to my mental health specialist. It’s psychological. Terrific.

It really is good news that I don’t have yet another physical problem. On the other hand it is very … depressing to find out that my brain is even more screwed up than I thought. When I say this I mean really that I have even more work controlling myself than before. Now, anyone who knows about the tick and what’s causing it (that would be me) will know that I’m stressed. How do I know that? My kids have already started doing it.

It makes a difference when there is a physical manifestation with my mental alphabet. I don’t even know how to process this.

Is it a good thing to have an obvious facial tick … the kind of thing I don’t know if I can control always … or is it bad because I know I’m mental? It’s heavy on me. Weights me down.

Families. I’m really sad about this whole thing. It “makes” me snappy at my kids. I’m hurting and they go about their lives. I guess I’ve raised them that way, to carry on. I don’t want them to be destroyed by my pain. Of course I want them to help me. Yet, I wonder what that means, really. It isn’t the kind of pain they can  slap a band-aid on like they do when I hurt myself.

I won’t say  “I feel like I’m dying inside”, because while I’m stricken with this news, I’m not so depressed that I can’t breathe. Actually, despite how horrible I feel since learning this tick is “in my mind” I’m sleeping really well. 7 – 9 hours a night all weekend. That never happens. I still feel tired though. Maybe though, maybe this is my brain’s way of saying… “Hey, now we know what the game is. We can fight back. Let’s make a plan.”

Question: Is there something you feel pressing on you like I feel about the tick? Something extra, added to your life that’s really messing with you?

It’s okay if you do. It really is.

The thing each of us needs to decide is how we decide to go forward… are we going to choose going forward? I have to decide completely how I’m going to deal with this. I can decide to fight the whole idea and let it destroy me. Or, I can let it roll over me like a wave.

I like the idea of a wave best. Absorb it. Make it part of me. Grab it and take it along for the ride. I can be more at peace rolling in the wave, than I can be when the wave inevitably comes crashing down on me.

Gonna roll.